Multicentre Retrospective Cohort Study of Palliative Care Pathways in Patients Who Died From Sarcoma

NCT07532668 | Completed

• 1 other identifier: ET25-182 (SARCOPALL)
• Study Type: observational
• Target: 207
• Locations: 1 country
• Sites: 1

Brief Summary

The goal of this observational study is to describe palliative pathways in adult patients who died from their sarcoma. The main question it aims to answer is: How patients who died from sarcoma are followed by palliative team.

Conditions

Sarcoma

Keywords

sarcoma; palliative care; aggressivness of care; cancer; end of life

Outcome Measures

Primary Outcomes (1)

• Palliative pathways of patients who died from sarcoma

  Palliative pathways will be described using the proportion of patients with each of the following component : * hospitalisation in a palliative care unit, * consultation with palliative care doctor, * mobile palliative care team advice We collect data on the first and last time of each kind of palliative follow up, we collect the number of day between the meeting and death For exemple: palliative care unit: first meeting 200 days before death and last meeting 80 days before death

  From date of inclusion until the date of death from any cause, assessed up to 42 months

Secondary Outcomes (7)

• Treatment with chemotherapy in the last 14 days of life

  From date of inclusion until the date of death from any cause, assessed up to 42 months

• More than 1 visit in an emergency unit in the last 30 days of life

  From date of inclusion until the date of death from any cause, assessed up to 42 months

• Hospitalization in a resuscitation unit in the last 30 days of life

  From date of inclusion until the date of death from any cause, assessed up to 42 months

• More than 1 hospitalization in the last 30 days of life

  From date of inclusion until the date of death from any cause, assessed up to 42 months

• Less than 3 days in palliative care unit

  From date of inclusion until the date of death from any cause, assessed up to 42 months

Study Arms (2)

adult patients who died from sarcoma with >1 agressivness near the end of life criteria

adult patients who died from sarcoma with 0-1 agressivness near the end of life criteria

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

All patients with sarcoma follow up in Centre Léon Bérard, or Institut Gustave Roussy, or Institut Curie who died in 2024

You may qualify if:

• Oncology follow up in Centre Léon Bérard, or Institut Gustave Roussy, or Institut Curie
• sarcoma histology confirmed
• \>18 years at diagnosis
• death between 01/01/2024 ans 31/12/2024
• death related to sarcoma

You may not qualify if:

• \>1 year between last follow up in Centre Léon Bérard, or Institut Gustave Roussy, or Institut Curie and death
• patient opposed to the collect of data

Sponsors & Collaborators

• Centre Leon Berard: lead
• Institut Curie: collaborator
• Gustave Roussy, Cancer Campus, Grand Paris: collaborator

Study Sites (1)

Centre Leon Berard

Lyon, France

Location

MeSH Terms

Conditions

Sarcoma; Neoplasms; Death

Condition Hierarchy (Ancestors)

Neoplasms, Connective and Soft Tissue; Neoplasms by Histologic Type; Pathologic Processes; Pathological Conditions, Signs and Symptoms

Study Design

• Study Type: observational
• Observational Model: COHORT
• Time Perspective: RETROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: March 25, 2026
• First Posted: April 16, 2026
• Study Start: January 1, 2024
• Primary Completion: December 31, 2024
• Study Completion: December 31, 2024
• Last Updated: April 16, 2026

Record last verified: 2026-04

Data Sharing

• IPD Sharing: Will not share

Locations

FR (1)