NCT05637112

Brief Summary

Anifrolumab Study of Treatment Effectiveness in the Real World (ASTER) study will collect real world data to obtain a good understanding of the (sustained) clinical effect and patient quality of life outcomes among diagnosed SLE patients who initiate anifrolumab treatment. ASTER will generate critical real-world evidence on the benefits of adding anifrolumab to standard of care treatment for SLE in routine clinical practice, to inform physicians, payers and patients.

Trial Health

82
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
551

participants targeted

Target at P75+ for all trials

Timeline
56mo left

Started Feb 2023

Longer than P75 for all trials

Geographic Reach
9 countries

79 active sites

Status
active not recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress41%
Feb 2023Dec 2030

First Submitted

Initial submission to the registry

November 24, 2022

Completed
11 days until next milestone

First Posted

Study publicly available on registry

December 5, 2022

Completed
3 months until next milestone

Study Start

First participant enrolled

February 27, 2023

Completed
7.8 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 30, 2030

Expected
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

December 30, 2030

Last Updated

February 24, 2026

Status Verified

February 1, 2026

Enrollment Period

7.8 years

First QC Date

November 24, 2022

Last Update Submit

February 23, 2026

Conditions

Keywords

chronic autoimmune diseaseimmunosuppressantscorticosteroidshuman monoclonal antibody (IgG1Æ™ mAb)Real World

Outcome Measures

Primary Outcomes (3)

  • Disease activity assessed by the Physician Global Assessment (PGA)

    The PGA is a single-item visual analogue scale that describes the physician assessment of a patient's disease and its impact on daily functioning at the time of assessment. The scale ranges from 0 (asymptomatic disease and no limitation of normal activities) to 3 (severe disease and limitation of normal activities).

    From Baseline (1 year pre-anifrolumab) until follow-up 5 years post-anifrolumab initiation

  • Disease activity assessed by Systemic Lupus Erythematosus Disease Activity Index 2000 (SLEDAI-2K)

    The SLEDAI-2K is a global index and includes 24 clinical symptoms and laboratory variables that are weighted by the type of manifestation, but not by severity or dynamic of the individual item. The SLEDAI-2K includes scoring for antibodies and low complement, as well as some renal and hematologic parameters. The total score ranges between 0 and 105, with higher scores representing increased disease activity.

    From Baseline (1 year pre-anifrolumab) until follow-up 5 years post-anifrolumab initiation

  • Proportion of patients attaining the composite endpoint of lupus low disease activity (LLDAS)

    The proportion of patients attaining the composite endpoint of LLDAS will be assesed.

    From Baseline (1 year pre-anifrolumab) until follow-up 5 years post-anifrolumab initiation

Secondary Outcomes (14)

  • Proportion of patients attaining Definition of Remission in SLE (DORIS)

    From Baseline (1 year pre-anifrolumab) until follow-up 5 years post-anifrolumab initiation

  • Clinical SLE Flares assessment by modified revised Safety of Estrogens in Lupus National Assessment-Systemic Lupus Erythematosus Disease Activity Index (SELENA-SLEDAI) flare index (rSFI)

    From Baseline (1 year pre-anifrolumab) until follow-up 5 years post-anifrolumab initiation

  • Proportion of patients with irreversible organ damage, using the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index (SDI).

    From Baseline (1 year pre-anifrolumab) until follow-up 5 years post-anifrolumab initiation

  • SLE treatment patterns prior to, concomitant with and after anifrolumab

    From Baseline (1 year pre-anifrolumab) until follow-up 5 years post-anifrolumab initiation

  • Functional Assessment of Chronic Illness Therapy - Fatigue Scale (FACIT-Fatigue)

    From Baseline (1 year pre-anifrolumab) until follow-up 3 years post-anifrolumab initiation

  • +9 more secondary outcomes

Study Arms (1)

Prospective Cohort

All patients aged ≥18 years diagnosed with SLE who initiate anifrolumab as prescribed by their healthcare provider (HCP) per the approved country-specific label and are treated at the study sites will be eligible for inclusion.

