NCT00716664

Brief Summary

The pilot study aims to evaluate the effects of a treatment series of gentle joint and muscle movements (in addition to normal optimal care)on lung function, exercise capacity and posture in stable adults with cystic fibrosis.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
20

participants targeted

Target at below P25 for not_applicable

Timeline
Completed

Started Mar 2007

Geographic Reach
1 country

1 active site

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

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Study Timeline

Key milestones and dates

Study Start

First participant enrolled

March 1, 2007

Completed
1.4 years until next milestone

First Submitted

Initial submission to the registry

July 15, 2008

Completed
1 day until next milestone

First Posted

Study publicly available on registry

July 16, 2008

Completed
16 days until next milestone

Primary Completion

Last participant's last visit for primary outcome

August 1, 2008

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

August 1, 2008

Completed
Last Updated

March 11, 2009

Status Verified

July 1, 2008

Enrollment Period

1.4 years

First QC Date

July 15, 2008

Last Update Submit

March 10, 2009

Conditions

Keywords

cystic fibrosismusculoskeletalexercise capacityposturelung functionphysical functioning

Outcome Measures

Primary Outcomes (1)

  • Forced expiratory volume in one second

    12 weeks

Secondary Outcomes (8)

  • Forced vital capacity, peak expiratory flow rate

    12 weeks

  • Visual analogue scale for pain

    12 weeks

  • Modified shuttle test

    12 weeks

  • The Cystic Fibrosis Quality of Life Questionnaire, section one: physical functioning

    12 weeks

  • Flexi curve measurements of posture

    12 weeks

  • +3 more secondary outcomes

Study Arms (2)

1

EXPERIMENTAL

The experimental group receives the intervention in addition to normal optimal care

Other: A treatment series of gentle joint and muscle movements

2

ACTIVE COMPARATOR

The active comparator, or control group, receives normal optimal care only

Other: Control group measurements

Interventions

Undertaken by a physiotherapist, weekly, for six weeks

Also known as: manual therapy, physical therapy, mobilisation, musculoskeletal techniques
1

The control group are measured using the same outcome measures at the same time intervals, but receive no active intervention

2

Eligibility Criteria

Age16 Years+
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)

You may qualify if:

  • Reported postural changes, stiffness, discomfort and/or pain of musculoskeletal origin in the thoracic spine or chest wall.
  • Diagnosis of cystic fibrosis (confirmed by genotype or a sweat sodium concentration of \>70mmol/l or sweat chloride of \>60mmol/l)
  • Sixteen years of age or over
  • Patients in a stable clinical state with lung function at the time of entry that is within 10% of the mean of the last two recordings (separated by at least one month).
  • Forced Expiratory Volume in 1 second (FEV1) ≥30% predicted at time of entry to the study.

You may not qualify if:

  • Evidence of a current respiratory exacerbation (worsening) as defined by Thornton et al. 2004
  • Cor pulmonale (right heart failure)
  • Low bone density (Z score \< -3)(WHO Study Group 1994)
  • Previous history of spontaneous fractures
  • Past history of spinal fracture or other known arthropathic (joint) or spinal disease process
  • Currently undergoing musculoskeletal (physiotherapy, chiropractic or osteopathic) treatment
  • Pregnancy
  • Inability to give consent
  • Current enrollment in another research trial.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Royal Brompton Hospital

London, London, SW3 6NP, United Kingdom

Location

MeSH Terms

Conditions

Cystic Fibrosis

Interventions

Musculoskeletal ManipulationsPhysical Therapy Modalities

Condition Hierarchy (Ancestors)

Pancreatic DiseasesDigestive System DiseasesLung DiseasesRespiratory Tract DiseasesGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and AbnormalitiesInfant, Newborn, Diseases

Intervention Hierarchy (Ancestors)

Complementary TherapiesTherapeuticsRehabilitation

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
SINGLE
Who Masked
INVESTIGATOR
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
OTHER

Study Record Dates

First Submitted

July 15, 2008

First Posted

July 16, 2008

Study Start

March 1, 2007

Primary Completion

August 1, 2008

Study Completion

August 1, 2008

Last Updated

March 11, 2009

Record last verified: 2008-07

Locations