NCT05217407

Brief Summary

This is a registry study that aims to collect patients' data with advanced-stage rare cancer in Asia-Pacific region. Data includes clinical information, details of treatment, prognosis, pathological diagnosis and genetic biomarkers by next-generation sequencing. The relationship between cancer types and prognosis, the effect of treatments, and the cancer type-specific incidence of genomic alterations will be investigated to discover more specific and effective treatment.

Trial Health

83
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
1,000

participants targeted

Target at P75+ for all trials

Timeline
47mo left

Started Nov 2021

Longer than P75 for all trials

Geographic Reach
7 countries

18 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress53%
Nov 2021Mar 2030

First Submitted

Initial submission to the registry

October 24, 2021

Completed
1 month until next milestone

Study Start

First participant enrolled

November 30, 2021

Completed
2 months until next milestone

First Posted

Study publicly available on registry

February 1, 2022

Completed
5.2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

March 31, 2027

Expected
3 years until next milestone

Study Completion

Last participant's last visit for all outcomes

March 31, 2030

Last Updated

March 22, 2024

Status Verified

March 1, 2024

Enrollment Period

5.3 years

First QC Date

October 24, 2021

Last Update Submit

March 20, 2024

Conditions

Keywords

Rare cancerRare subtypeRegistryAsiaNext-generation sequencing

Outcome Measures

Primary Outcomes (2)

  • Overall incidence of any genomic alteration in overall population

    Overall incidence of any genomic alteration in overall population

    1 year

  • Overall incidence of any genomic alteration in patients with a certain cancer type

    Overall incidence of any genomic alteration in patients with a certain cancer type

    1 year

Secondary Outcomes (2)

  • Incidence of individual genomic alteration in overall population

    1 year

  • Incidence of individual genomic alteration in patients with a certain cancer type

    1 year

Other Outcomes (13)

  • Biomarker positive proportion in overall population

    1 year

  • Biomarker positive proportion in patients with a certain cancer type

    1 year

  • Number of somatic variants within exons in overall population

    1 year

  • +10 more other outcomes

Study Arms (2)

Rare cancer

Malignancies with an annual incidence of less than 6 cases per 100,000 population; malignancies categorized as rare cancers in the European RARECARE report; malignancies that are difficult to develop treatments; common cancers with rare tissue subtypes; common cancers that can be regarded as rare based on biological demographics such as age or sex; and cancers of unknow primary are eligible for this study.

Other: Genomic sequence

Cholangiocarcinoma cohort

This study is a part of MASTER KEY Asia study and designed to be conducted on the patients of cholangiocarcinoma only. The primary endpoint is assigned to the frequency of FGFR2 fusion gene positive cholangiocarcinoma detected by fluorescence in situ hybridization (FISH) in Asian countries. The genetic analysis is performed not only by FISH, but also by next generation sequencing (NGS), so that genetic alterations other than the FGFR2 fusion gene in alterations can be confirmed. To improve outcomes, collecting clinical information is very important to study the relationship between genetic alterations and prognosis, effect of treatments, and the incidence of genomic alterations in cholangiocarcinoma to discover more specific and effective treatment.

Other: Genomic sequence

Interventions

Genomic sequence

Cholangiocarcinoma cohortRare cancer

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Malignancies with an annual incidence of less than 6 cases per 100,000 population; malignancies categorized as rare cancers in the European RARECARE report; malignancies that are difficult to develop treatments; common cancers with rare tissue subtypes; common cancers that can be regarded as rare based on biological demographics such as age or sex; and cancers of unknow primary are eligible for this study.

You may qualify if:

  • Patients with a histological diagnosis of rare cancer, cancer of unknown primary origin, or cancer of rare tissue subtypes of common cancers. (Defined in protocol.)
  • Patients with Advanced stage cancer.

You may not qualify if:

  • \. Patients with complications of cognitive impairment.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (18)

National Cancer Center Hospital, Japan

Chuo-ku, Tokyo, 104-0045, Japan

RECRUITING

Hospital Sultan Ismail

Johor Bahru, Johor, Malaysia

RECRUITING

Hospital Pulau Pinang

Pulau Pinang, Pulau Pinang, Malaysia

RECRUITING

Sarawak General Hospital

Kuching, Sarawak, 93586, Malaysia

RECRUITING

Hospital Kuala Lumpur

Kuala Lumpur, 50586, Malaysia

RECRUITING

University Malaya Medical Center

Kuala Lumpur, Malaysia

RECRUITING

Institut Kanser negara

Putrajaya, 62250, Malaysia

RECRUITING

St. Luke's Medical Center

Manila, 1102, Philippines

RECRUITING

National Cancer Center Korea

Seoul, South Korea

RECRUITING

National Taiwan University Hospital

Taipei, Zhongzheng, 100225, Taiwan

RECRUITING

Taipei Veterans General Hospital

Taipei, Taiwan

RECRUITING

Mahidol University by Faculty of Medicine, Ramathibodi Hospita

Bangkok, Thailand

RECRUITING

Mahidol University by Faculty of Medicine, Siriraj Hospital

Bangkok, Thailand

RECRUITING

Maharaj Nakorn Chiang Mai Hospital

Chiang Mai, Thailand

NOT YET RECRUITING

Faculty of Medicine, Prince of Songkla University

Hat Yai, Thailand

RECRUITING

Khon Kaen University by Faculty of Medicine, Srinagarind Hospital

Khon Kaen, Thailand

RECRUITING

National Cancer Vietnam

Hanoi, Vietnam

RECRUITING

Ho Chi Minh City Oncology Hospital

Ho Chi Minh City, Vietnam

NOT YET RECRUITING

Related Publications (1)

  • Okuma HS, Yonemori K, Narita SN, Sukigara T, Hirakawa A, Shimizu T, Shibata T, Kawai A, Yamamoto N, Nakamura K, Nishida T, Fujiwara Y. MASTER KEY Project: Powering Clinical Development for Rare Cancers Through a Platform Trial. Clin Pharmacol Ther. 2020 Sep;108(3):596-605. doi: 10.1002/cpt.1817. Epub 2020 Apr 7.

    PMID: 32112563BACKGROUND

Biospecimen

Retention: SAMPLES WITH DNA

whole blood, tissue

Study Officials

  • Noboru Yamamoro, MD, PhD

    National Cancer Center Hospital, Japan

    PRINCIPAL INVESTIGATOR
  • Kan Yonemori, MD, PhD

    National Cancer Center Hospital, Japan

    STUDY DIRECTOR
  • Kenichi Nakamura, MD, PhD

    National Cancer Center Hospital, Japan

    STUDY DIRECTOR
  • Yuta Maruki, MD

    National Cancer Center Hospital, Japan

    STUDY DIRECTOR
  • Takuji Okusaka, MD, PhD

    National Cancer Center Hospital, Japan

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Study Design

Study Type
observational
Observational Model
OTHER
Time Perspective
PROSPECTIVE
Target Duration
3 Years
Sponsor Type
OTHER GOV
Responsible Party
SPONSOR

Study Record Dates

First Submitted

October 24, 2021

First Posted

February 1, 2022

Study Start

November 30, 2021

Primary Completion (Estimated)

March 31, 2027

Study Completion (Estimated)

March 31, 2030

Last Updated

March 22, 2024

Record last verified: 2024-03

Data Sharing

IPD Sharing
Will not share

Locations