NCT04574063

Brief Summary

A randomised controlled trial in which women discharged from the symptomatic breast clinic, who are above population risk (according to Tyrer Cuzick) will be asked to create lifestyle related goals. They will be told their estimated risk of developing breast cancer and will be randomised to one of three interventions:

  • Breast cancer risk leaflet only
  • lifestyle website
  • lifestyle website plus group coaching. Fifty per cent of women will also be randomised to have Single Nucleotide Polymorphisms (SNPs) performed, and these will be incorporated into their risk score. The primary end point will be whether or not women achieve their lifestyle goal.

Trial Health

43
At Risk

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Trial has exceeded expected completion date
Enrollment
240

participants targeted

Target at P75+ for not_applicable breast-cancer

Timeline
Completed

Started Sep 2020

Typical duration for not_applicable breast-cancer

Geographic Reach
1 country

1 active site

Status
unknown

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

First Submitted

Initial submission to the registry

September 7, 2020

Completed
9 days until next milestone

Study Start

First participant enrolled

September 16, 2020

Completed
19 days until next milestone

First Posted

Study publicly available on registry

October 5, 2020

Completed
3.2 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 1, 2023

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

December 1, 2023

Completed
Last Updated

January 18, 2023

Status Verified

January 1, 2023

Enrollment Period

3.2 years

First QC Date

September 7, 2020

Last Update Submit

January 17, 2023

Conditions

Outcome Measures

Primary Outcomes (1)

  • Goal achievement

    Whether women have achieved their lifestyle goals. Proportion answering "yes" to a binary question: Did you achieve the goal you set? Compared between the three arms.

    Women will be asked this 12 months after entering the study

Secondary Outcomes (9)

  • To assess the acceptability of women to find out their personalised breast cancer risk and to commit to making a change in a modifiable risk factor

    Measured when recruitment is complete, estimated at 3 months from start date

  • To assess the acceptability of randomisation to different arms of intervention

    Measured when the final participant has completed 12 months in the study, estimated 15 months from start date

  • To assess the impact of SNP testing on changes in behavioural risk factors

    Measured when the final participant has completed 12 months in the study estimated 15 months from start date

  • To assess the impact of the different interventions on changes in behavioural risk factors

    Measured when the final participant has completed 12 months in the study estimated 15 months from start date

  • To assess the impact of knowledge of breast cancer risk on cancer anxiety scores

    Measured when the final participant has completed 12 months in the study estimated 15 months from start date

  • +4 more secondary outcomes

Study Arms (6)

Breast cancer risk leaflet only

NO INTERVENTION

Breast cancer risk leaflet PLUS SNPs

NO INTERVENTION

Lifestyle website only

EXPERIMENTAL
Behavioral: Lifestyle intervention to reduce breast cancer risk

Lifestyle website PLUS SNPs

EXPERIMENTAL
Behavioral: Lifestyle intervention to reduce breast cancer risk

Lifestyle website PLUS group coaching

EXPERIMENTAL
Behavioral: Lifestyle intervention to reduce breast cancer risk

Lifestyle website PLUS group coaching PLUS SNPs

EXPERIMENTAL
Behavioral: Lifestyle intervention to reduce breast cancer risk

Interventions

Women will be educated about lifestyle factors which increase breast cancer risk. They will also be guided through an online goal setting process.

Lifestyle website PLUS SNPsLifestyle website PLUS group coachingLifestyle website PLUS group coaching PLUS SNPsLifestyle website only

Eligibility Criteria

Age30 Years - 60 Years
Sexfemale
Healthy VolunteersNo
Age GroupsAdult (18-64)

You may qualify if:

  • Female
  • Aged between 30 and 60 years
  • Attending the symptomatic breast clinic at RMH Sutton or Chelsea OR the family history clinics at RMH Sutton or Chelsea, or has heard about the study through other means such as (but not limited to), friends who have been diagnosed with cancer, friends who are already taking part in the PIONEER study, social media, mainstream media, fliers through the doors of houses in the area of RMH.
  • Benign or B3 diagnosis if participant has attended clinic
  • Agree to receive their personalised breast cancer risk
  • Available to participate in a 1 year risk prevention programme
  • Able to attend the Royal Marsden for a blood test if randomised to this group

You may not qualify if:

  • Malignant Diagnosis
  • Does not want to find out personalised breast cancer risk
  • Not available to participate for the full year
  • NOTE: after risk assessment, women who have a breast cancer risk lower than that of population level will be excluded from participating in the behavioural change elements.

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

The Royal Marsden Hospital NHS Foundation Trust

Sutton, SM2 5PT, United Kingdom

Location

Related Publications (1)

  • Law R, Krupa K, Rusby J. Preventative therapy for breast cancer: a clinical experience. Breast Cancer Res Treat. 2023 Sep;201(2):205-213. doi: 10.1007/s10549-023-06985-1. Epub 2023 Jun 19.

MeSH Terms

Conditions

Breast NeoplasmsRisk Reduction Behavior

Condition Hierarchy (Ancestors)

Neoplasms by SiteNeoplasmsBreast DiseasesSkin DiseasesSkin and Connective Tissue DiseasesBehavior

Study Officials

  • Jennifer Rusby

    The Royal Marsden Hospital

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
NONE
Purpose
PREVENTION
Intervention Model
PARALLEL
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

September 7, 2020

First Posted

October 5, 2020

Study Start

September 16, 2020

Primary Completion

December 1, 2023

Study Completion

December 1, 2023

Last Updated

January 18, 2023

Record last verified: 2023-01

Data Sharing

IPD Sharing
Will not share

Locations