NCT00346333

Brief Summary

The purpose of this trial is to determine whether lutein in addition to vitamin A will slow the course of retinitis pigmentosa.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
240

participants targeted

Target at P50-P75 for phase_3

Timeline
Completed

Started Jul 2003

Longer than P75 for phase_3

Geographic Reach
1 country

1 active site

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

July 1, 2003

Completed
3 years until next milestone

First Submitted

Initial submission to the registry

June 27, 2006

Completed
2 days until next milestone

First Posted

Study publicly available on registry

June 29, 2006

Completed
2.4 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 1, 2008

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

December 1, 2008

Completed
5.2 years until next milestone

Results Posted

Study results publicly available

January 31, 2014

Completed
Last Updated

January 31, 2014

Status Verified

December 1, 2013

Enrollment Period

5.4 years

First QC Date

June 27, 2006

Results QC Date

June 18, 2012

Last Update Submit

December 12, 2013

Conditions

Keywords

Retinitis Pigmentosa, Inherited Retinal Degeneration

Outcome Measures

Primary Outcomes (1)

  • Central Visual Field (vf) Change Assessed Using the 30-2 Program of the Humphrey Field Analyzer (HFA).

    Sum of visual field sensitivity readings in decibel(dB) to a size V target out to the 30 degree meridian in each direction of the visual field. The value presented represents annual change in dB over 4 years.

    assessed at each of 4 annual visits after baseline

Secondary Outcomes (4)

  • Mid-peripheral Field Change Assessed With the 60-4 Program of the Humphrey Field Analyzer.

    assessed at each of 4 annual visits after baseline

  • Total Field Change Assessed by the Combined 30-2 and 60-4 Programs of the Humphrey Field Analyzer.

    assessed at each of 4 annual visits after baseline

  • Annual Change in 30 Hertz(Hz)Electroretinogram(ERG )Amplitude in Natural Log (ln) Microvolts/yr Over a 4 Year Period.

    assessed at each of 4 annual visits after baseline

  • Early Treatment Diabetic Retinopathy Study (ETDRS) Visual Acuity

    assessed at each of 4 annual visits after baseline

Study Arms (2)

Lutein plus 15,000 IU/d Vitamin A

EXPERIMENTAL

Daily intake of 12mg of Lutein plus 15,000 IU/d of Vitamin A palmitate

Drug: Lutein

Control plus 15,000 IU/d Vitamin A

PLACEBO COMPARATOR

Daily intake of cornstarch control plus 15,000 IU/d Vitamin A palmitate

Dietary Supplement: Cornstarch control

Interventions

LuteinDRUG

12mg/d

Lutein plus 15,000 IU/d Vitamin A
Cornstarch controlDIETARY_SUPPLEMENT

Daily intake of cornstarch control plus 15,000 IU/d Vitamin A palmitate

Control plus 15,000 IU/d Vitamin A

Eligibility Criteria

Age18 Years - 60 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64)

You may qualify if:

  • Ocular Criteria
  • RP, typical forms(i.e. elevated final dark adaptation threshold,retinal arteriolar narrowing,and reduced and delayed full-field ERGs).
  • Best-corrected visual acuity 20/100 or better
  • HFA program 30-2 total point score \>= 250 decibels(dB)to a size V white test light
  • No confounding ocular disease such as glaucoma,uveitis,diabetic retinopathy,posterior subcapsular cataract more than 11% of total lens area (ie equivalent to P3 on Lens Opacity Classification System III)and pupil diameter after dilation less than 6 mm.
  • Dietary Criteria
  • Fruit and vegetable intake \< 10 servings/d
  • Spinach or kale intake \< 1 serving/d, i.e. \<1/2 cup of cooked spinach or kale per day
  • Dietary lutein intake \<=5.4 mg/d as estimated from food frequency questionnaire
  • No intake of cod liver oil or omega-3 capsules
  • Dietary preformed vitamin A intake \<= 10,000 IU/d
  • Supplement intake \<= 5,000 IU/d of Vitamin A and \<= 30 IU/d of Vitamin E
  • Consumption \<= 3 alcoholic beverages/d
  • Medical and other criteria
  • Age 18-60 y
  • +9 more criteria

You may not qualify if:

  • Women who are pregnant or planning to become pregnant (Vitamin A supplements can increase the risk of birth defects.)
  • Current participation in another clinical trial for RP
  • Patients with atypical forms such as paravenous RP, pericentral RP, sector RP,unilateral RP,Refsum disease, Bardet-Biedl syndrome, retinitis punctata albescens and cone-rod dystrophy were excluded as were patients with RP and profound congenital deafness.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Berman Gund Laboratory for the Study of Retinal Degenerations, Harvard Medical School ,Massachusetts Eye & Ear Infirmary

Boston, Massachusetts, 02114, United States

Location

Related Publications (2)

  • Berson EL, Rosner B, Sandberg MA, Weigel-DiFranco C, Brockhurst RJ, Hayes KC, Johnson EJ, Anderson EJ, Johnson CA, Gaudio AR, Willett WC, Schaefer EJ. Clinical trial of lutein in patients with retinitis pigmentosa receiving vitamin A. Arch Ophthalmol. 2010 Apr;128(4):403-11. doi: 10.1001/archophthalmol.2010.32.

  • Comander J, Weigel DiFranco C, Sanderson K, Place E, Maher M, Zampaglione E, Zhao Y, Huckfeldt RM, Bujakowska KM, Pierce E. Natural history of retinitis pigmentosa based on genotype, vitamin A/E supplementation, and an electroretinogram biomarker. JCI Insight. 2023 Aug 8;8(15):e167546. doi: 10.1172/jci.insight.167546.

MeSH Terms

Conditions

Retinitis Pigmentosa

Interventions

Lutein

Condition Hierarchy (Ancestors)

Eye Diseases, HereditaryEye DiseasesRetinal DystrophiesRetinal DegenerationRetinal DiseasesGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and Abnormalities

Intervention Hierarchy (Ancestors)

XanthophyllsCarotenoidsPolyenesAlkenesHydrocarbons, AcyclicHydrocarbonsOrganic ChemicalsCyclohexenesCyclohexanesCycloparaffinsHydrocarbons, AlicyclicHydrocarbons, CyclicTerpenesPigments, BiologicalBiological Factors

Results Point of Contact

Title
Eliot L. Berson, M.D.
Organization
Harvard Medical School

Study Officials

  • Eliot L Berson, MD

    Harvard Medical School (HMS and HSDM)

    STUDY CHAIR

Publication Agreements

PI is Sponsor Employee
No
Restrictive Agreement
No

Study Design

Study Type
interventional
Phase
phase 3
Allocation
RANDOMIZED
Masking
QUADRUPLE
Who Masked
PARTICIPANT, CARE PROVIDER, INVESTIGATOR, OUTCOMES ASSESSOR
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
NIH
Responsible Party
SPONSOR

Study Record Dates

First Submitted

June 27, 2006

First Posted

June 29, 2006

Study Start

July 1, 2003

Primary Completion

December 1, 2008

Study Completion

December 1, 2008

Last Updated

January 31, 2014

Results First Posted

January 31, 2014

Record last verified: 2013-12

Locations