NCT02263014

Brief Summary

The goal of this research study is to learn more about how different treatment decisions may influence the quality of life in women with breast cancer. Researchers want to use what is learned from this study to help future patients with breast cancer to be more informed when making treatment decisions.

Trial Health

75
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
345

participants targeted

Target at P75+ for all trials

Timeline
24mo left

Started Feb 2014

Longer than P75 for all trials

Geographic Reach
1 country

2 active sites

Status
active not recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress86%
Feb 2014Apr 2028

Study Start

First participant enrolled

February 24, 2014

Completed
8 months until next milestone

First Submitted

Initial submission to the registry

October 8, 2014

Completed
5 days until next milestone

First Posted

Study publicly available on registry

October 13, 2014

Completed
2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

October 1, 2016

Completed
4 years until next milestone

Results Posted

Study results publicly available

October 5, 2020

Completed
7.6 years until next milestone

Study Completion

Last participant's last visit for all outcomes

April 30, 2028

Expected
Last Updated

November 26, 2025

Status Verified

November 1, 2025

Enrollment Period

2.6 years

First QC Date

October 8, 2014

Results QC Date

March 14, 2017

Last Update Submit

November 20, 2025

Conditions

Keywords

Breast CancerContralateral Prophylactic MastectomyQuestionnairesSurveysPsychosocial

Outcome Measures

Primary Outcomes (2)

  • Psychosocial Outcomes of CPM Versus no CPM: Cancer Distress Score

    Cancer-specific distress was measured with the Impact of Events Scale (IES) to assess 2 common categories of responses to stressful events: intrusion and avoidance. The IES scale consists of 15 items. For the intrusion category (7 items), participants are asked to rate the items on a 4 point scale: 0 (not at all), 1 (rarely), 3 (sometimes), and 5 (often) and the sum is the total score (complete range is 0 to 35). For the avoidance category (8 items), participants are asked to rate the items on a 4 point scale: 0 (not at all), 1 (rarely), 3 (sometimes), and 5 (often) and the sum is the total score (complete range 0 to 40). The total cancer-specific distress score is the sum of the total intrusion score and the total avoidance score (complete range is 0 to 75). The total distress score was averaged for surveys completed at each time point. Higher mean scores indicate greater cancer-specific distress.

    Baseline to 12 months post surgery, up to 18 months. Survey administered at 1, 6, 12 months following surgery.

  • Psychosocial Outcomes of CPM Versus no CPM: Satisfaction With Decision

    The Satisfaction with Decision Scale (SWD) scale measures women's satisfaction with their surgery decision using the SWD six-item survey with a five-point scale where 1 is "strongly disagree" and 5 is "strongly agree" and the sum is the total score (complete range 6 to 30). The total satisfaction with decision score was averaged for surveys completed at each time point. Higher mean scores indicate greater satisfaction with the treatment decision.

    One to 12 months post surgery, up to 18 months. Survey administered at 1, 6, 12 months following surgery.

Study Arms (2)

Contralateral Prophylactic Mastectomy (CPM) Group

Group of women who decide to have contralateral prophylactic mastectomy (CPM) along with scheduled mastectomy. Screening questionnaire completed at baseline. Surgery decision questionnaires completed at surgical consult visit, and at 1, 6, and 12 months after the surgery is completed.

Behavioral: Questionnaires

No Contralateral Prophylactic Mastectomy (CPM) Group

Group of women who decide not to have contralateral prophylactic mastectomy (CPM) performed during scheduled mastectomy. Screening questionnaire completed at baseline. Surgery decision questionnaires completed at surgical consult visit, and at 1, 6, and 12 months after unilateral mastectomy or breast conserving surgery is completed.

Behavioral: Questionnaires

Interventions

QuestionnairesBEHAVIORAL

Screening questionnaire completed at baseline. Surgery decision questionnaires completed at surgical consult visit, and at 1, 6, 12, and 18 months after the surgery is completed.

Also known as: Surveys
Contralateral Prophylactic Mastectomy (CPM) GroupNo Contralateral Prophylactic Mastectomy (CPM) Group

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Breast cancer patients seen at University of Texas MD Anderson Cancer Center and at Kelsey Seybold Clinic.

You may qualify if:

  • Newly diagnosed ductal carcinoma in situ (DCIS) or Stage I-III sporadic unilateral invasive breast cancer
  • Age 18 or older
  • Able to speak, read, and write English.
  • Spouse/Partner: Married or living with patient for a year or more
  • Spouse/Partner: Age 18 or older
  • Spouse/Partner: Able to speak, read, and write English

You may not qualify if:

  • Patients with previous breast cancer
  • Prior history of prophylactic mastectomy
  • Known to have a germline gene mutation that predisposes them to an increased risk of breast cancer (e.g., BRCA1, BRCA2), and/or if they are considered at high risk for contralateral breast cancer on the basis of a strong family history of cancer

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (2)

Kelsey-Seybold

Houston, Texas, 77030, United States

Location

University of Texas MD Anderson Cancer Center

Houston, Texas, 77030, United States

Location

Related Publications (1)

  • Parker PA, Peterson SK, Shen Y, Bedrosian I, Black DM, Thompson AM, Nelson JC, DeSnyder SM, Cook RL, Hunt KK, Volk RJ, Cantor SB, Dong W, Brewster AM. Prospective Study of Psychosocial Outcomes of Having Contralateral Prophylactic Mastectomy Among Women With Nonhereditary Breast Cancer. J Clin Oncol. 2018 Sep 1;36(25):2630-2638. doi: 10.1200/JCO.2018.78.6442. Epub 2018 Jul 25.

Related Links

MeSH Terms

Conditions

Breast Neoplasms

Interventions

Surveys and Questionnaires

Condition Hierarchy (Ancestors)

Neoplasms by SiteNeoplasmsBreast DiseasesSkin DiseasesSkin and Connective Tissue Diseases

Intervention Hierarchy (Ancestors)

Data CollectionEpidemiologic MethodsInvestigative TechniquesHealth Care Evaluation MechanismsQuality of Health CareHealth Care Quality, Access, and EvaluationPublic HealthEnvironment and Public Health

Results Point of Contact

Title
Dr. Abenaa Brewster, Professor, Clinical Cancer Prevention
Organization
The University of Texas (UT) MD Anderson Cancer Center

Study Officials

  • Abenaa M. Brewster, MD, MHS, BS

    M.D. Anderson Cancer Center

    PRINCIPAL INVESTIGATOR

Publication Agreements

PI is Sponsor Employee
No
Restrictive Agreement
Yes

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

October 8, 2014

First Posted

October 13, 2014

Study Start

February 24, 2014

Primary Completion

October 1, 2016

Study Completion (Estimated)

April 30, 2028

Last Updated

November 26, 2025

Results First Posted

October 5, 2020

Record last verified: 2025-11

Locations