Resilience in Persons Following Spinal Cord Injury
Resilience in People Following Spinal Cord Injury
1 other identifier
observational
28
1 country
1
Brief Summary
This study aims to quantify resilience in survivors of a spinal cord injury. The study will consist of structured interviews and self-reported surveys. We will look for common themes between participants at different stages of injury (1-5 years, 5-15 years, \>15 Years).
Trial Health
Trial Health Score
Automated assessment based on enrollment pace, timeline, and geographic reach
participants targeted
Target at below P25 for all trials
Started Sep 2020
Typical duration for all trials
1 active site
Health score is calculated from publicly available data and should be used for screening purposes only.
Trial Relationships
Click on a node to explore related trials.
Study Timeline
Key milestones and dates
First Submitted
Initial submission to the registry
September 4, 2020
CompletedFirst Posted
Study publicly available on registry
September 10, 2020
CompletedStudy Start
First participant enrolled
September 25, 2020
CompletedPrimary Completion
Last participant's last visit for primary outcome
October 1, 2022
CompletedStudy Completion
Last participant's last visit for all outcomes
April 4, 2024
CompletedMarch 20, 2026
April 1, 2024
2 years
September 4, 2020
March 18, 2026
Conditions
Keywords
Outcome Measures
Primary Outcomes (1)
Themes Survey
Common themes from the structured interviews
1 day (Single time point)
Secondary Outcomes (1)
Resilience
1 day (Single time point)
Other Outcomes (1)
Health Questionnaire Surveys
1 day (Single time point)
Study Arms (3)
1-5 Years post
Persons with Spinal Cord Injury occurring between 1-5 years prior
5-15 Years post
Persons with Spinal Cord Injury occurring between 5-15 years prior
>15 Years post
Persons with Spinal Cord Injury occurring at least 15 years prior
Interventions
Structured interview with research staff about your experience living with spinal cord injury
Eligibility Criteria
Persons who have experienced spinal cord injury at least 1 year prior to enrollment
You may qualify if:
- years old
- History of Traumatic Spinal Cord Injury at least 1 year prior
You may not qualify if:
- Progressive Spinal Cord Injury
Contact the study team to confirm eligibility.
Sponsors & Collaborators
- Shirley Ryan AbilityLablead
- Kiwanis Neurological Research Foundationcollaborator
Study Sites (1)
Shirley Ryan AbilityLab
Chicago, Illinois, 60611, United States
Related Publications (1)
Roth EJ, Lovell L, Barry A. Perspectives on factors influencing quality of life in persons with long-term spinal cord injury: a qualitative study. Spinal Cord. 2024 Jun;62(6):343-347. doi: 10.1038/s41393-024-00991-w. Epub 2024 Apr 22.
PMID: 38649756DERIVED
MeSH Terms
Conditions
Condition Hierarchy (Ancestors)
Study Officials
- PRINCIPAL INVESTIGATOR
Elliot Roth, MD
Shirley Ryan AbilityLab
Study Design
- Study Type
- observational
- Observational Model
- COHORT
- Time Perspective
- RETROSPECTIVE
- Sponsor Type
- OTHER
- Responsible Party
- PRINCIPAL INVESTIGATOR
- PI Title
- Co-Medical Director, Brain Innovation Center
Study Record Dates
First Submitted
September 4, 2020
First Posted
September 10, 2020
Study Start
September 25, 2020
Primary Completion
October 1, 2022
Study Completion
April 4, 2024
Last Updated
March 20, 2026
Record last verified: 2024-04
Data Sharing
- IPD Sharing
- Will not share