Predictors of Caregiver Adaptation to Pervasive Developmental Disorders
Understanding Caregiver Adaptation to Pervasive Developmental Disorders
Understanding Caregiver Adaptation to Pervasive Developmental Disorders
Sponsor study identifier
Secondary identifiers
observational
324
1 country
1
Study Start
June 27, 2007
Date type not reportedThis date has not been verified as actual or estimated.
Primary Completion
Not reported
Date not reportedStudy Completion
December 7, 2015
Date type not reportedThis date has not been verified as actual or estimated.
This study will explore predictors of how caregivers might adapt to children diagnosed with a pervasive developmental disorder (PDD), including autism, Asperger s syndrome, childhood disintegrative disorder, Rett s disorder or other not specified PDD. PDD presents particular challenges for caregivers because of the communication and socialization challenges of affected children and because of the uncertainty surrounding the cause, prognosis and recurrence risks. People 18 years of age or older who are the primary caregiver for a child diagnosed with a PDD may be eligible for this study. Participants fill out a survey, either online or in hard copy, that includes information in the following categories:
Registry-reported information. Elapsed time and enrollment totals alone do not measure study progress or recruitment pace.
December 7, 2015
Date type not reportedThis date has not been verified as actual or estimated.
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Dates and qualifiers reported by the registry. Estimated dates do not confirm that a milestone has occurred.
June 27, 2007
Date type not reportedThis date has not been verified as actual or estimated.
July 3, 2007
Actual (reported)July 4, 2007
Actual (reported)December 7, 2015
Date type not reportedThis date has not been verified as actual or estimated.
National Human Genome Research Institute (NHGRI), 9000 Rockville Pike
Bethesda, Maryland, 20892, United States
Affleck G, Tennen H, Pfeiffer C, Fifield J. Appraisals of control and predictability in adapting to a chronic disease. J Pers Soc Psychol. 1987 Aug;53(2):273-9. doi: 10.1037//0022-3514.53.2.273.
Baron RM, Kenny DA. The moderator-mediator variable distinction in social psychological research: conceptual, strategic, and statistical considerations. J Pers Soc Psychol. 1986 Dec;51(6):1173-82. doi: 10.1037//0022-3514.51.6.1173.
Barbara B Biesecker
National Human Genome Research Institute (NHGRI)
324 participants (actual enrollment reported by the registry).
First Submitted
July 3, 2007
First Posted
July 4, 2007
Study Start
June 27, 2007
Date type not reportedThis date has not been verified as actual or estimated.
CBT for Comorbid Anxiety Disorders in Children With Autism, Asperger Syndrome, or PDD-NOS
Contact the study team to confirm eligibility.
Aldwin CM, Revenson TA. Does coping help? A reexamination of the relation between coping and mental health. J Pers Soc Psychol. 1987 Aug;53(2):337-48. doi: 10.1037//0022-3514.53.2.337.
Study Completion
December 7, 2015
Date type not reportedThis date has not been verified as actual or estimated.
Last Updated
November 15, 2019
Record last verified: 2015-12-07
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Source: ClinicalTrials.gov.
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