NCT05476055

Brief Summary

To investigate the application of NGS in neonatal disease screening and diagnosis, two studies was conducted (the other ID is: shercru-20220003). This study is to evaluate the application of NGS in the diagnosis of neonatal disease.

Trial Health

35
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
1,800

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Aug 2022

Typical duration for all trials

Status
unknown

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

July 25, 2022

Completed
2 days until next milestone

First Posted

Study publicly available on registry

July 27, 2022

Completed
5 days until next milestone

Study Start

First participant enrolled

August 1, 2022

Completed
2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

August 1, 2024

Completed
4 months until next milestone

Study Completion

Last participant's last visit for all outcomes

December 1, 2024

Completed
Last Updated

July 27, 2022

Status Verified

July 1, 2022

Enrollment Period

2 years

First QC Date

July 25, 2022

Last Update Submit

July 26, 2022

Conditions

Outcome Measures

Primary Outcomes (2)

  • Diagnostic time

    In each cohort, NGS was conducted to investigate whether NGS can shorten the diagnostic time.

    up to 6 months

  • Prognosis (mortality)

    In each cohort, NGS was conducted to investigate whether NGS can reduce the mortality of children.

    up to 1 year

Study Arms (6)

conventional NBS+ infants

Disease diagnosis is carried out using conventional diagnosis and treatment methods.

conventional NBS+ infants (NGS)

Disease diagnosis is carried out using conventional diagnosis and treatment methods, as well as NGS.

Genetic: NGS

NICU infants

Disease diagnosis is carried out using conventional diagnosis and treatment methods.

NICU infants (NGS)

Disease diagnosis is carried out using conventional diagnosis and treatment methods, as well as NGS.

Genetic: NGS

Premature infants

Disease diagnosis is carried out using conventional diagnosis and treatment methods.

Premature infants (NGS)

Disease diagnosis is carried out using conventional diagnosis and treatment methods, as well as NGS.

Genetic: NGS

Interventions

NGSGENETIC

In the conbentional NBS+/NICU/premature infants, NGS was conducted to investigate whether NGS can accelerate diagnosis and improve prognosis in these children

NICU infants (NGS)Premature infants (NGS)conventional NBS+ infants (NGS)

Eligibility Criteria

Age1 Day - 1 Year
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17)
Sampling MethodNon-Probability Sample
Study Population

In the cohort of conventional NBS+/ NICU/ premature infants, the corresponding targeted population was included in the study and analysis.

You may qualify if:

  • Subjects: conventional NBS+ infants NICU infants premature infants
  • After fully understanding the program, the guardian signs the informed consent and agrees to participate in the program.

You may not qualify if:

  • Other similar clinical research projects are under way for the examined neonates;
  • Neonates have received transfusion of allogeneic blood products;
  • Newborns whose guardians explicitly refuse to participate in the program after receiving the mission.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

MeSH Terms

Conditions

Premature Birth

Condition Hierarchy (Ancestors)

Obstetric Labor, PrematureObstetric Labor ComplicationsPregnancy ComplicationsFemale Urogenital Diseases and Pregnancy ComplicationsUrogenital Diseases

Study Officials

  • Lin Zou

    Shanghai Children's Hospital

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

July 25, 2022

First Posted

July 27, 2022

Study Start

August 1, 2022

Primary Completion

August 1, 2024

Study Completion

December 1, 2024

Last Updated

July 27, 2022

Record last verified: 2022-07