NCT05612100

Brief Summary

This study evaluates endocrine therapy-induced alopecia among postmenopausal and premenopausal female patients with breast cancer. Alopecia is one of the most feared side effects of cancer-directed therapy, causing distress in women starting treatment for breast cancer. While alopecia is a well-known side effect of many chemotherapy drugs, it has also been reported by women undergoing endocrine therapy. Despite the frequent reports of alopecia related to endocrine therapy, hair loss is rarely reported as a side effect of endocrine therapy and the exact characterization of alopecia is not well understood. By having postmenopausal and premenopausal breast cancer patients describe their hair loss symptoms experienced while undergoing endocrine therapy, researchers may be able to better characterize the incidence, timing, duration, and severity of alopecia and whether the different types of endocrine therapy cause more or less trouble in this regard.

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
170

participants targeted

Target at P50-P75 for all trials

Timeline
26mo left

Started Jul 2022

Longer than P75 for all trials

Geographic Reach
1 country

23 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress65%
Jul 2022Jun 2028

Study Start

First participant enrolled

July 6, 2022

Completed
4 months until next milestone

First Submitted

Initial submission to the registry

October 27, 2022

Completed
14 days until next milestone

First Posted

Study publicly available on registry

November 10, 2022

Completed
5.6 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

June 30, 2028

Expected
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

June 30, 2028

Last Updated

April 30, 2026

Status Verified

April 1, 2026

Enrollment Period

6 years

First QC Date

October 27, 2022

Last Update Submit

April 28, 2026

Conditions

Outcome Measures

Primary Outcomes (4)

  • Estimation and characterization of patient-reported treatment-emergent alopecia within and across the cohorts

    Exact 95% confidence intervals will be created within each cohort and compared graphically using forest plots. Plots of alopecia incidence rates and severity will be plotted over time by cohort.

    Up to study completion; up to two years

  • Overall impact on patient's quality of life

    Descriptive summaries of all the questions on the baseline and follow-up questionnaires will be tabulated to facilitate our understanding of patient-experienced alopecia and to provide a comprehensive picture of how alopecia is treated, as well as to quantify the overall impact on patient's quality of life. Standardized differences will be computed in order to give a common metric for all variables. The largest standardized difference between the pairwise cohorts will be reported.

    Up to study completion; up to two years

  • Incidence rate of treatment-emergent alopecia

    A cumulative incidence function will be estimated in order to calculate the cumulative incidence rate (i.e. time to initial onset) of treatment-emergent alopecia, treating death and disease progression as competing risks for each cohort. Cox proportional hazards models will be used to compare differences between treatment-emergent alopecia risk between the control cohort (n=20) and the combined treatment cohorts (n = 80). The covariates included in the regression model will include age (years) and alopecia scores at baseline.

    Up to study completion; up to two years

  • Risk of treatment-emergent alopecia

    A longitudinal analysis will be used for the binary response of whether the patient experiences treatment-emergent alopecia; this mixed model will contain an interaction between control versus treatment cohort and time, both as categorical variables, and a random intercept and slope by patient. The above covariates will also be adjusted for and piecewise splices will be used to account for any nonlinearity. The goal of the longitudinal analysis is to explore whether the risk of treatment-emergent alopecia increases with endocrine therapy exposure over time and whether this risk differs between cohorts.

    Up to study completion; up to two years

Study Arms (1)

Observational (alopecia questionnaires and surveys)

Patients complete alopecia questionnaires and surveys and have medical records reviewed on study.

Other: Electronic Health Record ReviewOther: Questionnaire AdministrationOther: Survey Administration

Interventions

Ancillary studies

Observational (alopecia questionnaires and surveys)

Complete alopecia questionnaires

Observational (alopecia questionnaires and surveys)

Complete alopecia surveys

Observational (alopecia questionnaires and surveys)

Eligibility Criteria

Age18 Years+
Sexfemale
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Postmenopausal and premenopausal women with a diagnosis of breast cancer.

