Dementia Care Challenges Among a Sample of Informal Caregivers in Egypt

NCT05572086 | Unknown

• 1 other identifier: Dementia care challenges
• Study Type: observational
• Target: 314
• Locations: 0 countries
• Sites: N/A

Brief Summary

Dementia is a widespread incapacitating mental syndrome that carries a significant challenge for healthcare systems, persons with dementia, and their caregivers. The world health organization estimates that there is "more than 55 million persons live with dementia worldwide, and there are nearly 10 million new cases every year" In Egypt there are many studies had investigated caregiver burden with chronic ill elderly as physical or psychiatric diseases; however, studies focusing on caregiving Patients With Dementia (PWD), especially the psychological aspect, has been raised just few years ago. Some focused on psychiatric comorbidities of care givers, others correlated caregivers' quality of life with dementia staging. Other research groups designed educational programs and psychosocial interventions for training informal caregivers with significant psychological burden reduction at the end of the studies , also another group focused their study on the negative emotions expressed by caregiver towards PWD. Still there are many aspects of caregiving not explored considering the financial burden, lack of formal educational resources, stigma, cultural and religious values related to caregiving.

Conditions

Dementia

Outcome Measures

Primary Outcomes (1)

• Assessment of caregiver burden

  By using Zarit Burden Interview

  one year

Eligibility Criteria

• Age: 18 Years - 60 Years
• Sex: all
• Healthy Volunteers: No
• Age Groups: Adult (18-64)
• Sampling Method: Non-Probability Sample

Study Population

caregivers of patients with dementia from community or from patients coming to hospital for medical issues related to dementia with interview with their caregiver through face-to-face, on line, or telephone interview

You may qualify if:

• Informal Caregivers aged 18 years or older
• Informal Caregiver in daily contact for care with the person with dementia for at least one year.

You may not qualify if:

• Informal caregivers who are unable or unwilling to communicate.
• Formal caregivers

Sponsors & Collaborators

• Assiut University: lead

MeSH Terms

Conditions

Dementia

Condition Hierarchy (Ancestors)

Brain Diseases; Central Nervous System Diseases; Nervous System Diseases; Neurocognitive Disorders; Mental Disorders

Study Design

• Study Type: observational
• Observational Model: CASE ONLY
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: lecturer

Study Record Dates

• First Submitted: September 30, 2022
• First Posted: October 7, 2022
• Study Start: February 1, 2023
• Primary Completion: February 1, 2024
• Study Completion: June 1, 2024
• Last Updated: October 7, 2022

Record last verified: 2022-10