NCT01429389

Brief Summary

The specimen collection is designed for the purpose of the development of a noninvasive prenatal test for T21.

Trial Health

60
Monitor

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
2,000

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started May 2011

Longer than P75 for all trials

Geographic Reach
2 countries

14 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

May 1, 2011

Completed
4 months until next milestone

First Submitted

Initial submission to the registry

September 2, 2011

Completed
5 days until next milestone

First Posted

Study publicly available on registry

September 7, 2011

Completed
14.2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 1, 2025

Completed
3 months until next milestone

Study Completion

Last participant's last visit for all outcomes

March 1, 2026

Completed
Last Updated

October 16, 2024

Status Verified

October 1, 2024

Enrollment Period

14.6 years

First QC Date

September 2, 2011

Last Update Submit

October 11, 2024

Conditions

Keywords

Down syndromefetal aneuploidytrisomynoninvasive screening test

Eligibility Criteria

Age18 Years+
Sexfemale
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Pregnant women between 10 and 22 weeks of gestation who are scheduled to undergo a CVS or amniocentesis procedure and will receive the fetal FISH, karyotype and/or QF-PCR results from the procedure.

You may qualify if:

  • pregnant between 10 and 22 weeks gestation
  • years of age or older
  • provides signed and dated informed consent
  • subject is at increased risk for fetal aneuploidy
  • subject is willing to undergo a CVS and/or amniocentesis procedure for the purpose of genetic analysis
  • subject agrees to provide the genetic results of the invasive procedure

You may not qualify if:

  • Fetal demise at time of specimen sampling
  • Previous sample donation under this protocol

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (14)

University of Alabama Birmingham

Birmingham, Alabama, 35294, United States

RECRUITING

Cedars-Sinai Medical Center

Los Angeles, California, 90048, United States

RECRUITING

Sharp-Rees Stealy Medical Group

San Diego, California, 92101, United States

RECRUITING

UCSD

San Diego, California, 92121, United States

RECRUITING

Women's Health Care Research

San Diego, California, 92123, United States

RECRUITING

Specialty Obstetrics of San Diego

San Diego, California, 92130, United States

RECRUITING

Reproductive Genetics Institute

Chicago, Illinois, 60602, United States

RECRUITING

University of Iowa Health Care

Iowa City, Iowa, 52242, United States

RECRUITING

Henry Ford Hospital

Detroit, Michigan, 48202, United States

RECRUITING

Spectrum Health

Grand Rapids, Michigan, 49503, United States

RECRUITING

The Cooper Health System

Camden, New Jersey, United States

RECRUITING

Medical University of South Carolina

Charleston, South Carolina, 29466, United States

RECRUITING

IWK Health Centre

Halifax, Nova Scotia, B3K 6R8, Canada

RECRUITING

North York General Hospital

Toronto, Ontario, Canada

RECRUITING

Biospecimen

Retention: SAMPLES WITH DNA

Whole blood specimens will be collected and processed to plasma. DNA will be extracted from the plasma.

MeSH Terms

Conditions

Down SyndromeTrisomy

Condition Hierarchy (Ancestors)

Intellectual DisabilityNeurobehavioral ManifestationsNeurologic ManifestationsNervous System DiseasesAbnormalities, MultipleCongenital AbnormalitiesCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesChromosome DisordersGenetic Diseases, InbornAneuploidyChromosome AberrationsPathologic ProcessesPathological Conditions, Signs and SymptomsChromosome Duplication

Study Officials

  • Daniel Grosu, MD

    Sequenom, Inc.

    STUDY DIRECTOR

Study Design

Study Type
observational
Observational Model
CASE ONLY
Time Perspective
PROSPECTIVE
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

September 2, 2011

First Posted

September 7, 2011

Study Start

May 1, 2011

Primary Completion

December 1, 2025

Study Completion

March 1, 2026

Last Updated

October 16, 2024

Record last verified: 2024-10

Data Sharing

IPD Sharing
Will not share

Samples are used for research and development of a noninvasive prenatal test. However, samples used for publications will have data shared as defined by journal.

Locations