NCT01427712

Brief Summary

This study aims at collecting the information related to the safety and effectiveness in the pancreatic exocrine insufficiency patients due to cystic fibrosis receiving the treatment with LipaCreon in order to evaluate the effective and safe use of LipaCreon.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
24

participants targeted

Target at below P25 for all trials

Timeline
Completed

Started Aug 2011

Longer than P75 for all trials

Geographic Reach
1 country

21 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

August 1, 2011

Completed
1 month until next milestone

First Submitted

Initial submission to the registry

August 31, 2011

Completed
2 days until next milestone

First Posted

Study publicly available on registry

September 2, 2011

Completed
6.5 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

March 1, 2018

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

March 1, 2018

Completed
4.3 years until next milestone

Results Posted

Study results publicly available

June 10, 2022

Completed
Last Updated

June 10, 2022

Status Verified

March 1, 2022

Enrollment Period

6.6 years

First QC Date

August 31, 2011

Results QC Date

June 11, 2021

Last Update Submit

March 9, 2022

Conditions

Keywords

Digestive System DiseasesCystic FibrosisTherapeutic UsesGastrointestinal AgentsPancreatic DiseasesPancrelipaseExocrine Pancreatic Insufficiency

Outcome Measures

Primary Outcomes (1)

  • Number of Patients With Adverse Drug Reaction

    An adverse event (AE) was defined as any unfavourable or unintended disease, or symptom or sign of such a disease, or abnormal laboratory finding that occurred in a patient who received Lipacreon, whether or not considered related to the medicinal product. Also, an AE for which the relationship with Lipacreon could not be ruled out was regarded as an adverse drug reaction (ADR). 1. Related : There is a temporal relationship between the use of the medicinal product and the onset of an AE, or a relapse with readministration,where other factors are less likely to be involved. 2. Relationship cannot be ruled out : There are other potential factors although there is a temporal relationship between the use of the medicinal product and the onset of an AE

    From the start of Lipacreon treatment to the end of the observation period or discontinuation. Approximately 7 years in the study completers (From date of dosage start, up to 7 years).

Secondary Outcomes (14)

  • Nutritional Endpoints - BMI

    Baseline, 4 weeks, 8 weeks, 24 weeks, 52 weeks, 2 years, 3 years, 4 years, 5 years, 6 years, and 7 years

  • Nutritional Endpoints - Serum Total Protein

    Baseline, 4 weeks, 8 weeks, 24 weeks, 52 weeks, 2 years, 3 years, 4 years, 5 years, 6 years, and 7 years

  • Nutrition Endpoints - Albumin

    Baseline, 4 weeks, 8 weeks, 24 weeks, 52 weeks, 2 years, 3 years, 4 years, 5 years, 6 years, and 7 years

  • Nutrition Endpoints - Total Cholesterol

    Baseline, 4 weeks, 8 weeks, 24 weeks, 52 weeks, 2 years, 3 years, 4 years, 5 years, 6 years, and 7 years

  • Nutrition Endpoints - Triglycerides

    Baseline, 4 weeks, 8 weeks, 24 weeks, 52 weeks, 2 years, 3 years, 4 years, 5 years, 6 years, and 7 years

  • +9 more secondary outcomes

Study Arms (1)

LipaCreon

In general, pancrelipase 600 mg/dose was orally administered immediately after a meal, 3 times a day. Also, the dose was adjusted appropriately according to the patient's condition.

Drug: Pancrelipase

Interventions

Also known as: Lipacreon
LipaCreon

Eligibility Criteria

Age1 Year - 99 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Patients who receive LipaCreon for the replacement of pancreatic digestive enzymes in pancreatic exocrine insufficiency

You may qualify if:

  • Patients who receive LipaCreon for the replacement of pancreatic digestive enzymes in pancreatic exocrine insufficiency due to cystic fibrosis

You may not qualify if:

  • Patients with a history of hypersensitivity to the ingredient of LipaCreon.
  • Patients with a history of hypersensitivity to porcine protein

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (21)

Site Reference ID/Investigator# 73813

Aichi, 462-8508, Japan

Location

Site reference ID/Investigator # 96698

Aichi, 466-8650, Japan

Location

Research facility ID ORG-000141

Aichi, 467-8602, Japan

Location

Site reference ID/Investigator no. ORG-000842

Aichi, 470-0224, Japan

Location

Site reference ID/Investigator # 93736

Aichi, 474-8710, Japan

Location

Research facility ORG-000972

Ehime, 794-0006, Japan

Location

Mylan investigational site A

Hyōgo, 660-8550, Japan

Location

Site reference ID/Investigator # 93735

Ibaraki, 305-8520, Japan

Location

Site Reference ID/Investigator# 88673

Ibaraki, 305-8558, Japan

Location

Site Reference ID/Investigator# 65529

Ishikawa, 920-8641, Japan

Location

Site Reference ID/Investigator# 65530

Kagawa, 760-0017, Japan

Location

Site Reference ID/Investigator# 65527

Kagoshima, 890-8520, Japan

Location

Mylan investigational site C

Kanagawa, 232-8555, Japan

Location

Site Reference ID/Investigator# 65528

Miyagi, 980-0872, Japan

Location

Mylan investigational site B

Miyagi, 989-3126, Japan

Location

Research facility ID ORG-000594

Osaka, 534-0021, Japan

Location

Research facility ID ORG-001138

Ōita, 874-0011, Japan

Location

Research facility ORG-000971

Shizuoka, 438-8550, Japan

Location

Site reference ID/Investigator# 117495

Tochigi, 329-0431, Japan

Location

Research facility no. ORG-001309

Tokyo, 108-8329, Japan

Location

Site Reference ID/Investigator# 67122

Tokyo, 157-8535, Japan

Location

MeSH Terms

Conditions

Cystic FibrosisExocrine Pancreatic InsufficiencyPancreatic DiseasesDigestive System Diseases

Interventions

Pancrelipase

Condition Hierarchy (Ancestors)

Lung DiseasesRespiratory Tract DiseasesGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesInfant, Newborn, Diseases

Intervention Hierarchy (Ancestors)

LipaseCarboxylic Ester HydrolasesEsterasesHydrolasesEnzymesEnzymes and CoenzymesPancreatic ExtractsTissue ExtractsComplex Mixtures

Results Point of Contact

Title
Medical affairs manager
Organization
Medical affairs

Study Officials

  • Shigenori Haruna

    Mylan EPD G.K.

    STUDY DIRECTOR

Publication Agreements

PI is Sponsor Employee
No
Restrictive Agreement
No

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

August 31, 2011

First Posted

September 2, 2011

Study Start

August 1, 2011

Primary Completion

March 1, 2018

Study Completion

March 1, 2018

Last Updated

June 10, 2022

Results First Posted

June 10, 2022

Record last verified: 2022-03

Locations