NCT05448560

Brief Summary

More than 80% of childhood cancer survivors develop serious or life-threatening late effects after cancer therapy, but \<20% receive recommended survivorship care offered at cancer center survivorship clinics. In a shared care model, the investigators propose to investigate an innovative multi-level intervention consisting of: 1) patient survivorship education via telehealth with the cancer center, 2) ongoing patient-tailored education program within the electronic health record patient portal, 3) a structured interactive phone communication between the cancer center and the primary care clinic, and 4) an in-person visit with the primary care clinic for survivorship care with the goal of achieving high rates of adherence to recommended surveillance for late effects, as well as improving patient and physician knowledge and self-efficacy. If this scalable intervention demonstrates patient completion of recommended care comparable to cancer center survivorship clinics, this innovative study has the enormous potential to deliver recommended care to a larger proportion of childhood cancer survivors and reduce survivorship care disparities, while engaging p to integrate survivorship care as part of overall, lifelong health maintenance.

Trial Health

75
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
240

participants targeted

Target at P75+ for not_applicable

Timeline
3mo left

Started Jan 2023

Longer than P75 for not_applicable

Geographic Reach
1 country

4 active sites

Status
active not recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress94%
Jan 2023Aug 2026

First Submitted

Initial submission to the registry

June 16, 2022

Completed
21 days until next milestone

First Posted

Study publicly available on registry

July 7, 2022

Completed
6 months until next milestone

Study Start

First participant enrolled

January 1, 2023

Completed
3.2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

February 28, 2026

Completed
6 months until next milestone

Study Completion

Last participant's last visit for all outcomes

August 31, 2026

Expected
Last Updated

August 20, 2025

Status Verified

August 1, 2025

Enrollment Period

3.2 years

First QC Date

June 16, 2022

Last Update Submit

August 19, 2025

Conditions

Keywords

childhood cancer survivorssurvivorship carerandomized controlled trial

Outcome Measures

Primary Outcomes (2)

  • Patient completion of guideline-recommended surveillance tests for late effects of therapy

    The investigators will assess adherence to surveillance recommended by the Children's Oncology Group Long-term Follow-up Guidelines. The primary analysis will be on tests completed by patients, and not just ordered by physicians, because that is the most meaningful indicator of patient adherence to guidelines

    1-year post-randomization

  • Patient completion of guideline-recommended surveillance tests for late effects of therapy

    The investigators will assess adherence to surveillance recommended by the Children's Oncology Group Long-term Follow-up Guidelines. The primary analysis will be on tests completed by patients, and not just ordered by physicians, because that is the most meaningful indicator of patient adherence to guidelines

    2 years post-randomization

Secondary Outcomes (10)

  • Patient Knowledge:

    1-year post-randomization

  • Patient Knowledge:

    2-years post-randomization

  • Patient Healthcare Self-Efficacy

    1-year post-randomization

  • Patient Healthcare Self-Efficacy

    2-years post-randomization

  • Patient Activation

    1-year post-randomization

  • +5 more secondary outcomes

Other Outcomes (1)

  • Post-intervention qualitative interviews of participants and PCPs

    1-year post-randomization

Study Arms (2)

Multi-level Intervention of shared model of survivorship care

EXPERIMENTAL

1. Patient survivorship education via telehealth with the cancer center 2. Ongoing patient-tailored education program by MyChart within the EHR patient portal 3. Structured interactive phone communication between the research RN at the cancer center and community PCP clinic 4. In-person visit with the PCP clinic for survivorship care.

Behavioral: Multi-level Intervention of shared model of survivorship care

"Gold standard" cancer center-based survivorship clinic

ACTIVE COMPARATOR

In-person visit at specialty survivorship clinic

Other: Comparison Group

Interventions

1\) Patient survivorship education via telehealth with the cancer center- The research registered nurse (RN) will discuss the contents of the survivorship care plan and coordination between the cancer center and PCP clinic. 2) Ongoing patient-tailored education program by MyChart within the EHR patient portal- Patients will be asked to select survivorship topics of interest from a panel (e.g. school issues, fertility, fatigue, physical activity, single kidney health, emotions/coping) that will then be sent over 1 year. 3) Structured interactive phone communication between the research RN at the cancer center and community PCP clinic- The discussion will explain the patient's cancer history, tumor recurrence monitoring schedule, individualized risk of late effects and surveillance schedule, psychosocial challenges, health behaviors, and coordination between the cancer center and PCP clinic. 4) In-person visit with the PCP clinic for survivorship care.

