Brain Health Registry: An Online Registry to Identify and Assess Subjects for Brain Research

NCT02402426 | Enrolling By Invitation DMC

• 1 other identifier: 12-09628
• Study Type: observational
• Target: 200,000
• Locations: 1 country
• Sites: 1

Brief Summary

The overall goal of this project is to identify, assess and longitudinally monitor subjects who are interested in participating in brain research. Participants will enroll through the website, BrainHealthRegistry.org, and provide informed consent prior to any study activities. The website will collect a variety of information, including participants' overall health, memory complaints, family history of dementia and Alzheimer's disease (AD), mood status, sleep, diet, and exercise-all through self-reported online questionnaires. Participants will also be ask to take online cognitive tests, and to return to the website at regular intervals, to complete follow-up questionnaires and neuropsychological assessments. Everyone over the age of 18 is welcome to participate. To join the Brain Health Registry, please visit www.BrainHealthRegistry.org.

Conditions

Healthy; Neurodegenerative Disease

Keywords

Brain Health; Brain Research; Alzheimer's Disease; Neurodegenerative Disease; Parkinson's Disease; Dementia; Stroke; PTSD; Multiple Sclerosis

Outcome Measures

Primary Outcomes (1)

• Alzheimer's Disease

  The overall goal of The Brain Health Registry is to facilitate and accelerate treatments for diseases which affect the brain.

  10 years

Secondary Outcomes (1)

• Neurodegenerative Diseases

  10 years

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

The Registry is a large, online database of volunteers who would like to participate in clinical trials and research. Anyone over the age of 18 is welcome to join the Registry, and the intent is to concentrate all efforts on enrolling participants age 55 years and older.

You may qualify if:

• Anyone over the age of 18 is welcome to join the Registry

You may not qualify if:

• N/A

Sponsors & Collaborators

• University of California, San Francisco: lead

Study Sites (1)

BrainHealthRegistry.org

San Francisco, California, 94143, United States

Location

Related Links

• Brain Health Registry: How it works; Join

MeSH Terms

Conditions

Neurodegenerative Diseases; Alzheimer Disease; Parkinson Disease; Dementia; Stroke; Stress Disorders, Post-Traumatic; Multiple Sclerosis

Condition Hierarchy (Ancestors)

Nervous System Diseases; Brain Diseases; Central Nervous System Diseases; Tauopathies; Neurocognitive Disorders; Mental Disorders; Parkinsonian Disorders; Basal Ganglia Diseases; Movement Disorders; Synucleinopathies; Cerebrovascular Disorders; Vascular Diseases; Cardiovascular Diseases; Stress Disorders, Traumatic; Trauma and Stressor Related Disorders; Demyelinating Autoimmune Diseases, CNS; Autoimmune Diseases of the Nervous System; Demyelinating Diseases; Autoimmune Diseases; Immune System Diseases

Study Officials

• Michael Weiner, MD

  University of California, San Francisco

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: COHORT
• Time Perspective: PROSPECTIVE
• Target Duration: 10 Years
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: August 1, 2013
• First Posted: March 30, 2015
• Study Start: September 1, 2013
• Primary Completion (Estimated): September 1, 2030
• Study Completion (Estimated): September 1, 2030
• Last Updated: January 13, 2026

Record last verified: 2026-01

Data Sharing

• IPD Sharing: Will not share

Locations

US (1)