NCT02216500

Brief Summary

Approximately a fourth of children with seizures do not respond adequately to available therapy. Ketogenic therapy has a long history as treatment for intractable epilepsy, but there is no agreement concerning how it works and what is the best way to administer it. This natural history study will collect data pertaining to both questions.

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
400

participants targeted

Target at P75+ for not_applicable

Timeline
65mo left

Started Sep 2006

Longer than P75 for not_applicable

Geographic Reach
1 country

1 active site

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress78%
Sep 2006Oct 2031

Study Start

First participant enrolled

September 1, 2006

Completed
8 years until next milestone

First Submitted

Initial submission to the registry

August 12, 2014

Completed
3 days until next milestone

First Posted

Study publicly available on registry

August 15, 2014

Completed
16.1 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

October 1, 2030

Expected
1 year until next milestone

Study Completion

Last participant's last visit for all outcomes

October 1, 2031

Last Updated

July 11, 2025

Status Verified

July 1, 2025

Enrollment Period

24.1 years

First QC Date

August 12, 2014

Last Update Submit

July 8, 2025

Conditions

Keywords

Ketogenic TherapyKetogenic Diet

Outcome Measures

Primary Outcomes (1)

  • Reduced seizures

    Seizures will be charted from collected data.

    2 years

Secondary Outcomes (1)

  • Reduced requirement for medications

    2 years

Study Arms (1)

Ketogenic Therapy

EXPERIMENTAL

Ketogenic Therapy will be administered.

Dietary Supplement: Ketogenic Therapy

Interventions

Ketogenic TherapyDIETARY_SUPPLEMENT

Ketogenic Therapy is based on a ratio of fat: protein+carbohydrate in which protein intake is adequate, fat intake is high, and carbohydrate intake is minimal.

Also known as: Ketogenic Diet
Ketogenic Therapy

Eligibility Criteria

AgeUp to 50 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64)

You may qualify if:

  • Patients whose physician has prescribed the ketogenic diet
  • Patients with lab tests consistent with the ability to metabolize a high fat and low carbohydrate diet
  • Patients that can be compliant with administration of the therapy and with record keeping.

You may not qualify if:

  • Patients with lab tests consistent with the inability to metabolize a high fat and low carbohydrate diet
  • Patients at risk of being non-compliant with administration of the therapy and with record keeping

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

University of Florida

Gainesville, Florida, 32611, United States

RECRUITING

MeSH Terms

Conditions

Seizures

Interventions

Diet, Ketogenic

Condition Hierarchy (Ancestors)

Neurologic ManifestationsNervous System DiseasesSigns and SymptomsPathological Conditions, Signs and Symptoms

Intervention Hierarchy (Ancestors)

Diet, Carbohydrate-RestrictedDiet TherapyNutrition TherapyTherapeuticsDietNutritional Physiological PhenomenaDiet, Food, and NutritionPhysiological Phenomena

Study Officials

  • Peggy R. Borum, Ph.D.

    University of Florida

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Peggy R. Borum, Ph.D.

CONTACT

Study Design

Study Type
interventional
Phase
not applicable
Allocation
NA
Masking
NONE
Purpose
TREATMENT
Intervention Model
SINGLE GROUP
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

August 12, 2014

First Posted

August 15, 2014

Study Start

September 1, 2006

Primary Completion (Estimated)

October 1, 2030

Study Completion (Estimated)

October 1, 2031

Last Updated

July 11, 2025

Record last verified: 2025-07

Locations