NCT02439931

Brief Summary

Survivors of high grade brain tumours frequently experience increases in distress, cognitive challenges, and lessened quality of life. At the same time a range of barriers can make it challenging for these individuals to come into the clinic for appropriate psychosocial support. The proposed study is therefore a feasibility study that is designed to develop a manualized, remotely delivered psychosocial intervention for this population and then to test the acceptability, feasibility, apparent efficacy, and areas for improvement of the developed intervention. Further, a remote neuropsychological testing procedure will be developed and implemented and analogous questions will be asked around this procedure.

Trial Health

35
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
10

participants targeted

Target at below P25 for not_applicable quality-of-life

Timeline
Completed

Started Jul 2015

Status
unknown

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

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Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

May 7, 2015

Completed
5 days until next milestone

First Posted

Study publicly available on registry

May 12, 2015

Completed
2 months until next milestone

Study Start

First participant enrolled

July 1, 2015

Completed
1 year until next milestone

Primary Completion

Last participant's last visit for primary outcome

July 1, 2016

Completed
2 months until next milestone

Study Completion

Last participant's last visit for all outcomes

September 1, 2016

Completed
Last Updated

May 13, 2015

Status Verified

May 1, 2015

Enrollment Period

1 year

First QC Date

May 7, 2015

Last Update Submit

May 12, 2015

Conditions

Outcome Measures

Primary Outcomes (1)

  • Change from baseline in score on Quality of Life score on the Functional Assessment of Cancer Therapy-Brain

    The Functional Assessment of Cancer Therapy-Brain (FACT-Br) is a self report measure designed to assess quality of life in people living with brain malignancy across five dimensions: physical well-being, social/family well-being, emotional well being, functional well-being, and disease specific challenges.

    Comparison of scores pre-intervention to immediately post intervention (10 weeks) and 4 month followup

Secondary Outcomes (1)

  • Changes in scores regarding psychological distress(anxiety, depression and somatization) on the Brief Symptom Inventory -18

    Comparison of scores pre-intervention to immediately post intervention (10 weeks) and 4 month followup

Study Arms (1)

Remote psychosocial intervention

EXPERIMENTAL

10 sessions of remotely delivered psychoeducation and support

Behavioral: Remote psychosocial intervention

Interventions

Remote psychosocial intervention

Eligibility Criteria

Age19 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • have a WHO grade 3 or 4 brain tumour
  • be under the care of a BC Cancer Agency (BCCA) centre for their brain tumour
  • have a Karnofsky Performance Score of 70 or more
  • be capable of offering informed consent
  • have a high speed internet connection in the home

You may not qualify if:

  • experiencing levels of distress that will make participation untenable and/or likely counter-productive
  • currently experiencing suicidal ideation
  • not be capable of speaking English at level such that a translator will be needed to obtain informed consent and/or for the participant to engage appropriately in the intervention/assessments

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Officials

  • Douglas P Ozier, PhD

    British Columbia Cancer Agency

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Douglas P Ozier, PhD.

CONTACT

Study Design

Study Type
interventional
Phase
not applicable
Allocation
NA
Masking
NONE
Purpose
TREATMENT
Intervention Model
SINGLE GROUP
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

May 7, 2015

First Posted

May 12, 2015

Study Start

July 1, 2015

Primary Completion

July 1, 2016

Study Completion

September 1, 2016

Last Updated

May 13, 2015

Record last verified: 2015-05