You may qualify if:

  • Age \>= 18 years
  • Women with a diagnosis of breast cancer who are being treated with curative intent, with the one exception being women who are receiving CDK4/6 inhibitors (these patients being allowed to have more advanced disease)
  • Provide informed consent
  • Ability to complete questionnaire(s) by themselves or with assistance
  • Filling into one of the 5 groups (understanding that groups will close once they complete their accrual goals of 30 patients)
  • Willingness to complete questionnaires every 3 months
  • Ability to complete the first questionnaire within 2 weeks of therapy initiation (for the four arms that are receiving adjuvant hormonal therapy)
  • For patients starting tamoxifen or an aromatase inhibitor: within 2 weeks of starting tamoxifen or aromatase inhibitor
  • For patients starting a CDK 4/6 inhibitor: within 2 weeks of starting the CDK 4/6 inhibitor (patients may have started an aromatase inhibitor at any time prior to initiation of CDK 4/6 inhibitor).

You may not qualify if:

  • Verbal baseline alopecia \>= 2 on an 11 point scale (from none = 0 to severe = 10). The question to use for this item is: Please rate your hair thinning or loss on a scale from 0 to 10, with 0 being no hair loss and 10 being complete hair loss
  • Planned receipt of chemotherapy or another cancer-directed therapy concurrently (e.g., everolimus, etc.; note that a CDK4/6 inhibitor is allowed within cohort 3)
  • Prior use of endocrine therapy for breast cancer
  • Receipt of chemotherapy over the previous 6 months

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (23)

Mayo Clinic Health System in Albert Lea

Albert Lea, Minnesota, 56007, United States

RECRUITING

Essentia Health Baxter Clinic

Baxter, Minnesota, 56425, United States

RECRUITING

Sanford Joe Lueken Cancer Center

Bemidji, Minnesota, 56601, United States

RECRUITING

Essentia Health Saint Joseph's Medical Center

Brainerd, Minnesota, 56401, United States

RECRUITING

Essentia Health - Deer River Clinic

Deer River, Minnesota, 56636, United States

RECRUITING

Essentia Health Saint Mary's - Detroit Lakes Clinic

Detroit Lakes, Minnesota, 56501, United States

RECRUITING

Essentia Health Cancer Center

Duluth, Minnesota, 55805, United States

RECRUITING

Essentia Health Ely Clinic

Ely, Minnesota, 55731, United States

RECRUITING

Essentia Health - Fosston

Fosston, Minnesota, 56542, United States

RECRUITING

Fairview Grand Itasca Clinic & Hospital

Grand Rapids, Minnesota, 55744, United States

RECRUITING

Essentia Health Hibbing Clinic

Hibbing, Minnesota, 55746, United States

RECRUITING

Fairview Range Medical Center

Hibbing, Minnesota, 55746, United States

RECRUITING

Essentia Health - International Falls Clinic

International Falls, Minnesota, 56649, United States

RECRUITING

Mayo Clinic Health Systems-Mankato

Mankato, Minnesota, 56001, United States

RECRUITING

MMCORC CentraCare Monticello Cancer Center

Monticello, Minnesota, 55362, United States

ACTIVE NOT RECRUITING

Essentia Health Moose Lake

Moose Lake, Minnesota, 55767, United States

RECRUITING

Essentia Health - Park Rapids

Park Rapids, Minnesota, 56470, United States

RECRUITING

Fairview Northland Medical Center

Princeton, Minnesota, 55731, United States

RECRUITING

Mayo Clinic in Rochester

Rochester, Minnesota, 55905, United States

RECRUITING

Essentia Health Sandstone

Sandstone, Minnesota, 55072, United States

RECRUITING

Sanford Health Thief River Falls

Thief River Falls, Minnesota, 56701, United States

RECRUITING

Essentia Health Virginia Clinic

Virginia, Minnesota, 55792, United States

RECRUITING

Sanford Health Worthington

Worthington, Minnesota, 56187, United States

RECRUITING

Related Links

MeSH Terms

Conditions

Breast Neoplasms

Condition Hierarchy (Ancestors)

Neoplasms by SiteNeoplasmsBreast DiseasesSkin DiseasesSkin and Connective Tissue Diseases

Study Officials

  • Elizabeth Cathcart-Rake, M.D.

    Mayo Clinic in Rochester

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

October 27, 2022

First Posted

November 10, 2022

Study Start

July 6, 2022

Primary Completion (Estimated)

June 30, 2028

Study Completion (Estimated)

June 30, 2028

Last Updated

April 30, 2026

Record last verified: 2026-04

Data Sharing

IPD Sharing
Will not share

Locations