Barbara B Biesecker
National Human Genome Research Institute (NHGRI)
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19
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Clinical Trials (20)
Showing 10 of 20 trials
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Publications (0)
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Clinical Trials (23)
Showing 20 of 23 trials
Positive Exposure: A Photography and Video Intervention for Individuals With Craniofacial Differences
Predictors of Caregiver Adaptation to Pervasive Developmental Disorders
Adaptation and Quality of Life Among Adults With Neurofibromatosis Type I
Screening Behavior in Adults With Hereditary Hemorrhagic Telangiectasia
The Experience of Caregivers of Children With Down Syndrome
Cultural Congruence in International Genetics Research
The Role of Family Functioning in Adaptation to Being a Caregiver of an Individual With Rett Syndrome
Adaptation Among Adolescents and Adults With Klinefelter Syndrome
The Experience of Uncertainty in Parents of Children With an Undiagnosed Medical Condition
Parents With Bipolar Disorder: Relationship of Adaptation to Own Illness With Risk Perception and Coping With Perceived Risk to a Child
Perceptions of Thalassemia Major in Singapore: An Exploratory Study of Stigma
The Perceived Impact of Children s Risk Status for Hypertrophic Cardiomyopathy on Families: an Exploratory Study
A Coping Effectiveness Training Intervention for Caregivers of Children With Autism Spectrum: A Feasibility Study
The Role of Social Comparisons in Coping and Quality of Life Following a Prostate Cancer Diagnosis
The PTC124 (Ataluren) Clinical Trial for Duchenne Muscular Dystrophy: Exploration of the Experiences of Parents, Clinician Researchers, and the Industry Sponsor
Informed Consent for Whole Genome Sequencing: Ideals and Norms Referenced by Early Participants
Family Communication of Hereditary Breast and Ovarian Cancer Risk Among African Americans
The Role of Family Functioning in Promoting Adaptation in Siblings of Individuals With Duchenne Muscular Dystrophy (DMD)