Key Insights

Highlights

Success Rate

90% trial completion (above average)

Clinical Risk Assessment

Based on trial outcomes

Moderate Risk

Score: 50/100

Termination Rate

4.9%

2 terminated out of 41 trials

Success Rate

90.5%

+4.0% vs benchmark

Late-Stage Pipeline

10%

4 trials in Phase 3/4

Results Transparency

37%

7 of 19 completed with results

Key Signals

7 with results90% success

Data Visualizations

Phase Distribution

25Total
Not Applicable (7)
P 1 (4)
P 2 (10)
P 3 (3)
P 4 (1)

Trial Status

Completed19
Recruiting11
Unknown3
Enrolling By Invitation2
Terminated2
Withdrawn2

Trial Success Rate

90.5%

Benchmark: 86.5%

Based on 19 completed trials

Clinical Trials (41)

Showing 20 of 20 trials
NCT00001975RecruitingPrimary

Study of Skin Tumors in Tuberous Sclerosis

NCT00001532Recruiting

Role of Genetic Factors in the Development of Lung Disease

NCT03050268Recruiting

Familial Investigations of Childhood Cancer Predisposition

NCT00001465Recruiting

Study of the Disease Process of Lymphangioleiomyomatosis

NCT06311474Not ApplicableCompletedPrimary

Remote Assessment and Intervention for Behavior Problems in Kids With TSC

NCT06139172Not ApplicableRecruiting

Web Intervention for Parents of Youth With Genetic Syndromes (WINGS)

NCT03363763Phase 2Terminated

Topical Sirolimus Ointment for Cutaneous Angiofibromas in Subjects With Tuberous Sclerosis Complex

NCT05161494Active Not RecruitingPrimary

Gait in Rare Diseases

NCT03836300Not ApplicableEnrolling By Invitation

Parent and Infant Inter(X)Action Intervention (PIXI)

NCT06081348Phase 2Recruiting

Sertraline vs. Placebo in the Treatment of Anxiety in Children and AdoLescents With NeurodevelopMental Disorders

NCT05676099RecruitingPrimary

TSC Biosample Repository and Natural History Database

NCT06330350Recruiting

Qualitative Study in Patients With Genodermatoses and Healthcare Professionals on Reproductive Counselling

NCT06330324Enrolling By Invitation

Reproductive Options in Inherited Skin Diseases

NCT05199402CompletedPrimary

Clinical Trial Data Set Re-use With Statistical Methodologies Tailored for Clinical Trials in Rare Diseases

NCT05286632Not ApplicableCompleted

KidneYou - Innovative Digital Therapy

NCT02461459Active Not RecruitingPrimary

Autism Spectrum Disorder (ASD) and Intellectual Disability (ID) Determinants in Tuberous Sclerosis Complex (TSC)

NCT06523582Recruiting

Genetic Bases of Neuroendocrine Neoplasms in Mexican Patients

NCT04344626Not ApplicableWithdrawn

Use of a Tonometer to Identify Epileptogenic Lesions During Pediatric Epilepsy Surgery

NCT06065852Recruiting

National Registry of Rare Kidney Diseases

NCT03826628Phase 2Completed

Dose-Ranging Efficacy and Safety Study of Topical Rapamycin Cream for Facial Angiofibroma Associated With Tuberous Sclerosis Complex

Scroll to load more

Research Network

Activity Timeline