Key Insights

Highlights

Success Rate

83% trial completion

Clinical Risk Assessment

Based on trial outcomes

High Risk

Score: 62/100

Termination Rate

4.3%

4 terminated out of 94 trials

Success Rate

82.6%

-3.9% vs benchmark

Late-Stage Pipeline

2%

2 trials in Phase 3/4

Results Transparency

21%

4 of 19 completed with results

Key Signals

4 with results83% success

Data Visualizations

Phase Distribution

32Total
Not Applicable (23)
Early P 1 (1)
P 1 (3)
P 2 (3)
P 3 (1)
P 4 (1)

Trial Status

Recruiting35
Completed19
Unknown18
Not Yet Recruiting6
Enrolling By Invitation5
Active Not Recruiting5

Trial Success Rate

82.6%

Benchmark: 86.5%

Based on 19 completed trials

Clinical Trials (94)

Showing 20 of 20 trials
NCT03854318Recruiting

Longitudinal Studies of Patient With FPDMM

NCT06595940Recruiting

Genetic Analysis of Uncommon Disease Presentations in Non-US Populations

NCT07650799Not ApplicableNot Yet Recruiting

AI-assisted Rare Disease Diagnosis

NCT06860672Early Phase 1Terminated

Clinical Trial of the Dual Vector Base Editor for the Treatment of the CHD3-R1025W Mutation

NCT07247292TerminatedPrimary

Epidemiological Study of Treatment Approaches on AQP4-IgG Positive NMOSD in Russia

NCT07714161Not Yet Recruiting

The Mayo Clinic Rare and Undiagnosed Disease Hackathon

NCT07247279RecruitingPrimary

Epidemiological Study of Treatment Approaches in AChR-Antibody Positive Generalized Myasthenia Gravis in Russia

NCT07063719Not ApplicableRecruitingPrimary

Identification of Cellular Biomarkers of Rare Eye Diseases in Adults

NCT05748314Active Not RecruitingPrimary

Marfan Syndrome and Quality of Life of Pediatric Patients

NCT05499091Not ApplicableRecruitingPrimary

Functional Study to Indentify Genetic Etiology of Rare Diseases - ORIGIN

NCT06721871Phase 2Active Not Recruiting

Ascending Doses of Crofelemer Powder for Oral Solution in Pediatric Microvillus Inclusion Disease (MVID)

NCT07625436Not ApplicableNot Yet Recruiting

Artificial Intelligence for Rare Disease Diagnosis

NCT06399952RecruitingPrimary

Baker Gordon Syndrome Natural History Study

NCT04586075RecruitingPrimary

UW Undiagnosed Genetic Diseases Program

NCT06786754Enrolling By InvitationPrimary

Fibroblasts and Thoracic Aortic Aneurysms: in Vitro Characterization in With Marfan Syndrome and Genetic Aortic Diseases

NCT04429750Not ApplicableRecruitingPrimary

Intact Cord Resuscitation in CDH

NCT04731857RecruitingPrimary

Diagnostic Value of Exome/ Genome Sequencing, Conventional Methods in Rare Diseases and Familial Tumor Syndromes

NCT07558213Active Not RecruitingPrimary

A Multi-Dimensional Model of cAre and transItion for Patients With cOmplex RAre Diseases

NCT07527624RecruitingPrimary

Evaluation of Socio-professional Inclusion for Young Adults Aged 15-25 Living With a Rare Genetic Disability

NCT06466109Not ApplicableCompletedPrimary

Using Social Robots in Children With Rare Diseases and Their Parents: A Feasibility Study

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