NCT00217321

Brief Summary

The purpose of the Parkinson's disease Registry is to develop a national and international database of persons with Parkinson's disease (PD). The Registry will be used to facilitate the development of new therapies and healthcare services to improve the quality of life for people with PD. It will also be a means for investigators in the field of PD to quickly identify and notify subjects about other research studies for which they are eligible. Objectives include:

  • Assess current treatment approaches and develop best-practice guidelines
  • Track the functional abilities, access to healthcare and cost of illness of people with PD over time
  • Drive the development of innovative research projects
  • Accelerate the process of informing patients of research projects for which they may be eligible

Trial Health

43
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
20,000

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Nov 2003

Longer than P75 for all trials

Geographic Reach
1 country

1 active site

Status
unknown

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

November 1, 2003

Completed
1.9 years until next milestone

First Submitted

Initial submission to the registry

September 15, 2005

Completed
7 days until next milestone

First Posted

Study publicly available on registry

September 22, 2005

Completed
10.2 years until next milestone

Study Completion

Last participant's last visit for all outcomes

December 1, 2015

Completed
Last Updated

July 21, 2010

Status Verified

September 1, 2006

First QC Date

September 15, 2005

Last Update Submit

July 20, 2010

Conditions

Parkinson's Disease

Keywords

Parkinson's diseaseParkinson diseaseRegistryquality of lifedatabase

Eligibility Criteria

Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Participants must be over 18 years old, have idiopathic Parkinson's disease diagnosed by a physician.

You may qualify if:

  • Clinical diagnosis of Parkinson's disease

You may not qualify if:

  • No clinical diagnosis of Parkinson's disease

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Muhammad Ali Parkinson Research Center

Phoenix, Arizona, 85013, United States

Location

MeSH Terms

Conditions

Parkinson Disease

Condition Hierarchy (Ancestors)

Parkinsonian DisordersBasal Ganglia DiseasesBrain DiseasesCentral Nervous System DiseasesNervous System DiseasesMovement DisordersSynucleinopathiesNeurodegenerative Diseases

Study Officials

  • Abraham Lieberman, MD

    MAPC

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
ECOLOGIC OR COMMUNITY
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER

Study Record Dates

First Submitted

September 15, 2005

First Posted

September 22, 2005

Study Start

November 1, 2003

Study Completion

December 1, 2015

Last Updated

July 21, 2010

Record last verified: 2006-09

Locations

US(1)