NCT05182216

Brief Summary

Surveys of patients to identify primary social media sources for health news.

Trial Health

15
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Timeline
Completed

Started Jan 2023

Shorter than P25 for all trials

Status
withdrawn

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

November 22, 2021

Completed
2 months until next milestone

First Posted

Study publicly available on registry

January 10, 2022

Completed
12 months until next milestone

Study Start

First participant enrolled

January 1, 2023

Completed
12 months until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 31, 2023

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

December 31, 2023

Completed
Last Updated

January 6, 2023

Status Verified

January 1, 2023

Enrollment Period

12 months

First QC Date

November 22, 2021

Last Update Submit

January 4, 2023

Conditions

Survey, Family Life

Outcome Measures

Primary Outcomes (1)

  • Social Media Use in Sickle Cell Patients

    Surveys. The survey will have a variety of social media options and ask participants to select the medium used to receive information on health, news, and entertainment.

    six months

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersYes
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Adults with diagnosis of sickle cell disease

You may qualify if:

  • sickle cell disease diagnosis

You may not qualify if:

  • negative sickle cell disease diagnosis

Contact the study team to confirm eligibility.

Sponsors & Collaborators

0

Study Design

Study Type
observational
Observational Model
ECOLOGIC OR COMMUNITY
Time Perspective
CROSS SECTIONAL
Sponsor Type
OTHER
Responsible Party
PRINCIPAL INVESTIGATOR
PI Title
Program Manager

Study Record Dates

First Submitted

November 22, 2021

First Posted

January 10, 2022

Study Start

January 1, 2023

Primary Completion

December 31, 2023

Study Completion

December 31, 2023

Last Updated

January 6, 2023

Record last verified: 2023-01