NCT06393712

Brief Summary

The purpose of the study is to evaluate the effect of ALN-APP on measures of CAA disease progression and to characterize the safety, tolerability, and pharmacodynamics (PD) of ALN-APP in adult patients with sporadic CAA (sCAA) and Dutch-type CAA (D-CAA). The study will be conducted over 2 periods: a 24-month double-blind treatment period and an optional 18-month open-label extension (OLE) period. The estimated duration of study participation, inclusive of screening, treatment, and additional safety follow-up, is up to 50 months.

Trial Health

83
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
200

participants targeted

Target at P75+ for phase_2

Timeline
44mo left

Started May 2024

Longer than P75 for phase_2

Geographic Reach
6 countries

57 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress35%
May 2024Dec 2029

First Submitted

Initial submission to the registry

April 19, 2024

Completed
12 days until next milestone

First Posted

Study publicly available on registry

May 1, 2024

Completed
16 days until next milestone

Study Start

First participant enrolled

May 17, 2024

Completed
3.2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

August 9, 2027

Expected
2.4 years until next milestone

Study Completion

Last participant's last visit for all outcomes

December 14, 2029

Last Updated

April 24, 2026

Status Verified

April 1, 2026

Enrollment Period

3.2 years

First QC Date

April 19, 2024

Last Update Submit

April 23, 2026

Conditions

Keywords

CAA

Outcome Measures

Primary Outcomes (1)

  • Double-blind Treatment Period: Annualized Rate of New Lobar Cerebral Microbleeds (CMBs) Assessed on Magnetic Resonance Imaging (MRI) of Brain in Patients with Sporadic Cerebral Amyloid Angiopathy (sCAA)

    Up to 24 months

Secondary Outcomes (7)

  • Double-blind Treatment Period: Global Rank Based on Severity, Count, Symptom Burden, and Timing of New Clinical Hemorrhagic Events and Hemorrhagic Lesions Assessed on MRI of Brain

    Up to 24 months

  • Double-blind Treatment Period: Change from Baseline Over Time in Cerebrovascular Vasoreactivity Measured by Blood Oxygenation Level Dependent (BOLD) Parameters with Visual-evoked Functional MRI

    Up to 24 months

  • Double-blind Treatment Period: Incidence of New Cerebral Hemorrhagic Lesions and White Matter Hyperintensities Assessed on MRI of Brain

    Up to 24 months

  • Double-blind Treatment Period: Change from Baseline Over Time in the Total Cerebral Amyloid Angiopathy (CAA) Small Vessel Disease Score Assessed on MRI of Brain

    Up to 24 months

  • Double-blind Treatment Period: Change from Baseline in Soluble Amyloid Precursor Protein Alpha (sAPPα) Concentration in Cerebrospinal Fluid (CSF)

    Up to 24 months

  • +2 more secondary outcomes

Study Arms (2)

ALN-APP

EXPERIMENTAL

Participants will be administered multiple doses of ALN-APP during the double-blind treatment period and optional open-label extension period.

Drug: ALN-APP

Placebo/ALN-APP

PLACEBO COMPARATOR

Participants will be administered multiple doses of placebo during the double-blind treatment period. Participants who continue into the optional open-label extension period will be administered multiple doses of ALN-APP.

Drug: PlaceboDrug: ALN-APP

Interventions

Placebo will be administered intrathecally

Placebo/ALN-APP

ALN-APP will be administered intrathecally

Also known as: mivelsiran
ALN-APPPlacebo/ALN-APP

Eligibility Criteria

Age30 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Is 50 years or older
  • Has probable CAA per the Boston Criteria Version 2.0
  • Is 30 years or older
  • Has known E693Q amyloid precursor protein (APP) gene mutation for Dutch-type CAA

You may not qualify if:

  • Moderate or severe stage Alzheimer's disease (AD) or significant cognitive impairment (CI)
  • Has a history of previous clinical intracerebral hemorrhage (ICH) with onset less than 90 days prior to anticipated randomization in the study
  • Has alanine aminotransferase (ALT) or aspartate aminotransferase (AST) \>3×upper limit of normal (ULN) at Screening
  • Has estimated glomerular filtration rate (eGFR) \<30 mL/min/1.73m\^2 at Screening
  • Has recently received an investigational agent
  • Has had treatment with amyloid-targeting antibody

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (57)

Clinical Trial Site

Los Angeles, California, 90095, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Orange, California, 92868, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Palo Alto, California, 94304, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Sacramento, California, 95816, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

San Francisco, California, 94114, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Aurora, Colorado, 80045, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

New Haven, Connecticut, 06510, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Gainesville, Florida, 32608, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Jacksonville, Florida, 32224, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Maitland, Florida, 32751, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Naples, Florida, 34105, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Chicago, Illinois, 60612, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Lexington, Kentucky, 40504, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

