NCT06252948

Brief Summary

A Study to Evaluate Gut Microbiome with POEMS Syndrome and Other Plasma Cell Disorders

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
240

participants targeted

Target at P75+ for all trials

Timeline
32mo left

Started Dec 2021

Longer than P75 for all trials

Geographic Reach
1 country

1 active site

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress62%
Dec 2021Dec 2028

Study Start

First participant enrolled

December 29, 2021

Completed
2.1 years until next milestone

First Submitted

Initial submission to the registry

February 2, 2024

Completed
10 days until next milestone

First Posted

Study publicly available on registry

February 12, 2024

Completed
4.8 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 1, 2028

Expected
28 days until next milestone

Study Completion

Last participant's last visit for all outcomes

December 29, 2028

Last Updated

February 23, 2026

Status Verified

February 1, 2026

Enrollment Period

6.9 years

First QC Date

February 2, 2024

Last Update Submit

February 19, 2026

Conditions

Outcome Measures

Primary Outcomes (1)

  • Gut Microbiome characteristics in patients with POEMS syndrome and other plasma cell disorders

    Stool samples will be collected by the patient using a stool self- collection kit provided to the participant by the study staff. Samples will be evaluated for characteristics of gut microbiome (α-diversity and β-diversity).

    Baseline

Study Arms (6)

MULTIPLE MYELOMA at diagnosis GROUP

Multiple myeloma (before starting chemotherapy, radiation or stem cell transplant

Other: Non-interventional study (observational)

Amyloid at diagnosis GROUP

AL amyloidosis (before starting chemotherapy or stem cell transplant)

Other: Non-interventional study (observational)

Poems at diagnosis GROUP

POEMS at diagnosis (before starting chemotherapy, radiation, or stem cell transplant

Other: Non-interventional study (observational)

Poems in Remission GROUP

POEMS in remission (no chemotherapy, radiation, or stem cell transplant for 2 years

Other: Non-interventional study (observational)

MGUS GROUP

MGUS -not treated newly diagnosed

Other: Non-interventional study (observational)

Health controls in same household GROUP

household member to be a healthy control (no chemotherapy or gastrointestinal illness to participate)

Other: Non-interventional study (observational)

Interventions

Participants undergo stool sample collection, complete surveys, and have their medical record reviewed on study.

Also known as: GMB
Amyloid at diagnosis GROUPHealth controls in same household GROUPMGUS GROUPMULTIPLE MYELOMA at diagnosis GROUPPoems at diagnosis GROUPPoems in Remission GROUP

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

POEMS Syndrome and Other Plasma Cell Disorders

You may qualify if:

  • Diagnosed with POEMS syndrome (newly diagnosed or in remission) or with newly diagnosed multiple myeloma (MM), monoclonal gammopathy of undetermined significance (MGUS), amyloid light chain (AL) amyloidosis or healthy controls from their households

You may not qualify if:

  • Age under 18 years
  • Pregnancy
  • Substance abuse
  • Antibiotics use or gastrointestinal endoscopy in the 3 months prior to the study participation
  • Chronic gastrointestinal disorder
  • Gastrointestinal surgeries in the past 2 years
  • Chemotherapy (including anti-plasma cell treatment and steroids) or radiation treatment for cancer within the last 2 years or active cancer (other than plasma cell disorder)

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Mayo Clinic in Rochester

Rochester, Minnesota, 55905, United States

RECRUITING

Related Links

Biospecimen

Retention: SAMPLES WITHOUT DNA

Stool donation will be requested from participants to assess gut microbiome

Study Officials

  • Angela Dispenzieri, M.D.

    Mayo Clinic in Rochester

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Study Design

Study Type
observational
Observational Model
CASE CONTROL
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

February 2, 2024

First Posted

February 12, 2024

Study Start

December 29, 2021

Primary Completion (Estimated)

December 1, 2028

Study Completion (Estimated)

December 29, 2028

Last Updated

February 23, 2026

Record last verified: 2026-02

Data Sharing

IPD Sharing
Will not share

Gut microbiome (GMB) in patients with active POEMS syndrome will differ from POEMS patients with inactive disease. It will be also different from patients with other plasma cell disorders (amyloid light chain \[AL\] amyloidosis, multiple myeloma \[MM\] and monoclonal gammopathy of undetermined significance \[MGUS\]) and healthy controls.

Locations