Intergenerational Reminiscence and Digital Storytelling

NCT05984732 | Completed

• 1 other identifier: #2021-0206
• Study Type: interventional
• Target: 206
• Locations: 1 country
• Sites: 1

Brief Summary

The goal of this clinical trial is to develop and test how reminiscence offered by trained young adult volunteers using a digital storytelling (DST) platform may help older persons with Alzheimer's disease and related dementias (ADRD) to improve their social and emotional well-being. The main questions it aims to answer are:

1. 1.Whether is this reminiscence and DST based intervention effective in improving social and emotional well-being of older adults with ADRD?
2. 2.Whether do young adult participants improve their social and emotional well-being as well as knowledge and attitudes towards aging after participating this study?

Conditions

Alzheimer Disease

Keywords

ADRD; DST; reminiscence; older adult; young adult volunteer; RCT

Outcome Measures

Primary Outcomes (4)

• Quality of life of older adults

  Older adults' quality of life will be measured using the Quality of Life-Alzheimer's Disease (QoL-AD). Thirteen items will be asked with each rated by a scale of 1-4 (poor, fair, good, or excellent). Sum scores will be calculated for final analysis with a potential range of 13-52. The higher the QoL-AD score, the better is the quality of life.

  up to 6 months

• Affect of older adults

  Positive affect (PA) and negative affect (NA) of older adults will be conducted with Positive and Negative Affect Schedule (PANAS). Ten positive and Ten negative emotions will be asked using a 5-point scale. Sum scores will be calculated with higher scores indicating more PA and NA respectively, with potential range of 10-50 for each sum score.

  up to 6 months

• Resilience of older adults

  Resilience of older adults will be measured using the Brief Resilience Scale (BRS). Six items will be asked and each item ranges from 1 (low resilience) to 5 (high resilience). Total scores will be calculated for final analysis with a potential range of 6-30. The higher the sum score, the more resilience of older adults.

  up to 6 months

• Loneliness of older adults

  Loneliness will be measured by the De Jong Gierveld Loneliness Scale. Six items will be asked, each is measured with a 5 Likert scale. High sum scores indicate great loneliness with a potential range of 6-30.

  up to 6 months

Secondary Outcomes (3)

• Loneliness of young adult

  up to 6 months

• Knowledge of ADRD

  up to 6 months

• Attitudes toward aging

  up to 6 months

Other Outcomes (1)

• To qualitatively evaluate the usefulness of this intervention from the perspectives of the selected Dyads

  interview will last for up to 60 minutes

Study Arms (2)

Reminiscence with digital storytelling

EXPERIMENTAL

Older adults in the intervention group will receive 10 sessions of life-review or reminiscence discussion with the trained young adult volunteers (1-1.5 hours each week for 10 weeks). At the end of the study, they create a digital storybook based on their previous discussion.

Behavioral: Reminiscence with digital storytelling

Social wellness with scrapbook or journal

SHAM COMPARATOR

Older adults in the control group will have general social wellness discussion with the young adult volunteers. At the end of the study, they will create a journal/scrapbook.

Behavioral: Social wellness with scrapbook or journal

Interventions

Reminiscence with digital storytelling BEHAVIORAL

The older and young adult participants will be randomly assigned into the intervention (reminiscence) or control (social wellness) groups and then be randomly matched as dyads within each group. Older adults in the intervention group will receive 10 sessions of life-review with the trained young adult volunteers (1-1.5 hours each week for 10 weeks). During weeks 1-6, a life history interview will be carried out with different themes in each week: major turning points in life (W1), family history (W2), life/career accomplishments (W3), history of loves and hates (W4), stress experiences (W5), and meaning and purpose of life (W6). During weeks 7-10, the dyads will develop the DST together using tablets already owned by the UTA School of Social Work. The contents of sessions 7-10 will be structured as: outline/script, plan and storyboard (W7), film and record (W8), evaluate, integrate and finalize (W9), and publish/share (W10).

Reminiscence with digital storytelling

Social wellness with scrapbook or journal BEHAVIORAL

Older adults in the control group will have general social wellness discussion with the young adult volunteers, instead of structured reminiscence guidelines. The topics are: diet and health (week 1); exercise/activity and health (week 2); emotions and health (week 3); religious/spiritual practices and health (week 4); family/friend relationships and health (week 5); and social activities/engagement and health (week 6). For weeks 7-10, instead of DST, the young adult volunteer will work with the older adult to create an unstructured, non-digital record of the social visit related to wellness in later life (e.g. wellness scrapbook/journal).

Social wellness with scrapbook or journal

Eligibility Criteria

• Age: 65 Years+
• Sex: all
• Healthy Volunteers: Yes
• Age Groups: Older Adult (65+)

You may qualify if:

• are aged 65 years or older;
• have cognitive impairment measured by Ascertain Dementia 8 screening scale;
• have decisional capacity as measured by the University of California, San Diego Brief Assessment of Capacity to Consent (UBACC) ;
• are not participating any other research protocol currently;
• can speak and understand English.

You may not qualify if:

• participating in another trial or intervention;
• have health issues that prevent them from participating in the study for 3 months;
• cannot commit to be available for the full 10 weeks of intervention.
• age 18-30 years old;
• currently enrolled as a student at UTA when the study is conducted;
• can commit to be available for the full 10 weeks of the intervention.
• not current UTA student in the time of the study;
• have health issues or limited availability that prevent them from participating for the entire 10 weeks of intervention.

Sponsors & Collaborators

• The University of Texas at Arlington: lead
• Retirement Research Foundation: collaborator

Study Sites (1)

The University of Texas at Arlington

Arlington, Texas, 76019, United States

Location

Related Publications (1)

• Xu L, Fields NL, Daniel KM, Cipher DJ, Troutman BA. Reminiscence and Digital Storytelling to Improve the Social and Emotional Well-Being of Older Adults With Alzheimer's Disease and Related Dementias: Protocol for a Mixed Methods Study Design and a Randomized Controlled Trial. JMIR Res Protoc. 2023 Sep 7;12:e49752. doi: 10.2196/49752.

  PMID: 37676706 DERIVED

MeSH Terms

Conditions

Alzheimer Disease

Condition Hierarchy (Ancestors)

Dementia; Brain Diseases; Central Nervous System Diseases; Nervous System Diseases; Tauopathies; Neurodegenerative Diseases; Neurocognitive Disorders; Mental Disorders

Study Design

• Study Type: interventional
• Phase: not applicable
• Allocation: RANDOMIZED
• Masking: SINGLE
• Who Masked: PARTICIPANT
• Purpose: SUPPORTIVE CARE
• Intervention Model: PARALLEL
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Associate Professor

Study Record Dates

• First Submitted: July 14, 2023
• First Posted: August 9, 2023
• Study Start: April 15, 2021
• Primary Completion: August 11, 2022
• Study Completion: August 30, 2022
• Last Updated: August 9, 2023

Record last verified: 2023-08

Data Sharing

• IPD Sharing: Will not share

Locations

US (1)