NCT04558593

Brief Summary

One third of individuals aged \>60 years will be diagnosed with at least one renal cyst following abdominal imaging. These cystic lesions are categorized according to the Bosniak classification which categorizes cysts according to their degree of complexity and risk of malignancy. Growing evidence suggests that a significant proportion of Bosniak III and IV cysts are benign and that the malignant ones present low metastatic potential. Since renal surgery carries substantial morbidity (20%) and potential mortality (0.5%), active surveillance has gained attention as a potential tradeoff to surgery to overcome overtreatment. Therefore, prospective studies of long-term follow-up are needed to confirm the oncologic safety of this strategy for patients with Bosniak III/IV cysts. This is an multicenter prospective observational longitudinal study. The main objective is to compare the 5-year follow-up cancer-specific survival between the active surveillance and the surgical groups.

Trial Health

80
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
330

participants targeted

Target at P75+ for all trials

Timeline
65mo left

Started Feb 2021

Longer than P75 for all trials

Geographic Reach
2 countries

18 active sites

Status
recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress49%
Feb 2021Sep 2031

First Submitted

Initial submission to the registry

August 31, 2020

Completed
22 days until next milestone

First Posted

Study publicly available on registry

September 22, 2020

Completed
4 months until next milestone

Study Start

First participant enrolled

February 2, 2021

Completed
8.9 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

December 20, 2029

Expected
1.8 years until next milestone

Study Completion

Last participant's last visit for all outcomes

September 20, 2031

Last Updated

June 22, 2025

Status Verified

January 1, 2025

Enrollment Period

8.9 years

First QC Date

August 31, 2020

Last Update Submit

June 17, 2025

Conditions

Keywords

renal cystcomplex cystBosniak IIIBosniak IVrenal massesactive surveillancemonitoringsurgery

Outcome Measures

Primary Outcomes (1)

  • 5-year cancer-specific survival

    Defined as kidney cancer survival 5 years after the enrollment

    from the date of enrollment (defined by signed consent) to the end of follow-up (up to 5 years)

Secondary Outcomes (14)

  • 5-year overall survival

    from the date of enrollment (defined by signed consent) to the end of follow-up (up to 5 years)

  • 2-year overall survival

    from the date of enrollment (defined by signed consent) up to 2 years of follow-up

  • 2-year cancer-specific survival

    from the date of enrollment (defined by signed consent) up to 2 years of follow-up

  • Treatment-free survival

    from the date of enrollment (defined by signed consent) up to 2 and 5 years of follow-up

  • Discontinuation rate

    from the date of enrollment (defined by signed consent) to the end of follow-up (up to 5 years)

  • +9 more secondary outcomes

Other Outcomes (1)

  • Radiomic

    On diagnostic imaging, up to 12 months prior consent form

Study Arms (2)

active surveillance

220 participants will be included in the active surveillance group. Active surveillance is close monitoring (every 6 months the first 3 years following diagnosis and annually the following years), done per standard of care Close monitoring include: abdominal imaging (ultrasound, CT or MRI), chest X-ray or CT scan and blood tests

Procedure: Active surveillance

surgery

110 participants will be included in the surgery group. Surgery is done per standard of care. The type of surgery is at the discretion of the treating physician and may include: partial resection, total resection, thermoablation.

Procedure: Surgery

Interventions

Per standard of care: Imaging and blood tests every 6 months (3 first years) and annually (following years)

active surveillance
SurgeryPROCEDURE

Per standard of care: partial or full resection of the kidney, imaging annually

surgery

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)
Sampling MethodNon-Probability Sample
Study Population

Patients incidentally diagnosed with a Bosniak III or IV cysts and who opted to be managed by either surgery or active surveillance

You may qualify if:

  • years old and older;
  • diagnosed with a Bosniak III or IV cyst (classification 2019);
  • size of cystic component ≤7cm;
  • cyst wall/septum nodule (obtuse margin of protrusion) \<10mm (perpendicular axis) or nodular/solid component ≤2 cm in any axis;
  • life expectancy \>5 years (by physician's estimate);
  • new diagnosis ≤ 12 months from accrual date;
  • currently asymptomatic from the disease;
  • deemed fit enough for surgery;
  • willingness and ability to complete questionnaires in either French or English;
  • able and willing to provide informed consent

You may not qualify if:

  • history of a hereditary renal cancer syndrome;
  • presence of polycystic kidney disease;
  • any prior history of RCC;
  • received systemic therapy for another malignancy within the 12 months prior to accrual;
  • uncontrolled medical illness including infections, hypertension, arrhythmias, heart failure, or myocardial infarction/unstable angina within 6 months that would predispose to immediate surgical therapy;
  • metastatic disease or evidence of vascular or nodal disease;
  • unwillingness to undergo monitoring and imaging studies;
  • any contra-indication(s) to contrast-enhanced imaging (estimated glomerular filtration rate \<30min/mL)

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (18)

Prostate Cancer Center

Calgary, Alberta, T2V 1P9, Canada

RECRUITING

Northern Alberta Urology Center

Edmonton, Alberta, T6G 1Z1, Canada

RECRUITING

Vancouver Prostate Centre

Vancouver, British Columbia, Canada

RECRUITING

Mens Health Clinic

Winnipeg, Manitoba, Canada

RECRUITING

Nova Scotia Health Authority

Halifax, Nova Scotia, Canada

RECRUITING

St-Joseph's Hospital

Hamilton, Ontario, Canada

RECRUITING

The Ottawa Hospital

Ottawa, Ontario, Canada

RECRUITING

Thunder Bay Health Sciences Center

Thunder Bay, Ontario, Canada

RECRUITING

Princess Margaret Hospital

Toronto, Ontario, Canada

RECRUITING

Woodstock hospital

Woodstock, Ontario, Canada

RECRUITING

Centre intégré de santé et de services sociaux de Chaudière-Appalaches - Hôtel-Dieu de Lévis

Lévis, Quebec, G6V 3Z1, Canada

RECRUITING

CHUM

Montreal, Quebec, Canada

RECRUITING

Hôpital Maisonneuve-Rosemont (CISSS-EIMtl)

Montreal, Quebec, Canada

RECRUITING

McGill University Health Centre

Montreal, Quebec, Canada

RECRUITING

CHU de Québec - Université Laval

Québec, Quebec, Canada

RECRUITING

Centre de recherche du Centre hospitalier Universitaire de Sherbrooke

Sherbrooke, Quebec, J1H 5N4, Canada

RECRUITING

CIUSSS Mauricie-Centre-du-Québec

Trois-Rivières, Quebec, Canada

RECRUITING

CHU Bordeaux (URO-CCR)

Bordeaux, France

RECRUITING

MeSH Terms

Interventions

Watchful WaitingSurgical Procedures, Operative

Intervention Hierarchy (Ancestors)

Outcome Assessment, Health CareOutcome and Process Assessment, Health CareQuality of Health CareHealth Services Administration

Study Officials

  • Patrick O Richard, MD,MSc,FRCSC

    Université de Sherbrooke

    PRINCIPAL INVESTIGATOR

Central Study Contacts

Study Design

Study Type
observational
Observational Model
COHORT
Time Perspective
PROSPECTIVE
Sponsor Type
OTHER
Responsible Party
SPONSOR

Study Record Dates

First Submitted

August 31, 2020

First Posted

September 22, 2020

Study Start

February 2, 2021

Primary Completion (Estimated)

December 20, 2029

Study Completion (Estimated)

September 20, 2031

Last Updated

June 22, 2025

Record last verified: 2025-01

Data Sharing

IPD Sharing
Will not share

Locations