Duration of Untreated Psychosis (DUP) and Pathways to Care in Nordland

NCT01196858 | Completed

• 1 other identifier: 2009/1426(REK)
• Study Type: observational
• Target: 62
• Locations: 1 country
• Sites: 1

Brief Summary

During the 1990s, evidence began to emerge of the long duration of untreated illness prior to receiving treatment for patients with psychotic disorders. Studies across the world on first episode psychosis have consistently found an average of 1 - 2 years between the onset of psychotic symptoms and the start of treatment. Lengthy treatment delay has immediate implications such as unnecessary distress for patients and families, and may also compromise potential recovery when treatment is initiated.By understanding how and why substantial delays occur the investigators may be able to better design interventions to facilitate better earlier treatment. The components of DUP can be conceptualised as comprising 3 distinct intervals: help-seeking delay, referral delay and delay in mental health services. In this study the primary aim is to establish the level of DUP in nordland, and explore the components of this variable. Help-seeking delay will be investigated by interviewing patients presenting at the central mental health hospital in Nordland about their psychosis onset and pathways to care. Referral delay will be investigated by a questionnaire about the referral pratices among GPs in Nordland. Delays in mental health services will be investigated by focus group interviews with leaders and professionals at the 7 community mental health centers in Nordland. This knowledge is believed to be crucial for developing services that can reduce DUP and give this patient population earlier access to adequate treatment.

Conditions

Schizophrenia and Disorders With Psychotic Features; Affective Psychosis, Bipolar; Psychoses

Outcome Measures

Primary Outcomes (1)

• Duration of untreated psychosis

  Nottingham Onset Schedule

  retrospective, lifetime

Eligibility Criteria

• Age: 16 Years - 35 Years
• Sex: all
• Healthy Volunteers: No
• Age Groups: Child (0-17), Adult (18-64)
• Sampling Method: Non-Probability Sample

Study Population

This study is a naturalistic cohort study. All patients registrered in a 3 year period with the acute and/or rehabilitation units will be invited to participate. The eight units (acute and rehabilitation) will be able to provide a potential sample size of 150 participants over the 3-year period of the study. We are confident of minimal attrition and assume that we will achieve at least 85% follow up. This means that we can expect to have collected data on approximately 120 people.

You may qualify if:

• Any patient presenting with a possible psychotic illness (including schizophrenia, affective psychosis and drug-related psychosis, but excluding organic psychosis).
• Understands and speaks norwegian

You may not qualify if:

• Severe learning disability

Sponsors & Collaborators

• University Hospital of North Norway: lead
• The Royal Norwegian Ministry of Health: collaborator

Study Sites (1)

Nordland Hospital Trust

Bodø, Bodoe, 8009, Norway

Location

MeSH Terms

Conditions

Schizophrenia Spectrum and Other Psychotic Disorders; Bipolar Disorder; Psychotic Disorders

Condition Hierarchy (Ancestors)

Mental Disorders; Bipolar and Related Disorders; Mood Disorders

Study Officials

• Knut W. Soergaard, PhD

  Nordlandssykehuset HF

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: COHORT
• Time Perspective: RETROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: September 6, 2010
• First Posted: September 9, 2010
• Study Start: September 1, 2010
• Primary Completion: September 1, 2013
• Study Completion: September 1, 2013
• Last Updated: January 7, 2014

Record last verified: 2014-01

Locations

NO (1)