NCT01920815

Brief Summary

In order to determine the effectiveness of medical therapy options to prevent enlargement of the aorta in patients with a bicuspid aortic valve, a randomized study will be planned. This feasibility study will gather accurate data on number needed to screen, changes in medication use over time, and variance of the intended study endpoint.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
500

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Jul 2013

Longer than P75 for all trials

Geographic Reach
1 country

6 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

July 1, 2013

Completed
1 month until next milestone

First Submitted

Initial submission to the registry

August 8, 2013

Completed
4 days until next milestone

First Posted

Study publicly available on registry

August 12, 2013

Completed
2.8 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

June 1, 2016

Completed
1.3 years until next milestone

Study Completion

Last participant's last visit for all outcomes

October 4, 2017

Completed
Last Updated

September 19, 2018

Status Verified

September 1, 2018

Enrollment Period

2.9 years

First QC Date

August 8, 2013

Last Update Submit

September 17, 2018

Conditions

Outcome Measures

Primary Outcomes (1)

  • Change in aortic area measured by MRI

    Patients will have a baseline and follow up MRI per a specific protocol to measure area of the ascending thoracic aorta. All measurements will be performed by a core imaging lab

    24 months

Secondary Outcomes (1)

  • Clinical events involving the aorta, including change in medical therapy

    24 months

Study Arms (3)

Beta blocker therapy

Cohort will consist of those actively taking any beta blocker medication. Observation only.

Other: No interventions

ARB therapy

Cohort will consist of those actively taking any angiotensin receptor blocker medication. Observation only.

Other: No interventions

No therapy

Cohort will consist of those not taking either beta blocker nor angiotensin receptor blocker. Observation only.

Other: No interventions

Interventions

Also known as: Observation only
ARB therapyBeta blocker therapyNo therapy

Eligibility Criteria

Age18 Years - 90 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodProbability Sample
Study Population

Patients with a bicuspid aortic valve.

You may qualify if:

  • Bicuspid aortic valve
  • Aortic measurement of 35 - 49 mm on prior imaging study

You may not qualify if:

  • Prior aortic valve or thoracic aortic surgery
  • Prior aortic dissection
  • Other condition associated with enlarged aorta including Coarctation, Marfans, Turner syndrome, Loeys-Dietz, etc.
  • Severe aortic stenosis or regurgitation
  • Contraindication to MRI such as claustrophobia or implanted pacer/defibrillator
  • Anticipated pregnancy, surgery, or move outside the area within 2 years

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (6)

University of California

Los Angeles, California, United States

Location

University of Colorado

Denver, Colorado, United States

Location

Emory University

Atlanta, Georgia, United States

Location

Oregon Health and Science University

Portland, Oregon, 97239, United States

Location

Penn State

Hershey, Pennsylvania, United States

Location

Baylor College of Medicine

Houston, Texas, United States

Location

MeSH Terms

Conditions

Bicuspid Aortic Valve Disease

Condition Hierarchy (Ancestors)

Heart Defects, CongenitalCardiovascular AbnormalitiesCardiovascular DiseasesHeart DiseasesAortic Valve DiseaseHeart Valve DiseasesCongenital AbnormalitiesCongenital, Hereditary, and Neonatal Diseases and Abnormalities

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Target Duration
24 Months
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Associate Professor

Study Record Dates

First Submitted

August 8, 2013

First Posted

August 12, 2013

Study Start

July 1, 2013

Primary Completion

June 1, 2016

Study Completion

October 4, 2017

Last Updated

September 19, 2018

Record last verified: 2018-09

Data Sharing

IPD Sharing
Will not share

Locations