Multi-level Intervention of shared model of survivorship care

Participants will be contacted by study staff at their cancer center to schedule an in-person visit at the survivorship clinic that will include a comprehensive history focused on cancer-related medical and psychosocial issues, physical examination, ordering of recommended surveillance for late effects, and delivery of hard copy of their survivorship care plan.

"Gold standard" cancer center-based survivorship clinic

Eligibility Criteria

Age2 Years+
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64), Older Adult (65+)

You may qualify if:

  • Diagnosed with any cancer at age \<21 years
  • Treated with chemotherapy and/or radiation
  • years status post-completion of all cancer-related therapy
  • Cancer-free with a life expectancy of ≥2 years
  • English- or Spanish-speaking (also applies to parent/guardian if patient age \<18 years)
  • No previous attendance at a specialty survivorship clinic
  • Followed at one of the 4 participating sites: Hackensack, University of North Carolina- Chapel Hill (UNC), University of Colorado Denver (CU), Miller's Children's and Women's Hospital Long Beach (MCWH)

You may not qualify if:

  • Active medical problems severe enough to not be eligible for receiving survivorship care with primary care provider at the time of recruitment

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (4)

MemorialCare Miller Children's & Women's Hospital Long Beach

Long Beach, California, 90806, United States

Location

Children's Hospital Colorado

Denver, Colorado, 80045, United States

Location

Hackensack University Medical Center

Hackensack, New Jersey, 07601, United States

Location

University of North Carolina Children's Hospital

Chapel Hill, North Carolina, 27514, United States

Location

Related Publications (1)

  • Ross WL, Santiago-Rivera Y, Tan MT, Roy MM, Bryant S, Appel BE, Casillas J, Demedis J, Smitherman AB, Horwitz LI, Hurtado-de-Mendoza A, Mendoza JA, Santacroce SJ, Kadan-Lottick NS. Design and methods of a multi-level intervention to improve adherence to childhood cancer survivorship care by partnering with primary care providers: The BRIDGES randomized controlled trial. Contemp Clin Trials. 2025 May;152:107859. doi: 10.1016/j.cct.2025.107859. Epub 2025 Feb 21.

Related Links

MeSH Terms

Conditions

NeoplasmsPatient Acceptance of Health CareBehaviorPatient Compliance

Condition Hierarchy (Ancestors)

Treatment Adherence and ComplianceHealth Behavior

Study Officials

  • Nina Kadan-Lottick, MD, MSPH

    Georgetown Lombardi Comprehensive Cancer Center

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
SINGLE
Who Masked
OUTCOMES ASSESSOR
Purpose
HEALTH SERVICES RESEARCH
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

June 16, 2022

First Posted

July 7, 2022

Study Start

January 1, 2023

Primary Completion

February 28, 2026

Study Completion (Estimated)

August 31, 2026

Last Updated

August 20, 2025

Record last verified: 2025-08

Data Sharing

IPD Sharing
Will share

The proposed research will include data from 240 survivors of childhood cancer. The dataset will include (1) demographic data; (2) cancer diagnosis and treatment data; (3) adherence to survivorship care data; (4) knowledge, self-efficacy, and activation data; and (5) process outcomes (feasibility, fidelity, acceptability) data. In compliance with the National Institutes of Health Principles and Guidelines document, the investigators will readily provide all relevant protocols, publications, and the underlying primary data (to the extent possible as guided by the IRB) supporting publications to other academic investigators upon request. To maintain the privacy of the human subjects, data will de-identified. Should any intellectual property arise that requires a patent, the investigators will ensure that the technology (materials and data) remains widely available to the academic research community.

Shared Documents
STUDY PROTOCOL, SAP, ICF
Time Frame
After analysis and publication of data addressed in the the aims set forth in R01 CA261881
Access Criteria
Request to study investigators and compliance with all IRB and institutional data usage agreement requirements.

Locations