Other: None (Observational study)

Interventions

Not Applicable since Observational Study

Also known as: Observational Study
Prospective Cohort

Eligibility Criteria

Age18 Years - 130 Years
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

All patients aged ≥18 years diagnosed with SLE who initiate anifrolumab as prescribed by their healthcare provider (HCP) per the approved country-specific label and are treated at the study sites will be eligible for inclusion.

You may qualify if:

  • Fulfilled the 2019 EULAR (European League Against Rheumatism)/ACR (American College of Rheumatology) criteria for SLE at the time of study entry.
  • Prescribed anifrolumab for their SLE treatment for the first time, according to approved country-specific label.
  • The Physician's decision to prescribe anifrolumab must occur prior to any study-related discussion.
  • In countries where prescription reimbursements are authorised on a case-by-case basis, authorisation (ie, patient access to treatment) will be required for study entry.

You may not qualify if:

  • Currently participating in an anifrolumab early access/compassionate use program or an interventional clinical trial with an investigational product.
  • Any previous exposure to anifrolumab (including as part of a clinical trial or early access programme).
  • Documented diagnosis of severe or rapidly progressive Class III or IV glomerulonephritis requiring induction therapy (mycophenolate mofetil \[MMF\]/cyclophosphamide \[CYC\] + high dose steroids), isolated Class V lupus nephritis (in absence of other SLE manifestations, ie. skin/joint involvement), or active severe or unstable neuropsychiatric lupus.
  • Any other condition which the investigator deems to limit a patient's ability to understand the informed consent.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (79)

Research Site

Innsbruck, Tyrol, 6020, Austria

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Linz, Upper Austria, 4020, Austria

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Vienna, 1180, Austria

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Liège, Li Ge, 4000, Belgium

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Aalst, Oost-Vlaanderen, 9300, Belgium

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Bruges, West Flanders, 8000, Belgium

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Leuven, 3000, Belgium

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Calgary, Alberta, T2N 4N1, Canada

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Winnipeg, Manitoba, RR149, Canada

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Hamilton, Ontario, L8N 3Z5, Canada

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Orillia, Ontario, L3V 1T5, Canada

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Toronto, Ontario, M5T 2S9, Canada

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Rimouski, Quebec, G5L 5T1, Canada

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Sherbrooke, Quebec, J1G 2E8, Canada

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Ste-Foy, Quebec, G1V 4G2, Canada

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Nice, Alpes-Maritimes, 6000, France

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Clermont-Ferrand, Auvergne-Rh ne-Alpes, 63000, France

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Strasbourg, Bas-Rhin, 67098, France

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Finist Re, Brest Cedex, 29609, France

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Dijon, C te-d'Or, 21079, France

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Bordeaux, Gironde, 33076, France

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Grenoble, Is Re, 38043, France

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Saint-Denis, La R Union, 97405, France

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Nantes, Loire-Atlantique, 44093, France

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Bouches-du-Rh Ne, Lyon, 69003, France

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FORT de France Cedex, Martinique, 97261, France

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Lille, Nord, 59037, France

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Seine-Maritime, Rouen, 76230, France

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Paris, 14033, France

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Paris, 75013, France

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Paris, 75014, France

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Paris, 75020, France

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Paris, 75475, France

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Heidelberg, Baden-W Rttemberg, 69120, Germany

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Heidelberg, Baden-Wurttemberg, 69120, Germany

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Erlangen, Bavaria, 91054, Germany

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Bad Bramstedt, Hamburg, 24576, Germany

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Schleswig-Holstein, L Beck, 23562, Germany

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Greifswald, Mecklenburg-Vorpommern, 17493, Germany

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Munich, Monachium, 81925, Germany

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Cologne, North Rhine-Westphalia, 51149, Germany

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D Sseldorf, North Rhine-Westphalia, 40225, Germany

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Herne, North Rhine-Westphalia, 44649, Germany

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Mainz A. Rhein, Rhineland-Palatinate, 55131, Germany

