Turkish Version of the Adapted Social Role Participation Questionnaire

NCT06948968 | Completed

• 1 other identifier: 6/56
• Study Type: observational
• Target: 129
• Locations: 1 country
• Sites: 1

Brief Summary

Participation, as defined by the International Classification of Functioning, Disability, and Health (ICF), refers to "engagement in a life situation" and is a key component of functional health beyond physical impairments or activity limitations. Social role participation encompasses various aspects of life, including work, family commitments, social interactions, and leisure activities. Ankylosing Spondylitis (AS), a chronic inflammatory disease affecting the axial skeleton, significantly impacts patients' ability to maintain social roles due to pain, stiffness, and reduced mobility. Existing studies highlight limitations in employment, relationships, education, and leisure activities among AS patients. While various scales assess participation, the Social Role Participation Questionnaire (SRPQ) uniquely emphasizes subjective aspects such as role importance and satisfaction with performance. Although validated versions of the SRPQ exist in English, Dutch, and Chinese populations, no culturally adapted tool is available for Turkish-speaking AS patients. This study aims to translate the SRPQ into Turkish and evaluate its validity and reliability as a culturally appropriate instrument for assessing social role participation.

Conditions

Ankylosing Spondylitis; Participation, Patient

Keywords

Ankylosing Spondylitis; Participation; Social Role Participation; SRPQ; Turkish Adaptation

Outcome Measures

Primary Outcomes (2)

• Reliability of the Turkish Version of the Adapted Social Role Participation Questionnaire (SRPQ) in Ankylosing Spondylitis

  To assess reliability, the Social Role Participation Questionnaire (SRPQ) was completed twice by the same participants in a quiet room at two-week intervals. Internal consistency was evaluated using Cronbach's alpha (α ≥ 0.70, acceptable), and test-retest reliability was assessed using the Intraclass Correlation Coefficient (ICC ≥ 0.85, excellent), based on a two-way mixed-effects model with absolute agreement. The SRPQ includes three dimensions: Role Importance (1-5), Satisfaction with Performance (1-5), and Physical Difficulty (1-4). Higher scores on Role Importance and Satisfaction indicate better perceived participation, while higher scores on Physical Difficulty reflect greater difficulty in performing roles.

  2018-2022

• Validity of the Turkish Version of the Adapted Social Role Participation Questionnaire (SRPQ) in Ankylosing Spondylitis

  Construct validity was evaluated by correlating SRPQ scores with three validated instruments: the Ankylosing Spondylitis Quality of Life Scale (ASQoL), Short Form-36 Health Survey (SF-36), and Work Productivity and Activity Impairment Questionnaire (WPAI). ASQoL (0-18) assesses disease-specific quality of life, with higher scores reflecting greater impairment. SF-36 covers eight health domains (0-100), with higher scores indicating better health. Participation was captured in the social functioning, role-physical, and role-emotional domains. The WPAI (0-100%) measures work productivity and activity impairment over the prior week, with higher percentages indicating greater disability. Spearman correlation coefficients were used and interpreted as poor (\<0.20), fair (0.21-0.40), moderate (0.41-0.60), very good (0.61-0.80), or excellent (\>0.81). The scoring directionality of each scale supports the interpretation of SRPQ's convergent and discriminant validity.

  2018-2022

Interventions

Social Role Participation Questionnaire OTHER

Validity and Reliability of the Turkish Version of the Adapted Social Role Participation Questionnaire in Ankylosing Spondylitis

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

Primary care clinic

You may qualify if:

• Clinical diagnosis of AS according to the modified New York criteria
• Being over 18 years old
• To comprehend Turkish and communicate fluently in the Turkish language

You may not qualify if:

• Having severe psychiatric conditions
• Concomitant severe medical conditions

Sponsors & Collaborators

• Kocaeli University: lead

Study Sites (1)

Kocaeli University

Kocaeli, Turkey (Türkiye)

Location

Related Publications (8)

• Jimenez Bunuales MT, Gonzalez Diego P, Martin Moreno JM. [International classification of functioning, disability and health (ICF) 2001]. Rev Esp Salud Publica. 2002 Jul-Aug;76(4):271-9. doi: 10.1590/s1135-57272002000400002. Spanish.

