NCT01123694|UnknownDMC
Xeroderma Pigmentosum Patient Experiences
Xeroderma Pigmentosum: A Survey of Patient Experiences
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Xeroderma Pigmentosum: A Survey of Patient Experiences
Sponsor study identifier
observational
15
1 country
1
Study Start
July 2009
Date type not reportedThis date has not been verified as actual or estimated.
Primary Completion
July 2010
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Study Completion
July 2010
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Xeroderma Pigmentosum (XP) is a rare skin condition that causes extreme sensitivity to the sun and an increased incidence of skin cancers. The purpose of this study is to find out more about XP patient experiences and their quality of life.
Registry-reported information. Elapsed time and enrollment totals alone do not measure study progress or recruitment pace.
July 2010
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
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Some registry-reported names shown below are not yet linked in this graph.
Dates and qualifiers reported by the registry. Estimated dates do not confirm that a milestone has occurred.
July 2009
Date type not reportedThis date has not been verified as actual or estimated.
May 12, 2010
Actual (reported)May 14, 2010
Actual (reported)July 2010
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
July 2010
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Xeroderma Pigmentosum patients who attend Camp Sundown, a camp for children with this condition.
Survey regarding quality of life
Registry-reported names are shown in full. Names without a link have not yet been matched to a Syfrah profile.
Study population will be a convenience sample of XP patients from Camp Sundown, a camp for children with XP.
Henry Ford Medical Center, New Center One
Detroit, Michigan, 48202, United States
Henry W Lim, M.D.
Henry Ford Hospital Department of Dermatology
First Submitted
May 12, 2010
First Posted
May 14, 2010
Study Start
July 2009
Date type not reportedThis date has not been verified as actual or estimated.
Primary Completion
July 2010
Estimated (date passed)Defining Ileorectal Syndrome: a Prospective Observational Study
Contact the study team to confirm eligibility.
This estimate has passed. The registry has not confirmed an actual date for this milestone.
Study Completion
July 2010
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Last Updated
May 14, 2010
Record last verified: 2010-05
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Source: ClinicalTrials.gov.
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