NCT06324552

Brief Summary

NOTCH signaling in the skin exerts a pivotal role in the regulation of normal keratinocytes turnover by mediating the balance between proliferation, differentiation, apoptosis and autophagic flux progression. Two skin diseases are characterized by the presence of gene variants that cause an impairment in NOTCH signaling: hidradenitis suppurativa(HS) and Dowling-Degos disease(DDD). To date, both HS and DDD are orphan diseases still lacking of specific treatments. This project aims at improving the current knowledge on the pathogenesis of HS and DDD, by deepening the understandings on the role played by keratinocytes in these pathologies and also by determining why mutations found in the same pathway cause different diseases. This study aimed to obtain in vitro models, derived directly from patients (from hair follicles) and from keratinocytes (HaCaT) cell cultures, for the study of these skin pathologies and also for the testing of novel innovative therapies such as photobiomodulation therapy.

Trial Health

63
Monitor

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
50

participants targeted

Target at P25-P50 for all trials

Timeline
Completed

Started Oct 2020

Longer than P75 for all trials

Geographic Reach
6 countries

15 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

October 12, 2020

Completed
2.6 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

June 3, 2023

Completed
10 months until next milestone

First Submitted

Initial submission to the registry

March 15, 2024

Completed
7 days until next milestone

First Posted

Study publicly available on registry

March 22, 2024

Completed
5 months until next milestone

Study Completion

Last participant's last visit for all outcomes

August 31, 2024

Completed
Last Updated

June 14, 2024

Status Verified

June 1, 2024

Enrollment Period

2.6 years

First QC Date

March 15, 2024

Last Update Submit

June 13, 2024

Conditions

Keywords

Hidradenitis SuppurativaNOTCH signaling

Outcome Measures

Primary Outcomes (1)

  • Evaluation of the impact of candidate variants in hair follicles epithelial cell biology by generating Knock-Out (KO) keratinocyte cell lines (HaCaT)

    Through study completion, an average of 36 months

Secondary Outcomes (1)

  • Evaluation of the impact of photobiomodulation (PBM) therapy in hair follicles epithelial cells derived from patients and in HaCaT KO cells,

    Through study completion, an average of 36 months

Eligibility Criteria

Sexall
Healthy VolunteersYes
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Children and adults with clinical diagnosis of HS

You may qualify if:

  • diagnosis of HS

You may not qualify if:

  • no informed consent

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (15)

Medical University Innsbruck

Innsbruck, Austria

COMPLETED

Université Libre de Bruxelles

Brussels, Belgium

RECRUITING

Université Paris Est-Créteil / INSERM U955- Mondor Institute For Biomedical Research (IMRB)

Créteil, France

ACTIVE NOT RECRUITING

Centre National de la Recherche Scientifique

Strasbourg, France

ACTIVE NOT RECRUITING

Dessau Medical Cente

Brandenburg, Germany

NOT YET RECRUITING

Uniklinik Köln

Cologne, Germany

COMPLETED

Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinic

Milan, Italy

RECRUITING

Azienda ospedaliero-universitaria pisana

Pisa, Italy

RECRUITING

Istituto Dermopatico dell'Immacolata, IRCCS

Roma, Italy

RECRUITING

Passion people

Roma, Italy

ACTIVE NOT RECRUITING

Policlinico Universitario Fondazione A. Gemelli IRCCS

Roma, Italy

RECRUITING

Ospedale Maggiore di Trieste

Trieste, 34125, Italy

RECRUITING

Institute for Maternal and Child Health - IRCCS "Burlo Garofolo"

Trieste, 34137, Italy

RECRUITING

Ospedale San Bortolo

Vicenza, Italy

RECRUITING

Jozef Stefan Institute

Ljubljana, Slovenia

ACTIVE NOT RECRUITING

Biospecimen

Retention: SAMPLES WITH DNA

Blood samples

MeSH Terms

Conditions

Hidradenitis Suppurativa

Condition Hierarchy (Ancestors)

Skin Diseases, BacterialBacterial InfectionsBacterial Infections and MycosesInfectionsSkin Diseases, InfectiousSuppurationSkin DiseasesSkin and Connective Tissue DiseasesHidradenitisSweat Gland Diseases

Central Study Contacts

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

March 15, 2024

First Posted

March 22, 2024

Study Start

October 12, 2020

Primary Completion

June 3, 2023

Study Completion

August 31, 2024

Last Updated

June 14, 2024

Record last verified: 2024-06

Locations