NCT05126849

Brief Summary

Outcomes for patients with severe aplastic anemia (SAA) who are refractory to first-line immunosuppressive therapy (IST) and who lack a matched unrelated donor (MUD) remain poor. Recently, the use of eltrombopag (ELT) has shown blood count improvements in 40% of these patients. However, most refractory patients do not respond to ELT or other second-line treatment and are therefore exposed to life-threatening infections, and bleeding. During the past 2 decades, there has been a significant decrease in infection-related mortality in patients with SAA unresponsive to initial IST but clonal evolution including paroxysmal nocturnal hemoglobinuria (PNH), myelodysplastic syndrome (MDS), and acute myeloid leukemia (AML) still occur in the long-term with a grim prognosis. Overall, the overall survival of such patients with acquired refractory SAA to ELT is about 60-70% at 2 years. Hematopoietic stem cell transplantation (HSCT) using alternative donor sources (i.e., mismatched unrelated donors, cord blood (CBT), and haplo-identical family donors) may be curative in patients with refractory SAA, despite carrying much higher rates of complications than in transplantations from matched related or unrelated donors. Recently, our group showed that CBT is a valuable curative option for young adults with refractory SAA. However, not all patients have available CB and CBT treatment related mortality is high in adult patients. Haploidentical (haplo) related donor Stem Cell Transplantation (haplo-SCT) have improved dramatically outcomes using T-cell replete grafts with administration of post-transplantation cyclophosphamide (PTCy). Preliminary results in a little number of patients with refractory SAA at Kings college (London, UK) and John Hopkins (Baltimore, USA) seem promising. The investigators retrospectively analyzed data from 36 patients (median age 42 years) transplanted between 2010 and 2017 in Europe on behalf of the SAA working party of the European Blood and Marrow Transplantation group. The 1-year overall survival was about 80% suggesting that this approach might be a valid option in this particular poor clinical situation. The main objective of this study is to demonstrate a benefit in term of the 2-year overall survival rate from 60% (historical rates in patients with acquired refractory idiopathic aplastic anemia) up to 80% using haplo-SCT with PTCy.

Trial Health

77
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
31

participants targeted

Target at P25-P50 for phase_2

Timeline
8mo left

Started Jan 2022

Longer than P75 for phase_2

Geographic Reach
1 country

35 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

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Study Timeline

Key milestones and dates

Study Progress87%
Jan 2022Jan 2027

First Submitted

Initial submission to the registry

October 15, 2021

Completed
1 month until next milestone

First Posted

Study publicly available on registry

November 19, 2021

Completed
2 months until next milestone

Study Start

First participant enrolled

January 6, 2022

Completed
5 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

January 6, 2027

Expected
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

January 6, 2027

Last Updated

November 24, 2023

Status Verified

November 1, 2023

Enrollment Period

5 years

First QC Date

October 15, 2021

Last Update Submit

November 21, 2023

Conditions

Keywords

Acquired refractory idiopathic aplastic anemiaHaplo identical hematopoietic stem cell transplantationPost-transplantation cyclophosphamide

Outcome Measures

Primary Outcomes (1)

  • Overall survival rate

    at 2 years

Secondary Outcomes (52)

  • Graft failure incidence

    at 2 years

  • Neutrophils engraftment

    at day 100

  • Platelets engraftment

    at day 100

  • Absolute numbers of neutrophils

    at 1 month

  • Absolute numbers of neutrophils

    at 2 months

  • +47 more secondary outcomes

Study Arms (1)

Haploidentical allogeneic hematopoietic stem cell transplantation.

EXPERIMENTAL

1. Conditioning regimen Fludarabine (30mg/m2/day i.v: day -6 to day -2), pre-transplant cyclophosphamide (14.5 mg/kg/day i.v: day -6 and day -5), and Total Body Irradiation (2 Gray on day-1) 2. Stem cell source Bone Marrow 3. GVHD Prophylaxis Rabbit ATG dosed at 0.5 mg/kg on day -9 and 2 mg/kg on days -8 and -7, Cyclophosphamide 50 mg/Kg/day at D+3 and D+4, Tacrolimus (residual 8-12 microg/L) and mycophenolate (MMF) from D+5. In absence of GvHD, MMF will be stopped at D35 and tacrolimus at day 365. 4. Prevention of EBV reactivation Rituximab 150mg/m2 intravenously at Day+5 post HSCT, Each infusion of Rituximab will be preceded by administration of anti-pyretic and an antihistaminic, e.g. paracetamol and diphenhydramine.

Other: Allogenic transplantation

Interventions

1. Conditioning regimen Fludarabine (30mg/m2/day i.v: day -6 to day -2), pre-transplant cyclophosphamide (14.5 mg/kg/day i.v: day -6 and day -5), and Total Body Irradiation (2 Gray on day-1) 2. Stem cell source Bone Marrow 3. GVHD Prophylaxis Rabbit ATG dosed at 0.5 mg/kg on day -9 and 2 mg/kg on days -8 and -7, Cyclophosphamide 50 mg/Kg/day at D+3 and D+4, Tacrolimus (residual 8-12 microg/L) and mycophenolate (MMF) from D+5. In absence of GvHD, MMF will be stopped at D35 and tacrolimus at day 365. 4. Prevention of EBV reactivation Rituximab 150mg/m2 intravenously at Day+5 post HSCT, Each infusion of Rituximab will be preceded by administration of anti-pyretic and an antihistaminic, e.g. paracetamol and diphenhydramine.

Haploidentical allogeneic hematopoietic stem cell transplantation.

