EULAR Impact of Rheumatic and Musculoskeletal Diseases Survey

NCT06461000 | Recruiting

• 1 other identifier: EPI001
• Study Type: observational
• Target: 1,000
• Locations: 1 country
• Sites: 1

Brief Summary

The EULAR Impact of RMDs Survey collects first-hand information about the impact of rheumatic and musculoskeletal diseases (RMDs) among patients across and beyond Europe. Through periodic questionnaires, patients will provide information about their healthcare situation, and how the disease affects their social and occupational lives. This data will be an important resource for researchers, healthcare professionals, and patients alike, providing valuable insights into the burden of disease and helping improve the overall care for people living with these conditions.

Conditions

Rheumatologic Disease; Musculoskeletal Diseases

Outcome Measures

Primary Outcomes (3)

• General population description - country

  country of residence

  every 6 months for up to 5 years

• General population description - diagnosis

  diagnosis (name of the disease)

  every 6 months for up to 5 years

• General population description

  year of birth

  every 6 months for up to 5 years

Secondary Outcomes (14)

• Diagnosis history - physician treating the RMD

  every 6 months for up to 5 years

• Diagnosis history - outpatient care history

  every 6 months for up to 5 years

• Diagnosis history - timeline

  every 6 months for up to 5 years

• Diagnosis history - Inpatient care

  every 6 months for up to 5 years

• Non-pharmacological and pharmacological treatments.

  every 6 months for up to 5 years

Study Arms (1)

Survey

Usual survey

Other: Survey

Interventions

Survey OTHER

online survey for participants

Survey

Eligibility Criteria

• Age: 18 Years+
• Sex: all
• Healthy Volunteers: No
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

\- adults with at least 1 RMD

You may qualify if:

• year-old at time of baseline survey
• Living in a EULAR country at time of baseline survey
• Diagnosed with at least one RMD
• Valid personal e-mail address
• Being able to use an internet website

You may not qualify if:

• none

Sponsors & Collaborators

• European Alliance of Associations in Rheumatology: lead

Study Sites (1)

EULAR

Kilchberg, Canton of Zurich, 8802, Switzerland

RECRUITING

Related Links

• EULAR Impact of RMDs Survey

MeSH Terms

Conditions

Collagen Diseases; Musculoskeletal Diseases

Interventions

Surveys and Questionnaires

Condition Hierarchy (Ancestors)

Connective Tissue Diseases; Skin and Connective Tissue Diseases

Intervention Hierarchy (Ancestors)

Data Collection; Epidemiologic Methods; Investigative Techniques; Health Care Evaluation Mechanisms; Quality of Health Care; Health Care Quality, Access, and Evaluation; Public Health; Environment and Public Health

Central Study Contacts

Coralie Signorell, PhD

CONTACT

0445751564; coralie.signorell@eular.org

Carina Haupt

CONTACT

+41 44 716 30 46; carina.haupt@eular.org

Study Design

• Study Type: observational
• Observational Model: COHORT
• Time Perspective: PROSPECTIVE
• Target Duration: 5 Years
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: June 4, 2024
• First Posted: June 14, 2024
• Study Start: June 12, 2025
• Primary Completion (Estimated): June 12, 2028
• Study Completion (Estimated): June 12, 2029
• Last Updated: November 21, 2025

Record last verified: 2025-11

Data Sharing

• IPD Sharing: Will not share

Locations

CH (1)