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Magdeburg, Saxony-Anhalt, 39104, Germany

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Greifwald, Vorpommern-Greifswald, 17489, Germany

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Berlin, 10117, Germany

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Kfar Saba, Central District, 4428164, Israel

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Tel Hashomer, Central District, 5211401, Israel

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Tiberias, Galilee, 15208, Israel

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Haifa, Haifa District, 3109601, Israel

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Haifa, Haifa District, 3436212, Israel

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Jerusalem, Jerusalem, 91120, Israel

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Afula, Northern District, 18101, Israel

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Ramat Gan, Tel Aviv, 52621, Israel

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Tel Aviv, Tel Aviv, 6423906, Israel

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Naples, Campania, 80131, Italy

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Cona, Emilia-Romagna, 44124, Italy

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Udine, Friuli Venezia Giulia, 33100, Italy

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Rome, Lazio, 149, Italy

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Brescia, Lombardy, 25100, Italy

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Milan, Lombardy, 20122, Italy

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Turin, Piedmont, 10126, Italy

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Cagliari, Sardinia, 9042, Italy

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Ancona, 60126, Italy

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Bari, 70124, Italy

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Florence, 50134, Italy

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Milan, 20122, Italy

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Milan, 20132, Italy

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Pisa, 56126, Italy

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Roma, 161, Italy

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Roma, 168, Italy

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Örebro, N Rke, 70185, Sweden

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Danderyd, Stockholm County, 18288, Sweden

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Stockholm, Uppland, 171 76, Sweden

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Dubai, Dubayy, 7272, United Arab Emirates

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Dubai, Dubayy, United Arab Emirates

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Sharjah city, Emirate of Sharjah, 72772, United Arab Emirates

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Abu Dhabi, United Arab Emirates

Location

Related Publications (1)

  • Mosca M, Emmas C, Nekeman-Nan C, Stirnadel-Farrant H, Chen S, Carty L, Waratani M, Seo C, Chen S, Sorrentino A. Anifrolumab Study for Treatment Effectiveness in the Real World (ASTER) among patients with systemic lupus erythematosus: protocol for an international observational effectiveness study. BMJ Open. 2024 Nov 21;14(11):e086055. doi: 10.1136/bmjopen-2024-086055.

MeSH Terms

Conditions

Lupus Erythematosus, Systemic

Interventions

Observation

Condition Hierarchy (Ancestors)

Connective Tissue DiseasesSkin and Connective Tissue DiseasesAutoimmune DiseasesImmune System Diseases

Intervention Hierarchy (Ancestors)

MethodsInvestigative Techniques

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

November 24, 2022

First Posted

December 5, 2022

Study Start

February 27, 2023

Primary Completion (Estimated)

December 30, 2030

Study Completion (Estimated)

December 30, 2030

Last Updated

February 24, 2026

Record last verified: 2026-02

Data Sharing

IPD Sharing
Will share

Qualified researchers can request access to anonymized individual patient-level data from AstraZeneca group of companies sponsored clinical trials via the request portal. All request will be evaluated as per the AZ disclosure commitment: https://astrazenecagrouptrials.pharmacm.com/ST/Submission/Disclosure. Yes, indicates that AZ are accepting requests for IPD, but this does not mean all requests will be shared.

Time Frame
AstraZeneca will meet or exceed data availability as per the commitments made to the EFPIA Pharma Data Sharing Principles. For details of our timelines, please rerefer to our disclosure commitment at https://astrazenecagrouptrials.pharmacm.com/ST/Submission/Disclosure.
Access Criteria
When a request has been approved AstraZeneca will provide access to the deidentified individual patient-level data in an approved sponsored tool. Signed Data Sharing Agreement (non-negotiable contract for data accessors) must be in place before accessing requested information. Additionally, all users will need to accept the terms and conditions of the SAS MSE to gain access. For additional details, please review the Disclosure Statements at https://astrazenecagrouptrials.pharmacm.com/ST/Submission/Disclosure.
More information

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