NCT05447637

Brief Summary

This registry is for men who have prostate cancer and have had multigene panel hereditary testing. The registry will gather data on genetic testing results and how that information may change physician treatment or follow up recommendations. It will also gather data on the patient's experience with genetic testing, through a post-test survey to be completed 60-90days after results have been received and discussed with their provider.

Trial Health

87
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
1,000

participants targeted

Target at P75+ for all trials

Timeline
Completed

Started Nov 2019

Typical duration for all trials

Geographic Reach
1 country

19 active sites

Status
completed

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Start

First participant enrolled

November 1, 2019

Completed
1.7 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

July 1, 2021

Completed
11 months until next milestone

Study Completion

Last participant's last visit for all outcomes

May 31, 2022

Completed
1 month until next milestone

First Submitted

Initial submission to the registry

July 1, 2022

Completed
6 days until next milestone

First Posted

Study publicly available on registry

July 7, 2022

Completed
Last Updated

July 7, 2022

Status Verified

July 1, 2022

Enrollment Period

1.7 years

First QC Date

July 1, 2022

Last Update Submit

July 1, 2022

Conditions

Outcome Measures

Primary Outcomes (1)

  • Diagnostic yield of pathogenic and likely pathogenic genes in the patient population

    Identify the diagnostic yield of pathogenic/likely pathogenic variants in known cancer syndrome genes in patients with prostate cancer, using the Invitae 84 gene multi-cancer panel. These rates will be compared between the two cohorts.

    to be assessed at baseline only

Secondary Outcomes (2)

  • Evaluate the sensitivity of current NCCN criteria for germline genetic testing for identifying prostate cancer patients that have pathogenic/likely pathogenic variants

    at baseline only

  • Evaluate the impact of genetic test results on clinical management decisions

    60-90 days post test results received.

Study Arms (2)

Individuals who meet NCCN Testing Criteria

Diagnostic Test: Invitae multi-cancer gene panel

Individuals who do not meet NCCN Testing Criteria

Diagnostic Test: Invitae multi-cancer gene panel

Interventions

Invitae's multi-cancer panel tests for 84 genes associated with hereditary cancer risk.

Individuals who do not meet NCCN Testing CriteriaIndividuals who meet NCCN Testing Criteria

Eligibility Criteria

Age18 Years - 90 Years
Sexmale(Gender-based eligibility)
Gender Eligibility DetailsMen
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Men who have a diagnosis of prostate cancer who have not previously undergone testing for multi-gene hereditary cancer risk.

You may qualify if:

  • Men ages 18-90 who have been prescribed genetic testing as part of their clinical care
  • Have prostate cancer at any stage, either actively under treatment or being followed who either: 1. meet NCCN criteria for testing or 2. do not meet NCCN criteria for testing
  • Patients who are naive to clinical genetic testing for BRCA1/BRCA2 (single gene panel testing)

You may not qualify if:

  • Mental or cognitive impairment that interferes with ability to provide informed consent

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (19)

Genesis Healthcare Partners

San Diego, California, 92123, United States

Location

Invitae

San Francisco, California, 94103, United States

Location

Department of Bioengineering and Therapeutic Sciences, University of California San Francisco

San Francisco, California, 94158, United States

Location

Volunteer Faculty, University of California San Francisco

San Francisco, California, 94158, United States

Location

Colorado Urology

Lakewood, Colorado, 80228, United States

Location

Advanced Urology Institute

St. Petersburg, Florida, 33710, United States

Location

Florida Urology Partners

Tampa, Florida, 33606, United States

Location

TGH Cancer Institute

Tampa, Florida, 33606, United States

Location

North Georgia Urology

Dalton, Georgia, 30720, United States

Location

Associated Urological Specialists

Chicago Ridge, Illinois, 60415, United States

Location

University Urology Associates of New Jersey

Hamilton, New Jersey, 08690, United States

Location

Perlmutter Cancer Center, NYU Langone Health, New York

New York, New York, 10016, United States

Location

Associated Medical Professionals

Syracuse, New York, 13210, United States

Location

MidLantic Urology

Bala-Cynwyd, Pennsylvania, 19004, United States

Location

Carolina Urologic Research Center

Myrtle Beach, South Carolina, 29572, United States

Location

Urology Associates, P.C.

Nashville, Tennessee, 37211, United States

Location

Urology Partners

Arlington, Texas, 76017, United States

Location

Urology Austin

Austin, Texas, 78759, United States

Location

Urosurgery Houston

Houston, Texas, 77002, United States

Location

Biospecimen

Retention: NONE RETAINED

Blood samples provided for clinical genetic testing that include DNA.

MeSH Terms

Conditions

Prostatic Neoplasms

Condition Hierarchy (Ancestors)

Genital Neoplasms, MaleUrogenital NeoplasmsNeoplasms by SiteNeoplasmsGenital Diseases, MaleGenital DiseasesUrogenital DiseasesProstatic DiseasesMale Urogenital Diseases

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Target Duration
6 Months
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

July 1, 2022

First Posted

July 7, 2022

Study Start

November 1, 2019

Primary Completion

July 1, 2021

Study Completion

May 31, 2022

Last Updated

July 7, 2022

Record last verified: 2022-07

Data Sharing

IPD Sharing
Will not share

No plan to share IPD at this time.

Locations