Alzheimer's Prevention Registry: A Program to Accelerate Enrollment Into Studies
APR
1 other identifier
observational
500,000
1 country
1
Brief Summary
The Alzheimer's Prevention Registry (www.endALZnow.org) will collect contact and demographic information on individuals. The objective is to provide information the latest news and advances in Alzheimer's prevention research, and to inform enrollees about research studies in their community. Enrolled individuals will receive regular email communications. As research studies become available, individuals will be notified via email with information as to how proceed should they be interested. Registry enrollees are under no obligation to participate in a research study. Study opportunities may include surveys, healthy lifestyle interventions (e.g., diet, exercise), memory \& thinking tests, brain scans, and investigational drug trials. To join the Registry, please visit www.endALZnow.org
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P75+ for all trials
Started May 2012
Longer than P75 for all trials
1 active site
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
Click on a node to explore related trials.
Study Timeline
Key milestones and dates
Study Start
First participant enrolled
May 1, 2012
CompletedFirst Submitted
Initial submission to the registry
December 23, 2013
CompletedFirst Posted
Study publicly available on registry
December 30, 2013
CompletedPrimary Completion
Last participant's last visit for primary outcome
January 1, 2030
ExpectedStudy Completion
Last participant's last visit for all outcomes
January 1, 2030
December 16, 2025
December 1, 2025
17.7 years
December 23, 2013
December 8, 2025
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
Number of individuals enrolled into Alzheimer's prevention studies
16 years
Secondary Outcomes (1)
Number of individuals referred to Alzheimer's prevention research studies / sites
16 years
Other Outcomes (1)
Total number enrolled into the Alzheimer's Prevention Registry
16 years
Eligibility Criteria
Anyone who meets entry criteria is eligible to join the Registry.
You may qualify if:
- Must be able to accept the Alzheimer's Prevention Registry website terms and conditions
You may not qualify if:
- None
Contact the study team to confirm eligibility.
Sponsors & Collaborators
- Banner Healthlead
Study Sites (1)
Banner Alzheimer's Institute
Phoenix, Arizona, 85006, United States
Related Publications (1)
Langbaum JB, High N, Nichols J, Kettenhoven C, Reiman EM, Tariot PN. The Alzheimer's Prevention Registry: A Large Internet-Based Participant Recruitment Registry to Accelerate Referrals to Alzheimer's-Focused Studies. J Prev Alzheimers Dis. 2020;7(4):242-250. doi: 10.14283/jpad.2020.31.
PMID: 32920626RESULT
Related Links
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Officials
- PRINCIPAL INVESTIGATOR
Jessica Langbaum, PhD
Banner Alzheimer's Institute
Central Study Contacts
Study Design
- Study Type
- observational
- Observational Model
- OTHER
- Time Perspective
- OTHER
- Target Duration
- 20 Years
- Sponsor Type
- OTHER
- Responsible Party
- PRINCIPAL INVESTIGATOR
- PI Title
- Senior Director, Research Strategy
Study Record Dates
First Submitted
December 23, 2013
First Posted
December 30, 2013
Study Start
May 1, 2012
Primary Completion (Estimated)
January 1, 2030
Study Completion (Estimated)
January 1, 2030
Last Updated
December 16, 2025
Record last verified: 2025-12