Ethnic Differences in the Impact of Breast Cancer on Employment Status, Financial Situation, and Quality of Life
Breast Cancer and the Workforce: Ethnic Differences in the Impact of Breast Cancer on Employment Status, Financial Situation, and Quality of Life (BCW)
Planned date reported by the registry; this milestone is not confirmed as achieved.
Study Completion
May 2027
Estimated
Planned date reported by the registry; this milestone is not confirmed as achieved.
Brief Summary
The purpose of this study is to learn more about how being treated for breast cancer affects patients' employment, financial situation, and quality of life on a short-term basis and on a long term basis. Most studies of employment after breast cancer have focused on Caucasian women.This study will evaluate the impact of breast cancer on the lives of women from different ethnic groups.
Registry Overview
Registry-reported information. Elapsed time and enrollment totals alone do not measure study progress or recruitment pace.
Recruitment status
active not recruiting
Actual enrollment (reported)
935 participants
Study completion date
May 2027
Estimated
Planned date reported by the registry; this milestone is not confirmed as achieved.
Listed locations
1 countries · 12 sites
Trial Relationships
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Related Scientific Literature
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Study Timeline
Dates and qualifiers reported by the registry. Estimated dates do not confirm that a milestone has occurred.
Study Start
May 2010
Actual (reported)
First Submitted
May 27, 2010
Actual (reported)
First Posted
May 31, 2010
Actual (reported)
Primary Completion
May 2027
Estimated
Planned date reported by the registry; this milestone is not confirmed as achieved.
Study Completion
May 2027
Estimated
Planned date reported by the registry; this milestone is not confirmed as achieved.
To compare the impact of breast cancer on (a) employment status, (b) financial situation, and (c) QoL.
3 years
Secondary Outcomes (2)
To identify barriers to employment and correlates of employment status, financial situation, and QoL.
3 years
To develop the methodology to evaluate discrimination in the labor market using a validated instrument and to determine whether or not labor market discrimination is exacerbated by a diagnosis of breast cancer.
3 years
Study Arms (2)
Breast cancer survivors
Women being treated for stage I-III breast cancer who were employed prior to this diagnosis will be recruited in their physicians' offices.
Behavioral: survey web-based or telephone interview
Comparison group
Peer controls will be nominated by participants in the breast cancer survivor group or recruited by community outreach and matched for age, language, and ethnicity. This cohort is no longer recruiting.
Behavioral: survey web-based or telephone interview
Interventions
survey web-based or telephone interviewBehavioral
Patients will be asked to complete a questionnaire at baseline, and then one at follow up, 3-4 months after treatment completion. The patient will be contacted one and two years after the completion of their follow up questionnaire for a brief one-question survey regarding current employment status. A member of the study team will call a subset of patients who have completed both baseline and follow-up surveys to clarify responses to previous questions. Patients will be considered lost to follow- up if surveys A or C have not been completed two years from the participant's consent date (participants who enroll but do not complete survey A are not prompted for survey C). Deviations will not be filed until the end of the study, as there are opportunities over the course of study follow- up to collect previously missing information.
Breast cancer survivors
survey web-based or telephone interview
Eligibility Criteria
Age18 Years - 64 Years
Sexfemale
Healthy VolunteersYes
Age GroupsAdult (18-64)
Sampling MethodNon-Probability Sample
Study Population
We will recruit participants from Memorial Sloan-Kettering Cancer Center (MSKCC), four of its community-based outpatient treatment centers, and four urban community hospitals and clinics that serve large populations of ethnic minorities in New York City. The MSKCC outpatient regional sites are located in New Jersey (Basking Ridge, Monmouth) and New York, with two in Long Island (Commack and Rockville Centre) and another in Westchester County.
Patients will be asked to complete a questionnaire at baseline, and then one at follow up, 3-4 months after treatment completion. All three follow-up contact methods (email, postcard, call) contain the same question regarding current employment status with minor modifications in formatting. However, the employment question asked in all three follow-up contact methods is shown in the Postcard\_Template document. Due to the recent COVID-19 pandemic study staff will be working from home. Therefore, calls will be made via MSK-approved platforms (e.g. Jabber, etc.). Participants who express concerns or request assistance related to COVID-19 will be referred to publicly available resources as needed (e.g., call 311 for access to health care or food panties, etc.) and will be noted in internal tracking logs. The data collected for these internal tracking logs will be managed through a REDCap database.
Comparison group
Registry-reported names are shown in full. Names without a link have not yet been matched to a Syfrah profile.
Breast cancer survivors
Pathologic diagnosis of stage I-III breast cancer
Paid employment (full time or part time) at time of consent or in the three months prior to diagnosis
Age 18 to 64 years (inclusive)
The ability to give informed consent in Chinese (Mandarin), English, Korean, or Spanish.at MSK, New York Presbyterian Queens and Queens Medical Associates At NYC Health \& Hospitals/ Lincoln Medical Center, patients must be able to give consent in English or Spanish.
At the time of enrollment, participants must still be undergoing chemotherapy, undergoing radiation therapy, or planning surgery unless surgery is to be the only treatment modality. Those for whom treatment consists of surgery alone may have had their operation no more than 2 months prior to study enrollment. Participants need not have undergone surgical reconstruction prior to enrollment if the plan is to delay this procedure until after primary treatment is completed.
Comparison group
Paid employment (full time or part time) at the time of consent
Age 18 to 64 years (inclusive) and within an age range that is 5 years above or below that of the nominating or matched survivor
The ability to give informed consent in the same language as the nominating survivor
Membership in the same ethnic group as the nominating survivor
Not treated for cancer in the past year (other than non-melanoma skin cancer)
Planned date reported by the registry; this milestone is not confirmed as achieved.
Study Completion
May 2027
Estimated
Planned date reported by the registry; this milestone is not confirmed as achieved.
Last Updated
June 3, 2026
Record last verified: 2026-06
Source record
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Source: ClinicalTrials.gov.
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