NCT02225041

Brief Summary

The purpose of this study is to determine the relationships between sedative exposure during pediatric critical illness and long-term neurocognitive outcomes. We will test for drug- and dose-dependent relationships between sedative exposure and neurocognitive outcomes along the early developmental spectrum and will control for baseline and environmental factors, as well as the severity and course of illness. Hypotheses:

  1. 1.Greater exposure to benzodiazepines and/or ketamine will be associated with lower IQ even when controlling for severity of illness, hospital course, and baseline factors. In addition, benzodiazepines and/or ketamine will negatively affect other aspects of neurocognitive function.
  2. 2.Younger children exposed to benzodiazepines and/or ketamine will have worse neurocognitive outcomes than older children with similar sedative exposure and severity of illness.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
360

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Aug 2014

Longer than P75 for all trials

Geographic Reach
1 country

31 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

July 25, 2014

Completed
7 days until next milestone

Study Start

First participant enrolled

August 1, 2014

Completed
24 days until next milestone

First Posted

Study publicly available on registry

August 25, 2014

Completed
4.3 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 1, 2018

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

December 1, 2018

Completed
Last Updated

June 18, 2019

Status Verified

June 1, 2019

Enrollment Period

4.3 years

First QC Date

July 25, 2014

Last Update Submit

June 17, 2019

Conditions

Keywords

intensive carecritical carechildfamilysurvivors

Outcome Measures

Primary Outcomes (1)

  • Neurocognitive function at 2.5 years post-ICU discharge, as assessed using standardized tests of attention, processing speed, learning and memory, visual-spatial skills, motor skills, language, executive function, IQ, and behavior

    2.5 to 5 years post-discharge

Eligibility Criteria

Age30 Months - 13 Years
Sexall
Healthy VolunteersYes
Age GroupsChild (0-17)
Sampling MethodNon-Probability Sample
Study Population

RESTORE subjects who consented for 6-month follow-up with normal baseline cognitive function aged 2 weeks to 8 years at PICU admission. In addition, we will study matched, healthy siblings of these subjects to provide data on an unexposed group with similar baseline biological characteristics and environment. If more than one sibling meets enrollment criteria, the one closest in age will be selected.

You may qualify if:

  • RESTORE subjects
  • Age ≤8 years and PCPC=1 at RESTORE PICU admission
  • PCPC ≤3 at RESTORE hospital discharge Sibling control subjects
  • Age 4 to 17 years at time of testing
  • PCPC=1
  • Same biological parents as primary subject
  • Lives with the primary subject

You may not qualify if:

  • RESTORE subjects
  • Hospital readmission that includes MV and sedation
  • History of cardiac arrest, traumatic brain injury (TBI) with loss of consciousness, genetic disorder, premature birth \<32 weeks gestational age, or birth weight \<2500 g Sibling control subjects
  • Adopted or step siblings
  • History of MV and sedation, receipt of general anesthesia, cardiac arrest, TBI with loss of consciousness, genetic disorder, premature birth \<32 weeks gestational age, or birth weight \<2500 gm.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (31)

Children's Hospital of Alabama

Birmingham, Alabama, 35233, United States

Location

University Medical Center, The University of Arizona

Tucson, Arizona, 85724, United States

Location

Children's Hospital and Research Center at Oakland

Oakland, California, 94609-1809, United States

Location

Children's Hospital of Orange County

Orange, California, 92868, United States

Location

Lucile Salter Packard Children's Hospital at Stanford

Palo Alto, California, 94304-0126, United States

Location

University of California Davis Medical Center

Sacramento, California, 95817, United States

Location

Children's Hospital at University of California San Francisco Medical Center

San Francisco, California, 94143, United States

Location

Connecticut Children's Medical Center

Hartford, Connecticut, 06106, United States

Location

Yale-New Haven Children's Hospital

New Haven, Connecticut, 06520-8064, United States

Location

Nemours/Alfred I. duPont Hospital for Children

Wilmington, Delaware, 19803, United States

Location

Holtz Children's Hospital

Miami, Florida, 33136, United States

Location

Florida Hospital for Children

Orlando, Florida, 32803, United States

Location

Children's Memorial Hospital, Chicago

Chicago, Illinois, 60614-3363, United States

Location

Advocate Hope Children's Hospital

Oak Lawn, Illinois, 60453, United States

Location

University of Maryland Hospital for Children

Baltimore, Maryland, 21201-1595, United States

Location

Johns Hopkins Children's Center

Baltimore, Maryland, 21287, United States

Location

University of Massachusetts Memorial Children's Medical Center

Worcester, Massachusetts, 01655, United States

Location

C. S. Mott Children's Hospital of the University of Michigan

Ann Arbor, Michigan, 48109-0243, United States

Location

Children's Mercy Hospital, Kansas City

Kansas City, Missouri, 84108, United States

Location

St. Louis Children's Hospital

St Louis, Missouri, 63110, United States

Location

University of Nebraska Medical Center

Omaha, Nebraska, 68114, United States

Location

Dartmouth-Hitchcock Medical Center

Lebanon, New Hampshire, 03756-0001, United States

Location

Cohen Children's Medical Center of New York

New Hyde Park, New York, 11040, United States

Location

The Children's Hospital at Montefiore

The Bronx, New York, 10467, United States

Location

Duke Children's Hospital and Health Center

Durham, North Carolina, 27710, United States

Location

Doernbecher Children's Hospital

Portland, Oregon, 97239, United States

Location

Children's Hospital of Philadelphia

Philadelphia, Pennsylvania, 19104, United States

Location

Monroe Carell, Jr. Children's Hospital at Vanderbilt

Nashville, Tennessee, 37232-9075, United States

Location

Medical City Children's Hospital

Dallas, Texas, 75230, United States

Location

Children's Medical Center Dallas

Dallas, Texas, 75235, United States

Location

Primary Children's Medical Center

Salt Lake City, Utah, 84113, United States

Location

Related Publications (1)

  • Curley MAQ, Watson RS, Cassidy AM, Burns C, Delinger RL, Angus DC, Asaro LA, Wypij D, Beers SR; RESTORE-cognition Study Investigators. Design and rationale of the "Sedation strategy and cognitive outcome after critical illness in early childhood" study. Contemp Clin Trials. 2018 Sep;72:8-15. doi: 10.1016/j.cct.2018.07.004. Epub 2018 Jul 11.

MeSH Terms

Conditions

Intellectual DisabilityPerceptual DisordersMemory Disorders

Condition Hierarchy (Ancestors)

Neurobehavioral ManifestationsNeurologic ManifestationsNervous System DiseasesSigns and SymptomsPathological Conditions, Signs and SymptomsNeurodevelopmental DisordersMental Disorders

Study Officials

  • Martha AQ Curley, RN, PhD

    University of Pennsylvania

    PRINCIPAL INVESTIGATOR
  • R. Scott Watson, MD

    Seattle Childrens Hospital

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
CASE CONTROL
Time Perspective
CROSS SECTIONAL
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

July 25, 2014

First Posted

August 25, 2014

Study Start

August 1, 2014

Primary Completion

December 1, 2018

Study Completion

December 1, 2018

Last Updated

June 18, 2019

Record last verified: 2019-06

Locations