NCT01306357

Brief Summary

The purpose of this strictly observational, prospective, longitudinal study is to evaluate with sufficient precision the rate of overall treatment compliance from one year to 3 years of follow-up of the patients. Somatotropin is indicated in the long-term treatment of children with growth retardation related to a deficiency in secretion of growth hormone and in the long-term treatment of growth retardation related to Turner's syndrome confirmed by chromosomal analysis. These are the two indications of Zomacton® 4 mg and 10 mg injection solution. The use of the Zomajet® needle-free device (Zomajet® 2 Vision, reserved for the administration of Zomacton® 4 mg or of the Zomajet® Vision X needle-free device, reserved for the administration of Zomacton® 10 mg), allows the product to be administered by percutaneous transjection (needle-free) and can be used by the child directly or by the family after an initial training. In April 2004, the CEPP (Commission for the Evaluation of Products and Services) requested a follow-up of the cohort of patients using the Zomajet® 2 Vision system measuring the compliance and duration of use of the device. The number of patients initiated on Zomacton treatment using the Zomajet® needle-free device is estimated to 30. Over a period of inclusion of 3 years, we therefore estimate that 90 patients will be treated. In the cohort studied the patients will be followed-up for 1 year at least and for 3 years at the maximum. The rate of treatment compliance will be evaluated according to the ratio of the actual duration of administration over the total duration recommended by the physician during the observation period.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
87

participants targeted

Target at P50-P75 for all trials

Timeline
Completed

Started Sep 2007

Longer than P75 for all trials

Geographic Reach
1 country

17 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

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Study Timeline

Key milestones and dates

Study Start

First participant enrolled

September 1, 2007

Completed
3.5 years until next milestone

First Submitted

Initial submission to the registry

February 28, 2011

Completed
1 day until next milestone

First Posted

Study publicly available on registry

March 1, 2011

Completed
7 months until next milestone

Primary Completion

Last participant's last visit for primary outcome

October 1, 2011

Completed
1 month until next milestone

Study Completion

Last participant's last visit for all outcomes

November 1, 2011

Completed
Last Updated

November 18, 2023

Status Verified

February 1, 2012

Enrollment Period

4.1 years

First QC Date

February 28, 2011

Last Update Submit

November 15, 2023

Conditions

Keywords

Turner's syndromesomatropinhuman growth hormone deficiency

Outcome Measures

Primary Outcomes (1)

  • Overall treatment compliance

    up to three years

Secondary Outcomes (4)

  • Description of the auxological and biochemical characteristics of the population at inclusion (notably the exploration of GH deficiency, the height, the difference in height from the average in SD, the rate of growth prior to treatment)

    Baseline (day 0)

  • Description of the Dosages of Growth Hormone and way of use of needle-free device

    up to 3 years

  • Description of the evolution of the auxological and biochemical parameters (gain in height in SD, growth rate, IGF-1 if available)

    Baseline (Day 0), up to three years

  • Average Duration of Treatment

    up to three years

Study Arms (1)

Zomacton® with Zomajet® needle-free device

Zomacton® 4 mg delivered by percutaneous transjection (needle-free) using the Zomajet® 2 Vision device or Zomacton® 10 mg delivered by percutaneous transjection (needle-free) using the Zomajet® Vision X needle-free device.

Drug: Somatropin

Interventions

4 mg or 10 mg delivered by needle-free device

Also known as: human growth hormone, Zomacton
Zomacton® with Zomajet® needle-free device

Eligibility Criteria

Age1 Year - 16 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17)
Sampling MethodNon-Probability Sample
Study Population

All patients who meet the criteria of the Treatment Information Sheet (growth hormone deficiency or Turner's syndrome) for which treatment is initiated with Zomacton® 4 mg using the Zomajet® 2 Vision needle-free device or with Zomacton® 10 mg using the Zomajet® Vision X.

You may qualify if:

  • Growth hormone deficiency
  • Turner's syndrome

You may not qualify if:

  • Patients who do not meet the criteria in the treatment Information Sheet

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (17)

Investigational site

Angers, France

Location

Investigational site

Bordeaux, France

Location

Investigational site

Brive-la-Gaillarde, France

Location

Investigational site

Hyères, France

Location

Investigational site

Juan-les-Pins, France

Location

Investigational site

Le Mans, France

Location

Investigational site

Lille, France

Location

Investigational site

Lisieux, France

Location

Investigational site

Montivilliers, France

Location

Investigational site

Montpellier, France

Location

Investigational site

Nice, France

Location

Investigational site

Nieul-sur-Mer, France

Location

Investigational site

Paris, France

Location

Investigational site

Puyricard, France

Location

Investigational site

Tarbes, France

Location

Investigational site

Toulon, France

Location

Investigational site

Toulouse, France

Location

MeSH Terms

Conditions

Turner Syndrome

Interventions

Human Growth Hormone

Condition Hierarchy (Ancestors)

Gonadal DysgenesisDisorders of Sex DevelopmentUrogenital AbnormalitiesFemale Urogenital DiseasesFemale Urogenital Diseases and Pregnancy ComplicationsUrogenital DiseasesSex Chromosome Disorders of Sex DevelopmentMale Urogenital DiseasesHeart Defects, CongenitalCardiovascular AbnormalitiesCardiovascular DiseasesHeart DiseasesCongenital AbnormalitiesCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesSex Chromosome DisordersChromosome DisordersGenetic Diseases, InbornGonadal DisordersEndocrine System Diseases

Intervention Hierarchy (Ancestors)

Growth HormonePituitary Hormones, AnteriorPituitary HormonesPeptide HormonesHormonesHormones, Hormone Substitutes, and Hormone AntagonistsPeptidesAmino Acids, Peptides, and Proteins

Study Officials

  • Clinical Development Support

    Ferring Pharmaceuticals

    STUDY DIRECTOR

Study Design

Study Type
observational
Observational Model
CASE ONLY
Time Perspective
PROSPECTIVE
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

February 28, 2011

First Posted

March 1, 2011

Study Start

September 1, 2007

Primary Completion

October 1, 2011

Study Completion

November 1, 2011

Last Updated

November 18, 2023

Record last verified: 2012-02

Locations