Study of the Health Information Needs of Brain Cancer Patients
Informed Brain Cancer Patients
1 other identifier
observational
27
1 country
1
Brief Summary
The purpose of this research is to explore the factors involved in brain cancer health care literacy needs.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at below P25 for all trials
Started May 2010
1 active site
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
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Study Timeline
Key milestones and dates
Study Start
First participant enrolled
May 1, 2010
CompletedFirst Submitted
Initial submission to the registry
May 24, 2010
CompletedFirst Posted
Study publicly available on registry
May 25, 2010
CompletedPrimary Completion
Last participant's last visit for primary outcome
December 1, 2011
CompletedStudy Completion
Last participant's last visit for all outcomes
December 1, 2011
CompletedJuly 25, 2012
July 1, 2012
1.6 years
May 24, 2010
July 24, 2012
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
Explore the factors involved in health care literacy from the perspective of brain cancer patients.
An investigator experienced in semi-structured focus group research will faclitate focus group sessions by using a generalized list of topics and open-ended discussion questions.
1 Year
Secondary Outcomes (1)
Explore the factors involved in health care literacy from the perspective of health care providers.
1 Year
Study Arms (2)
Brain Tumor Patient
A one-time focus group will be held in a quiet room for approximately 30-60 minutes until a "saturation" of themes has been identified.
Health Care Provider
A one-time focus group will be held in a quiet room for approximately 30-60 minutes until a "saturation" of themes has been identified.
Interventions
A single focus group will be held until a "saturation" of themes has been identified.
Eligibility Criteria
Participants will be recruited during routine interactions with the investigators.
You may qualify if:
- BRAIN TUMOR PATIENTS:
- to 89 years of age
- Have or have had any type of brain tumor
- Ability to communicate in English
- Willingness to participate in a 30-60 minute focus group
- HEALTH CARE PROVIDERS:
- to 89 years of age
- Be a health care provider who cares for any type of brain tumor
- Ability to communicate in English
- Willingness to participate in a 30-60 minute focus group
You may not qualify if:
- None
Contact the study team to confirm eligibility.
Sponsors & Collaborators
Study Sites (1)
University of Florida
Gainesville, Florida, 32610, United States
MeSH Terms
Conditions
Interventions
Condition Hierarchy (Ancestors)
Intervention Hierarchy (Ancestors)
Study Officials
- PRINCIPAL INVESTIGATOR
Erin M Dunbar, MD
University of Florida
Study Design
- Study Type
- observational
- Time Perspective
- PROSPECTIVE
- Sponsor Type
- OTHER
- Responsible Party
- SPONSOR
Study Record Dates
First Submitted
May 24, 2010
First Posted
May 25, 2010
Study Start
May 1, 2010
Primary Completion
December 1, 2011
Study Completion
December 1, 2011
Last Updated
July 25, 2012
Record last verified: 2012-07