  PMID: 12216167 BACKGROUND

• Davis AM, Palaganas MP, Badley EM, Gladman DD, Inman RD, Gignac MA. Measuring participation in people with spondyloarthritis using the social role participation questionnaire. Ann Rheum Dis. 2011 Oct;70(10):1765-9. doi: 10.1136/ard.2010.149211. Epub 2011 Jul 25.

  PMID: 21791450 BACKGROUND

• Sieper J, Braun J, Rudwaleit M, Boonen A, Zink A. Ankylosing spondylitis: an overview. Ann Rheum Dis. 2002 Dec;61 Suppl 3(Suppl 3):iii8-18. doi: 10.1136/ard.61.suppl_3.iii8.

  PMID: 12381506 BACKGROUND

• van Echteld I, Cieza A, Boonen A, Stucki G, Zochling J, Braun J, van der Heijde D. Identification of the most common problems by patients with ankylosing spondylitis using the international classification of functioning, disability and health. J Rheumatol. 2006 Dec;33(12):2475-83. Epub 2006 Oct 15.

  PMID: 17013999 BACKGROUND

• Gignac MA, Backman CL, Davis AM, Lacaille D, Mattison CA, Montie P, Badley EM. Understanding social role participation: what matters to people with arthritis? J Rheumatol. 2008 Aug;35(8):1655-63. Epub 2008 Jun 15.

  PMID: 18597401 BACKGROUND

• Dijkers MP. Issues in the conceptualization and measurement of participation: an overview. Arch Phys Med Rehabil. 2010 Sep;91(9 Suppl):S5-16. doi: 10.1016/j.apmr.2009.10.036.

  PMID: 20801280 BACKGROUND

• van Genderen S, Plasqui G, Lacaille D, Arends S, van Gaalen F, van der Heijde D, Heuft L, Keszei A, Luime J, Spoorenberg A, Landewe R, Gignac M, Boonen A. Social Role Participation Questionnaire for patients with ankylosing spondylitis: translation into Dutch, reliability and construct validity. RMD Open. 2016 Feb 1;2(1):e000177. doi: 10.1136/rmdopen-2015-000177. eCollection 2016.

  PMID: 26870393 BACKGROUND

• Zhang G, Li J, Liu D, Wang T, Wang Y, Xu W. Translation and validation of the Chinese Social Role Participation Questionnaire in patients with ankylosing spondylitis. Clin Rheumatol. 2018 Mar;37(3):655-660. doi: 10.1007/s10067-017-3915-z. Epub 2017 Nov 18.

  PMID: 29151172 BACKGROUND

Related Links

• International classification of functioning, disability and health (ICF) 2001
• Measuring participation in people with spondyloarthritis using the social role participation questionnaire
• Ankylosing spondylitis: an overview
• Identification of the most common problems by patients with ankylosing spondylitis using the international classification of functioning, disability and health
• Understanding social role participation: what matters to people with arthritis?
• Issues in the conceptualization and measurement of participation: an overview
• Social Role Participation Questionnaire for patients with ankylosing spondylitis: translation into Dutch, reliability and construct validity
• Translation and validation of the Chinese Social Role Participation Questionnaire in patients with ankylosing spondylitis

MeSH Terms

Conditions

Spondylitis, Ankylosing; Patient Participation

Condition Hierarchy (Ancestors)

Axial Spondyloarthritis; Spondylarthropathies; Spondylarthritis; Spondylitis; Spinal Diseases; Bone Diseases; Musculoskeletal Diseases; Ankylosis; Joint Diseases; Arthritis; Patient Acceptance of Health Care; Treatment Adherence and Compliance; Health Behavior; Behavior

Study Design

• Study Type: observational
• Observational Model: COHORT
• Time Perspective: PROSPECTIVE
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Assistant Prof Dr

Study Record Dates

• First Submitted: March 12, 2025
• First Posted: April 29, 2025
• Study Start: December 24, 2018
• Primary Completion: November 29, 2022
• Study Completion: March 28, 2023
• Last Updated: May 25, 2025

Record last verified: 2025-05

Data Sharing

• IPD Sharing: Will not share

Locations

TU (1)