NCT06466304

Brief Summary

respiratory complications are very prevalent in children with beta thalasemia major (BTM), so choosing inspiratory muscle trianing to decrease of prevent it and to improve pulmoanry funntions is important

Trial Health

57
Monitor

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
40

participants targeted

Target at P25-P50 for not_applicable

Timeline
Completed

Started Jun 2024

Shorter than P25 for not_applicable

Geographic Reach
1 country

1 active site

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

June 6, 2024

Completed
8 days until next milestone

First Submitted

Initial submission to the registry

June 14, 2024

Completed
6 days until next milestone

First Posted

Study publicly available on registry

June 20, 2024

Completed
3 months until next milestone

Primary Completion

Last participant's last visit for primary outcome

October 1, 2024

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

October 1, 2024

Completed
Last Updated

June 20, 2024

Status Verified

June 1, 2024

Enrollment Period

4 months

First QC Date

June 14, 2024

Last Update Submit

June 14, 2024

Conditions

Outcome Measures

Primary Outcomes (1)

  • forced expiratory volume t the first second of expiration

    it will measure pulmonary function

    it will be assessed after 12 weeks

Secondary Outcomes (6)

  • forced vital capcity

    it will be assessed after 12 weeks

  • FEV1/FVC

    it will be assessed after 12 weeks

  • maximal inspiratory pressure

    it will be assessed after 12 weeks

  • six minute walk testing

    it will be assessed after 12 weeks

  • Pediatrics' Quality of Life Inventory (children proxy)

    it will be assessed after 12 weeks

  • +1 more secondary outcomes

Study Arms (2)

study group

EXPERIMENTAL

children patients with BTM accounted 20 children will receive two session per day of training by threshold inspiratory muscle trainer ( for six day per week for 12 weeks). the session will contain six sets of inspiratory muscle training and the one set will contain five respiratory cycles

Behavioral: inspiratory muscle training

control group

NO INTERVENTION

children patients with BTM accounted 20 children will receive no trianiing and will serve as control children group

Interventions

children patients with BTM accounted 20 children will receive two session per day of training by threshold inspiratory muscle trainer ( for six day per week for 12 weeks). the session will contain six sets of inspiratory muscle training and the one set will contain five respiratory cycles

study group

Eligibility Criteria

Age8 Years - 12 Years
Sexall(Gender-based eligibility)
Gender Eligibility Detailsself-representation of gender birth-certificate identity.
Healthy VolunteersNo
Age GroupsChild (0-17)

You may qualify if:

  • beta thalassemia major children
  • boys and girls

You may not qualify if:

  • respiratory diseases
  • cardiac diseases renal diseases liver diseases muscle and joint disease

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Ahram canadian university

Giza, Egypt

RECRUITING

MeSH Terms

Conditions

beta-Thalassemia

Condition Hierarchy (Ancestors)

ThalassemiaAnemia, Hemolytic, CongenitalAnemia, HemolyticAnemiaHematologic DiseasesHemic and Lymphatic DiseasesHemoglobinopathiesGenetic Diseases, InbornCongenital, Hereditary, and Neonatal Diseases and Abnormalities

Study Officials

  • hagar el-hadidy, lecturer

    Faculty of Physical Therapy, Ahram Canadian University (ACU), Giza, Egypt

    PRINCIPAL INVESTIGATOR

Central Study Contacts

hagar el-hadidy, lecturer

CONTACT

Shimaa Boundok, lectuerer

CONTACT

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
SINGLE
Who Masked
OUTCOMES ASSESSOR
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Physical Therapy for Internal Medicine and Geriatrics

Study Record Dates

First Submitted

June 14, 2024

First Posted

June 20, 2024

Study Start

June 6, 2024

Primary Completion

October 1, 2024

Study Completion

October 1, 2024

Last Updated

June 20, 2024

Record last verified: 2024-06

Locations