Understanding Family Refusal

NCT04303624 | Completed

• 1 other identifier: HSS-1502-P02-06
• Study Type: observational
• Target: 1,007
• Locations: 0 countries
• Sites: N/A

Brief Summary

The investigators plan a secondary data analysis of an existing dataset to examine how individual decision-making differs from family decision-making in organ donation.

Conditions

Brain Death; Renal Failure

Keywords

Organ donation; Transplantation; Intensive care

Outcome Measures

Primary Outcomes (1)

• Willingness to donate

  Participants indicated their willingness to donate their own organs and those of a close family member

  Single measurement (time of taking the survey)

Secondary Outcomes (1)

• Confidence in family decision-making

  Single measurement (time of taking the survey)

Study Arms (1)

Community sample

Representative sample of the Singapore population

Other: Health sciences survey

Interventions

Health sciences survey OTHER

Large scale demographic survey evaluating attitudes of population towards organ donation for the self vs. family

Community sample

Eligibility Criteria

• Age: 21 Years+
• Sex: female
• Healthy Volunteers: Yes
• Age Groups: Adult (18-64), Older Adult (65+)
• Sampling Method: Non-Probability Sample

Study Population

Participants were a representative sample of Singapore's population, approached via door-to-door recruitment and via community eateries.

You may qualify if:

• Citizens or permanent residents of Singapore
• Above 21

You may not qualify if:

• \- Below 21

Sponsors & Collaborators

• Yale-NUS College: lead
• Singapore General Hospital: collaborator

MeSH Terms

Conditions

Brain Death; Renal Insufficiency

Condition Hierarchy (Ancestors)

Brain Diseases; Central Nervous System Diseases; Nervous System Diseases; Coma; Unconsciousness; Consciousness Disorders; Neurobehavioral Manifestations; Neurologic Manifestations; Death; Pathologic Processes; Pathological Conditions, Signs and Symptoms; Kidney Diseases; Urologic Diseases; Female Urogenital Diseases; Female Urogenital Diseases and Pregnancy Complications; Urogenital Diseases; Male Urogenital Diseases

Study Design

• Study Type: observational
• Observational Model: COHORT
• Time Perspective: CROSS SECTIONAL
• Sponsor Type: OTHER
• Responsible Party: PRINCIPAL INVESTIGATOR
• PI Title: Assistant Professor

Study Record Dates

• First Submitted: March 8, 2020
• First Posted: March 11, 2020
• Study Start: September 1, 2016
• Primary Completion: March 31, 2019
• Study Completion: March 31, 2019
• Last Updated: March 11, 2020

Record last verified: 2020-03

Data Sharing

• IPD Sharing: Will not share