Decision-making Preferences and Its Related Factors on Parents With Children Having Cancer

NCT06618066 | Completed

• 1 other identifier: KMUHIRB-E(II)-20230162
• Study Type: observational
• Target: 130
• Locations: 1 country
• Sites: 1

Brief Summary

A cross-sectional correlational study was conducted in the pediatric hematology-oncology ward and outpatient clinic of a medical center in southern Taiwan. Participants included fathers or mothers of children diagnosed with cancer aged between 20 and 65 years. Structured questionnaires were used, including FACES IV, JCS, and CPS-P. This study aims to explore the current status of family cohesion, coping behaviors, and decision making preferences among parents of children with cancer, and to identify factors influencing decision making preferences.

Conditions

Pediatric Cancer

Keywords

Decision making preferences; Parents; Coping behaviors; Family cohesion

Outcome Measures

Primary Outcomes (3)

• Exploring the current state of decision-making preferences among parents of children with cancer using the Control Preferences Scale for Pediatrics (CPS-P)

  The CPS-P is a method for assessing individual preferences in medical decision-making roles, consisting of five options that represent five different roles.(A) I prefer to make the final decision about which treatment my child will receive, (B) I prefer to make the final selection of my child's treatment after seriously considering my doctor's opinion, (C) I prefer that my child's doctor and I share responsibility for deciding which treatment is best for my child, (D) I prefer that my doctor makes the final decision about which treatment will be used, but seriously considers my opinion, (E) I prefer to leave all decisions regarding my child's treatment to my doctor. The five responses are classified into three categories representing active(A and B), collaborative (C) and passive (D and E) decision-making preference.

  Single point in time: At enrollment

• Exploring the current state of family cohesion among parents of children with cancer using the Family Adaptability and Cohesion Evaluation Scale (FACES)

  The evaluation of family functioning involves: (1) Balanced Scales: Cohesion and Flexibility, (2) Unbalanced Scales: Disengaged, Enmeshed, Rigid, and Chaotic, (3) Family Communication, and (4) Family Satisfaction. The instrument consists of eight subscales with a total of 62 items, rated on a five-point Likert scale. The Family Cohesion and Flexibility scales include 42 items (0-42), divided into six sections with scores ranging from 7 to 35 per section. The Family Communication scale, which assesses positive communication and openness, contains 10 items (43-52) with scores ranging from 10 to 50. The Family Satisfaction scale, measuring satisfaction with cohesion, flexibility, and communication, also has 10 items (53-62), scoring from 10 to 50. Higher scores on Cohesion and Flexibility suggest a healthier family system; higher scores on Disengaged, Enmeshed, Rigid, and Chaotic indicate dysfunction; higher scores on Communication and Satisfaction denote more positive perceptions.

  Single point in time: At enrollment

• Exploring the current coping behaviors of parents of children with cancer using the Jalowiec Coping Scale (JCS)

  The Jalowiec Coping Scale (JCS) assesses eight types of coping strategies, which are categorized into emotion-oriented and problem-oriented approaches. The emotion-oriented strategies include: evasive strategies (13 items), optimistic strategies (9 items), fatalistic strategies (4 items), emotive strategies (5 items), and palliative strategies (7 items). The problem-oriented strategies include: confrontive strategies (10 items), supportant strategies (5 items), and self-reliant strategies (7 items). It utilizes a four-point Likert scale, where "0 = never used," "1 = seldom used," "2 = sometimes used," and "3 = often used." Higher scores indicate a higher frequency of coping strategy use.

  Single point in time: At enrollment

Eligibility Criteria

• Age: 20 Years - 65 Years
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

The study was conducted in the pediatric hematology-oncology ward and outpatient clinic of a medical center in southern Taiwan.

You may qualify if:

• Parents aged between 20 and 65 years whose child has been diagnosed with pediatric cancer by a physician.
• Individuals who understand Mandarin or Taiwanese Hokkien and are able to complete the questionnaire.
• Individuals who consent to participate in the study after being informed of the research purpose.

You may not qualify if:

• (1)Individuals diagnosed with a mental illness by a physician.

Sponsors & Collaborators

• Kaohsiung Medical University Chung-Ho Memorial Hospital: lead

Study Sites (1)

Kaohsiung Medical University

Kaohsiung City, Taiwan

Location

Related Publications (3)

• Olson D. FACES IV and the Circumplex Model: validation study. J Marital Fam Ther. 2011 Jan;37(1):64-80. doi: 10.1111/j.1752-0606.2009.00175.x.

  PMID: 21198689 BACKGROUND

• Degner LF, Sloan JA, Venkatesh P. The Control Preferences Scale. Can J Nurs Res. 1997 Fall;29(3):21-43.

  PMID: 9505581 BACKGROUND

• Jalowiec A, Murphy SP, Powers MJ. Psychometric assessment of the Jalowiec Coping Scale. Nurs Res. 1984 May-Jun;33(3):157-61.

  PMID: 6563533 BACKGROUND

MeSH Terms

Conditions

Neoplasms

Study Officials

• Li-Min Wu, PhD

  Kaohsiung Medical University

  PRINCIPAL INVESTIGATOR

Study Design

• Study Type: observational
• Observational Model: FAMILY BASED
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: August 18, 2024
• First Posted: October 1, 2024
• Study Start: August 18, 2023
• Primary Completion: January 17, 2024
• Study Completion: January 17, 2024
• Last Updated: October 1, 2024

Record last verified: 2024-08

Data Sharing

• IPD Sharing: Will not share

Locations

TW (1)