New Orleans, Louisiana, 70121, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Boston, Massachusetts, 02114, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Plymouth, Massachusetts, 02360, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Rochester, Minnesota, 55905, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

St Louis, Missouri, 63110, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Hackensack, New Jersey, 07601, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

New York, New York, 10016, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

New York, New York, 10029, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

New York, New York, 10032, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

New York, New York, 10065, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Durham, North Carolina, 27705, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Canton, Ohio, 44718, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Cleveland, Ohio, 44195, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Abington, Pennsylvania, 19001, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Philadelphia, Pennsylvania, 19104, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Pittsburgh, Pennsylvania, 15213, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Dallas, Texas, 75243, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Dallas, Texas, 75390, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Houston, Texas, 77030, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

San Antonio, Texas, 78229, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Seattle, Washington, 98104, United States

ACTIVE NOT RECRUITING

Clinical Trial Site

Adelaide, 5000, Australia

RECRUITING

Clinical Trial Site

Brisbane, 4029, Australia

RECRUITING

Clinical Trial Site

Heidelberg, 3084, Australia

RECRUITING

Clinical Trial Site

Nedlands, 6009, Australia

RECRUITING

Clinical Trial Site

Parkville, 3050, Australia

RECRUITING

Clinical Trial Site

Calgary, T2N 4Z6, Canada

RECRUITING

Clinical Trial Site

Hamilton, L8L 2X2, Canada

RECRUITING

Clinical Trial Site

Kelowna, V1Y 1Z9, Canada

RECRUITING

Clinical Trial Site

Moncton, E1C 2Z3, Canada

RECRUITING

Clinical Trial Site

Montreal, H3A 2B4, Canada

RECRUITING

Clinical Trial Site

Montreal, H3G 1H9, Canada

RECRUITING

Clinical Trial Site

Ottawa, K1Z 1G3, Canada

RECRUITING

Clinical Trial Site

Toronto, M3B 2S7, Canada

RECRUITING

Clinical Trial Site

Victoria, V8R 1J8, Canada

RECRUITING

Clinical Trial Site

Amsterdam, 1081 GN, Netherlands

RECRUITING

Clinical Trial Site

Leiden, 2333ZA, Netherlands

RECRUITING

Clinical Trial Site

Nijmegen, 6525 GA, Netherlands

RECRUITING

Clinical Trial Site

Bern, 3010, Switzerland

RECRUITING

Clinical Trial Site

Geneva, 1205, Switzerland

RECRUITING

Clinical Trial Site

Sankt Gallen, 9007, Switzerland

TERMINATED

Clinical Trial Site

Glasgow, G51 4TF, United Kingdom

RECRUITING

Clinical Trial Site

London, SE5 8AF, United Kingdom

ACTIVE NOT RECRUITING

Clinical Trial Site

London, WC1N 3BG, United Kingdom

ACTIVE NOT RECRUITING

MeSH Terms

Conditions

Cerebral Amyloid Angiopathy

Condition Hierarchy (Ancestors)

Cerebral Arterial DiseasesIntracranial Arterial DiseasesCerebrovascular DisordersBrain DiseasesCentral Nervous System DiseasesNervous System DiseasesVascular DiseasesCardiovascular DiseasesAmyloidosisProteostasis DeficienciesMetabolic DiseasesNutritional and Metabolic Diseases

Study Officials

  • Medical Director

    Alnylam Pharmaceuticals

    STUDY DIRECTOR

Central Study Contacts

Alnylam Clinical Trial Information Line

CONTACT

Alnylam Clinical Trial Information Line

CONTACT

Study Design

Study Type
interventional
Phase
phase 2
Allocation
RANDOMIZED
Masking
QUADRUPLE
Who Masked
PARTICIPANT, CARE PROVIDER, INVESTIGATOR, OUTCOMES ASSESSOR
Purpose
TREATMENT
Intervention Model
PARALLEL
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

April 19, 2024

First Posted

May 1, 2024

Study Start

May 17, 2024

Primary Completion (Estimated)

August 9, 2027

Study Completion (Estimated)

December 14, 2029

Last Updated

April 24, 2026

Record last verified: 2026-04

Data Sharing

IPD Sharing
Will share

Access to Anonymized individual participant data that support these results is made available 12 months after study completion and not less than 12 months after the product and indication have been approved in the US and/or the EU. Access to data may be declined where there is likelihood a patient could be identified or other feasibility issue, where there is a potential conflict of interest, a planned business activities or an actual or potential competitive risk. Data will be provided contingent upon the approval of a research proposal and the execution of a data sharing agreement. Timeframes for data access may vary and can take up to 6 months or more. Requests for access to data can be submitted via the website www.vivli.org. Questions can also be directed to datasharing@alnylam.com.

Locations