Integrated Parkinson Care Networks : Care in Parkinson Disease
ICARE-PD
1 other identifier
interventional
50
1 country
1
Brief Summary
The researchers wish to determine what are patients/care partners priorities in terms of care delivery based at home/community and define the envisioning care delivery model that support both social care and medical care from the perspective of people living with Parkinson.
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at P50-P75 for not_applicable parkinson-disease
Started Jul 2021
1 active site
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
Click on a node to explore related trials.
Study Timeline
Key milestones and dates
First Submitted
Initial submission to the registry
May 31, 2021
CompletedFirst Posted
Study publicly available on registry
June 7, 2021
CompletedStudy Start
First participant enrolled
July 22, 2021
CompletedPrimary Completion
Last participant's last visit for primary outcome
December 22, 2021
CompletedStudy Completion
Last participant's last visit for all outcomes
December 22, 2022
CompletedJune 7, 2021
May 1, 2021
5 months
May 31, 2021
May 31, 2021
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
Narrative interviews
Identify the expectations and priorities of people living with Parkinson's disease for medical-social benefits.
1 day
Study Arms (1)
Narrative interviews
OTHERNarratives are stories that are based on the unfolding of events or actions from the perspective of a patient's life experience. Patients and care partners tell their stories of illness and how they live with illness over time . The researcher could focus on the care priorities, the support needed, the information needed and the challenges faced. The narrative interview will be used to get an overview of the patient's trajectory.
Interventions
During the workshop, the participants will collectively create a common representation of the patient journey and co-design the envisioning care delivery model that support both social care and medical care.
Eligibility Criteria
You may qualify if:
- Major patients, over 18 and under 65 years of age, Diagnosed at different stages of Parkinson's disease (recent, intermediate, advanced) Understands and speaks French to be able to answer questionnaires and interviews Affiliated to a social security scheme Patient who did not oppose participation in the study. Where possible, we will vary the profiles of people: socio-demography, gender, age, etc.
You may not qualify if:
- Patient and/or participant objecting to the research Pregnant and/or nursing women Persons under justice, guardianship or curatorship In-patient or intensive care patients
Contact the study team to confirm eligibility.
Sponsors & Collaborators
Study Sites (1)
CHU de Toulouse
Toulouse, 31000, France
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Officials
- PRINCIPAL INVESTIGATOR
Olivier Rascol, MD PHD
University Hospital, Toulouse
Central Study Contacts
Study Design
- Study Type
- interventional
- Phase
- not applicable
- Allocation
- NA
- Masking
- NONE
- Purpose
- SUPPORTIVE CARE
- Intervention Model
- SINGLE GROUP
- Sponsor Type
- OTHER
- Responsible Party
- SPONSOR
Study Record Dates
First Submitted
May 31, 2021
First Posted
June 7, 2021
Study Start
July 22, 2021
Primary Completion
December 22, 2021
Study Completion
December 22, 2022
Last Updated
June 7, 2021
Record last verified: 2021-05