Eligibility Criteria

Age3 Years - 35 Years
Sexall
Healthy VolunteersNo
Age GroupsChild (0-17), Adult (18-64)

You may qualify if:

  • Aged from 3 to 35 years old
  • Suffering from refractory acquired idiopathic aplastic anemia (at least one course of immunosuppression with anti-thymocyte globulin)
  • Absence of geno-identical donor or 10/10 matched donor
  • With identification of a haploidentical donor (brother, sister, parents, adult children or cousin)
  • Absence of donor specific antibody detected in the patient with a MFI ≥ 1500 (antibodies directed towards the distinct haplotype between donor and recipient)
  • With usual criteria for HSCT :
  • ECOG(Eastern Cooperative Oncology Group) ≤ 2
  • No severe and uncontrolled infection
  • Cardiac function compatible with high dose of cyclophosphamide
  • Adequate organ function: ASAT(aspartate transaminase) and ALAT (alanine aminotransferase) ≤ 2.5 N (the norm), total bilirubin ≤ 2N, creatinine \< 150 μmol/L
  • With health insurance coverage
  • Contraception methods must be prescribed during all the duration of the research. Women and men of childbearing age must use contraceptive methods within 12 months and 6 months after the last dose of cyclophosphamide, respectively.
  • Having signed a written informed consent (2 parents for patients aged less than 18)

You may not qualify if:

  • With morphologic evidence of clonal evolution (patients with isolated bone marrow cytogenetic abnormalities are also eligible excepted chromosome 7 abnormalities and complex karyotype)
  • With uncontrolled infection
  • With seropositivity for HIV or HTLV-1 (Human T cell Leukemia) or active hepatitis B or C defined by a positive PCR (polymerase chain reaction) HBV (hepatitis B virus) or HCV (hepatitis C virus) and associated hepatic cytolysis
  • Cancer in the last 5 years (except basal cell carcinoma of the skin or "in situ" carcinoma of the cervix)
  • Pregnant (βHCG positive) or breast-feeding.
  • Who received live attenuated vaccine within 2 months before transplantation and during the research
  • Uncontrolled coronary insufficiency, recent myocardial infarction \<6 month, current manifestations of heart failure, uncontrolled cardiac rhythm disorders, ventricular ejection fraction \<50%
  • With heart failure according to NYHA (New York Heart Association) (II or more)
  • Preexisting acute hemorrhagic cystitis
  • Renal failure with creatinine clearance \<30ml / min
  • With urinary tract obstruction
  • Who receive the following treatments Phenytoin, Pentostatin, inhibitor of adenoside)
  • Who have any debilitating medical or psychiatric illness, which preclude understanding the inform consent as well as optimal treatment and follow-up
  • Under tutorship or curatorship

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (35)

CHU Amiens

Amiens, France

RECRUITING

CHU Angers

Angers, France

RECRUITING

CHU Besancon

Besançon, France

RECRUITING

CHU Bordeaux

Bordeaux, France

RECRUITING

Hôpital du Haut-Lévêque

Bordeaux, France

RECRUITING

CHU Caen

Caen, France

RECRUITING

Hopital Percy

Clamart, France

RECRUITING

CHU Clermont

Clermont-Ferrand, France

RECRUITING

CHU-Estaing_Clermont Ferrand

Clermont-Ferrand, France

RECRUITING

Henri Mondor

Créteil, France

RECRUITING

CHU Grenoble

Grenoble, France

RECRUITING

CHU Lille

Lille, France

RECRUITING

CHU Lille

Lille, France

RECRUITING

CHU Limoges

Limoges, France

RECRUITING

CHU Lyon Sud

Lyon, France

RECRUITING

IHOP, CHU Lyon

Lyon, France

RECRUITING

Hopital La Timone

Marseille, France

RECRUITING

CHU Montpellier

Montpellier, France

RECRUITING

CHU Montpellier

Montpellier, France

RECRUITING

CHU Nancy

Nancy, France

RECRUITING

CHU Nantes

Nantes, France

RECRUITING

CHU Nantes

Nantes, France

RECRUITING

CHU Nice

Nice, France

RECRUITING

Hopital Necker

Paris, France

RECRUITING

Hopital Robert Debré

Paris, France

RECRUITING

Hôpital de La Pitié Salpetriere

Paris, France

RECRUITING

Hôpital Saint Antoine

Paris, France

RECRUITING

Hôpital Saint Louis

Paris, France

RECRUITING

CHU Poitiers

Poitiers, France

RECRUITING

CHU Rennes

Rennes, France

RECRUITING

CHU Rennes

Rennes, France

RECRUITING

Crlcc Henri Becquerel Rouen

Rouen, France

RECRUITING

ICLN_Saint Priest En Jarez

Saint-Priest-en-Jarez, France

RECRUITING

CHRU Strasbourg

Strasbourg, France

RECRUITING

CHU Toulouse

Toulouse, France

RECRUITING

MeSH Terms

Conditions

Anemia, Aplastic

Condition Hierarchy (Ancestors)

AnemiaHematologic DiseasesHemic and Lymphatic DiseasesBone Marrow Failure DisordersBone Marrow Diseases

Central Study Contacts

Regis Peffault de Latour, Pr

CONTACT

Jérôme Lambert, Pr

CONTACT

Study Design

Study Type
interventional
Phase
phase 2
Allocation
NA
Masking
NONE
Purpose
OTHER
Intervention Model
SINGLE GROUP
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

October 15, 2021

First Posted

November 19, 2021

Study Start

January 6, 2022

Primary Completion (Estimated)

January 6, 2027

Study Completion (Estimated)

January 6, 2027

Last Updated

November 24, 2023

Record last verified: 2023-11

Locations