Clinical Integration of Genetic Risk Assessment in Family Medicine

NCT00339794 | Completed

• 2 other identifiers: 99990505505-HG-N055
• Study Type: observational
• Target: 1,500
• Locations: 1 country
• Sites: 1

Brief Summary

This study, conducted by the American Academy of Family Physicians (AAFP) and the National Human Genome Research Institute, will characterize family physicians' attitudes and practices related to the genetics of complex disorders. As the front line of care for most Americans, family medicine will have a central role in seeing that new findings in genetics lead to disease prevention and health improvements. The information gained from this study could be useful in understanding and shaping the dissemination of genetic medicine in ways that improve the standard of primary care practice. Members of the AAFP will be randomly selected from the organization's membership records to be invited to participate in this two-phase study. The first phase is a web-based survey of AAFP members. In the second phase, a sub-sample of those who complete the survey will be re-contacted; half will be members who have enrolled in a year-long web-based curriculum related to medical genetics, and the other half will be those who have chosen not to enroll in the curriculum. Survey questions relate to the physicians' practices, knowledge, and opinions about implications of genomic medicine. Survey areas include family history taking; opinions about the future of genetics and family medicine; information about the physician and his or her practice; and physician's skills, attitudes and knowledge.

Conditions

Genomics

Keywords

Racial Profiling; Genomics; Genetic Testing; Family History; Family Physician

Eligibility Criteria

• Age: 21 Years+
• Sex: all
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)

You may qualify if:

• The sampling frame for this study is the American Academy of Family Physicians (AAFP) membership (estimated at 54,600 active members). The majority of the members of AAFP are physicians with a family physicians residency background (89%) who tend to practice in urban (71%), private office settings (89%) and provide direct patient care (82%).

Sponsors & Collaborators

• National Human Genome Research Institute (NHGRI): lead

Study Sites (1)

National Human Genome Research Institute (NHGRI), 9000 Rockville Pike

Bethesda, Maryland, 20892, United States

Location

Related Publications (3)

• Sayers MD, Bellack AS, Wade JH, Bennett ME, Fong P. An empirical method for assessing social problem solving in schizophrenia. Behav Modif. 1995 Jul;19(3):267-89. doi: 10.1177/01454455950193001.

  PMID: 7625993 BACKGROUND

• Burchard EG, Ziv E, Coyle N, Gomez SL, Tang H, Karter AJ, Mountain JL, Perez-Stable EJ, Sheppard D, Risch N. The importance of race and ethnic background in biomedical research and clinical practice. N Engl J Med. 2003 Mar 20;348(12):1170-5. doi: 10.1056/NEJMsb025007. No abstract available.

  PMID: 12646676 BACKGROUND

• Burke W. Genetic testing. N Engl J Med. 2002 Dec 5;347(23):1867-75. doi: 10.1056/NEJMoa012113. No abstract available.

  PMID: 12466512 BACKGROUND

Study Design

• Study Type: observational
• Sponsor Type: NIH

Study Record Dates

• First Submitted: June 19, 2006
• First Posted: June 21, 2006
• Study Start: December 7, 2004
• Study Completion: July 16, 2010
• Last Updated: July 2, 2017

Record last verified: 2010-07-16

Locations

US (1)