Building Resilience for Advance Care Planning (ACP) in Chinese Americans

NCT06247215 | Completed DMC

• 2 other identifiers: 2023-0354P50MD017349
• Study Type: observational
• Target: 125
• Locations: 1 country
• Sites: 1

Brief Summary

The goal of this observational study is to learn about how Chinese Americans engage in advance care planning (ACP) discussions with their family caregivers. The main questions it aims to answer are:

1. 1.How do religious leaders discuss advance care planning and death-related topics with Chinese Americans who are diagnosed with cancer or heart disease in Chicago?
2. 2.Are Chinese Americans living in Chicago ready to participate in ACP discussions with their family?
3. 3.What kind of support and resources are required to engage in end-of-life care discussions among Chinese Americans/immigrants living in Chicago?
4. 4.What do Chinese Americans with cancer, high blood pressure, or heart disease and their family members think about an ACP pamphlet made for Chinese Americans?

Conditions

Advance Care Planning

Outcome Measures

Primary Outcomes (1)

• Readiness, Support and Resources for ACP Discussions

  The Advance Care Planning Engagement Survey was used to evaluate the readiness for advance care planning discussions among Chinese Americans living in Chicago.

  Immediately at the end of the study

Secondary Outcomes (3)

• Support Needed for ACP Discussions

  Immediately at the end of the study

• Strategies Used for ACP and Death-related Discussions

  Immediately at the end of the study

• Acceptability of an ACP pamphlet

  Immediately at the end of the study

Study Arms (4)

Religious Leaders

Religious leaders providing spiritual care to Chinese Americans

Other: Religious leaders

Chinese Americans living in Chicago

Chinese Americans living in Chicago

Other: Chinese Americans

Chinese Americans for end-of-life care discussions

Chinese Americans with experience in end-of-life care discussions

Other: Chinese Americans with end-of-life care discussions

Chinese Americans with chronic disease and their family members

Chinese Americans diagnosed with cancer, hypertension, or heart disease and their family members

Other: Chinese Americans with chronic diseases

Interventions

Religious leaders OTHER

Religious leaders who have experience providing pastoral or spiritual care to Chinese Americans living in Chicago

Religious Leaders

Chinese Americans OTHER

Chinese Americans living in Chicago.

Chinese Americans living in Chicago

Chinese Americans with end-of-life care discussions OTHER

Chinese Americans who have experience discussing end-of-life care decisions with others.

Chinese Americans for end-of-life care discussions

Chinese Americans with chronic diseases OTHER

Chinese Americans who are diagnosed with cancer, hypertension, or heart disease and their family caregivers

Chinese Americans with chronic disease and their family members

Eligibility Criteria

• Age: 18 Years - 90 Years
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

People who have experience providing spiritual/pastoral care to Chinese Americans in Chicago as a chaplain, pastor, or monk at a health care setting or religious organization in Chicago, or who self-identify as first- or second-generation Chinese Americans living in Chicago with/without having end-of-life care discussions with others. Chinese Americans living with cancer, hypertension, or heart disease, and their family members

You may qualify if:

• Age ≥ 18 years of age;
• Having served as a chaplain, pastor, or monk at a health care setting or religious organization in Chicago;
• Being able to read and respond to questions in English or Mandarin;
• Having experience in having end-of-life discussions with Chinese Americans in Chicago.

You may not qualify if:

• Group 2
• Age ≥ 18 years of age;
• Identifying themselves as first- or second-generation Chinese Americans;
• Being able to read and respond to questions in Mandarin or English.
• Group 3
• Age ≥ 18 years of age;
• Identifying themselves as first- or second-generation Chinese Americans;
• Having experience discussing end-of-life care decisions with others;
• Being able to read, write, and respond to questions in either English or Mandarin.
• Group 4
• Age ≥ 18 years of age;
• Self-identify themselves as first- or second-generation Chinese Americans/immigrants;
• Having a diagnosis of chronic diseases, such as cancer, hypertension, or heart disease;
• Being able to read and respond to questions in Mandarin;
• Being of the non-Hispanic Asian race/ethnicity.

Sponsors & Collaborators

• National Institute on Minority Health and Health Disparities (NIMHD): collaborator
• University of Illinois at Chicago: lead
• University of Chicago: collaborator
• Rush University Medical Center: collaborator

Study Sites (1)

University of Illinois Chicago

Chicago, Illinois, 60607, United States

Location

Study Design

• Study Type: observational
• Observational Model: CASE ONLY
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: OTHER
• Responsible Party: SPONSOR

Study Record Dates

• First Submitted: January 30, 2024
• First Posted: February 7, 2024
• Study Start: November 8, 2023
• Primary Completion: December 18, 2025
• Study Completion: December 18, 2025
• Last Updated: January 29, 2026

Record last verified: 2025-12

Locations

US (1)