Trials Sponsors Conditions Drugs Pricing

Conditions

Cystic Fibrosis

Keywords

Lung transplantationsRepresentationsMucoviscidosis

Study Arms (1)

Representations

Other: Representations

Interventions

RepresentationsOther

1. A pre-test with 5 medical persons and 5 persons without mucoviscidosis will be realized to adjust the tools and place of the interview. 2. To collect analyzable data for 30 patients, 40 patients will be included in the study. A conceptual card will be associated to a semi-structured interviews to gather information.Two subgroups will be considered in th a analysis : * 1st sub-group : After the announcement of the transplant indication by the doctor and before the consultation in the transplant centre. * 2nd subgroup : After the consultation in the transplant centre but before the inscription on the waiting list. The analysis of conceptual cards in these two subgroups will permit to study the differences between the representations of patients before and after the consultation in the transplant centre. 3. Realize a 2nd interview on the same principle with all patients, 1 year after their lung transplantation.

Representations

Registry-reported names are shown in full. Names without a link have not yet been matched to a Syfrah profile.

Eligibility Criteria

Age18 Years+

Sexall

Healthy VolunteersNo

Age GroupsAdult (18-64), Older Adult (65+)

Sampling MethodNon-Probability Sample

Study Population

Adult patients for whom a lung transplant indication is established

You may qualify if:

For patients :

Sponsors & Collaborators

Nantes University Hospital
Otherlead

Study Sites (1)

Nantes University Hospital

Nantes, 44093, France

MeSH Terms

Conditions

Cystic Fibrosis

Interventions

Artificial Intelligence

Condition Hierarchy (Ancestors)

Pancreatic DiseasesDigestive System DiseasesLung DiseasesRespiratory Tract DiseasesGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesInfant, Newborn, Diseases

Intervention Hierarchy (Ancestors)

AlgorithmsMathematical Concepts

Study Officials

Valérie DAVID, Doctor
Nantes University Hospital
PRINCIPAL INVESTIGATOR
Raphaële NOVE-JOSSERAND, Doctor
Hospices Civils de Lyon
STUDY CHAIR
Marc STERN, Profesor
Hôpital Foch
STUDY CHAIR
Martine REYNAUD-GAUBERT, Profesor
CHU de Marseille
STUDY CHAIR

Enrollment

14 participants (actual enrollment reported by the registry).

Study Design

Study Type: observational
Time Perspective: PROSPECTIVE
Sponsor Type: OTHER

Study Record Dates

First Submitted

January 27, 2011

First Posted

January 28, 2011

Study Start

June 2009

Date type not reported

This date has not been verified as actual or estimated.

Representations of Transplantation in Patients and in Health Care Professionals

Brief Summary

Registry Overview

Trial Relationships

Study Timeline

Study Start

First Submitted

First Posted

Primary Completion

Study Completion

Conditions

Keywords

Study Arms (1)

Representations

Interventions

Eligibility Criteria

You may qualify if:

Sponsors & Collaborators

Study Sites (1)

MeSH Terms

Conditions

Interventions

Condition Hierarchy (Ancestors)

Intervention Hierarchy (Ancestors)

Study Officials

Enrollment

Study Design

Study Record Dates

You may not qualify if:

Source record

Locations

Brief Summary

Registry Overview

Trial Relationships

Related Scientific Literature

Study Timeline

Study Start

First Submitted

First Posted

Primary Completion

Study Completion

Conditions

Keywords

Study Arms (1)

Representations

Interventions

Eligibility Criteria

You may qualify if:

Sponsors & Collaborators

Study Sites (1)

MeSH Terms

Conditions

Interventions

Condition Hierarchy (Ancestors)

Intervention Hierarchy (Ancestors)

Study Officials

Enrollment

Study Design

Study Record Dates

You may not qualify if:

Source record

Locations