NCT04064086

Brief Summary

This study is intended to correct an important systemic deficit in the care of chronic kidney disease (CKD), VHA's fourth most common healthcare condition with high mortality and healthcare burden. Currently, many Veterans with CKD have poor awareness of their condition. This leads to suboptimal care. The investigators anticipate that the proposed comprehensive pre-end stage renal disease (ESRD) education (CPE) will enhance Veterans' CKD knowledge and their confidence in making an informed selection of an appropriate dialysis modality, and lead to an increase in the use of home dialysis (HoD) - an evidence-based, yet underutilized dialysis modality. Further, this study will allow us to examine whether such Veteran-informed dialysis choice can improve Veteran and health services outcomes. If successful, this study may deliver a ready to roll-out strategy to meet the CKD care needs of the Veterans and reduce VHA healthcare costs.

Trial Health

75
On Track

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
656

participants targeted

Target at P75+ for not_applicable

Timeline
17mo left

Started Mar 2020

Longer than P75 for not_applicable

Geographic Reach
1 country

1 active site

Status
active not recruiting

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

Click on a node to explore related trials.

Study Timeline

Key milestones and dates

Study Progress81%
Mar 2020Sep 2027

First Submitted

Initial submission to the registry

August 19, 2019

Completed
2 days until next milestone

First Posted

Study publicly available on registry

August 21, 2019

Completed
7 months until next milestone

Study Start

First participant enrolled

March 25, 2020

Completed
5.5 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

September 30, 2025

Completed
2 years until next milestone

Study Completion

Last participant's last visit for all outcomes

September 30, 2027

Expected
Last Updated

December 31, 2025

Status Verified

December 1, 2025

Enrollment Period

5.5 years

First QC Date

August 19, 2019

Last Update Submit

December 23, 2025

Conditions

Keywords

Chronic kidney diseasePre-dialysis educationKidney Disease EducationPatient EducationDecision Making

Outcome Measures

Primary Outcomes (1)

  • Home Dialysis Use

    Patient receiving either CPE or Enhanced usual care (EUC) will be followed for the diagnosis of ESRD and initiation of dialysis. The investigators will follow the use of peritoneal dialysis or home hemodialysis at day 90 into the dialysis as the home dialysis (HoD) use primary outcome.

    0-48 months

Secondary Outcomes (5)

  • Home Dialysis selection

    0-4 weeks

  • Kidney Disease Knowledge

    0-4 weeks

  • confidence in dialysis decision making

    0-4 weeks

  • post-ESRD Kidney Disease Quality of life-36

    3-48 months

  • Satisfaction on Dialysis

    3-48 months

Study Arms (2)

Comprehensive Pre-ESRD Patient Education (CPE)

ACTIVE COMPARATOR

These patients will receive CPE for a total of up to 3 session in an intent-to-teach format, either via Face-to-face or telemedicine delivery.

Other: Comprehensive Pre-ESRD Patient Education (CPE)

Enhanced Usual Care

ACTIVE COMPARATOR

This group will receive usual care. This care will be enhanced by providing them with the freely available education material for the Kidney Disease Education

Other: Provision of the freely available resources for Kidney Disease Education

Interventions

Structured education session/s

Also known as: Kidney Disease Education, CKD education, dialysis education
Comprehensive Pre-ESRD Patient Education (CPE)

freely available resources

Also known as: information brochure
Enhanced Usual Care

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Veterans registered to receive healthcare from the NF/SG VHS
  • years or older
  • Advanced CKD (stage 4 or 5) and not on dialysis

You may not qualify if:

  • Non-English speakers
  • Veterans who are homeless or living in assisted living facilities or nursing homes
  • Veterans with diagnosed dementia
  • Veterans with the life-expectancy less than 6 months
  • Any additional special concerns of a Veteran's provider

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

North Florida/South Georgia Veterans Health System, Gainesville, FL

Gainesville, Florida, 32608-1135, United States

Location

Related Publications (11)

  • Shukla AM, Cavanaugh KL, Jia H, Hale-Gallardo J, Wadhwa A, Fischer MJ, Reule S, Palevsky PM, Fried LF, Crowley ST. Needs and Considerations for Standardization of Kidney Disease Education in Patients with Advanced CKD. Clin J Am Soc Nephrol. 2023 Sep 1;18(9):1234-1243. doi: 10.2215/CJN.0000000000000170. Epub 2023 May 8.

  • Campbell-Montalvo R, Ftouni D, Shell P, Subhash S, Pearce K, Shukla AM. Understanding how patient education affects the process of treatment decision-making: Cultural model change in kidney disease therapy. Patient Educ Couns. 2025 Oct;139:109254. doi: 10.1016/j.pec.2025.109254. Epub 2025 Jul 5.

  • Pearce KE, Guo Y, Subhash S, Ftouni D, Visconti B, Wadhwa A, Agarwal A, Jia H, Shukla AM. Decision Readiness and Determinants of KRT among Veterans with Advanced CKD. Clin J Am Soc Nephrol. 2025 Apr 11;20(7):931-939. doi: 10.2215/CJN.0000000713.

  • Shukla AM, Visconti B, Pearce K, Orozco T, Hale-Gallardo J, Subhash S, Freytes IM, Jia H, Romero S, Guo Y. Development and Validation of KRT Knowledge Instrument. Clin J Am Soc Nephrol. 2024 Jul 1;19(7):877-886. doi: 10.2215/CJN.0000000000000472. Epub 2024 May 15.

  • Chamarthi G, Orozco T, Hale-Gallardo J, Subhash S, Shell P, Pearce K, Jia H, Shukla AM. Informed Dialysis Modality Selection Among Veterans With Advanced CKD: A Community-Level Needs Assessment. Kidney Med. 2024 Apr 26;6(6):100832. doi: 10.1016/j.xkme.2024.100832. eCollection 2024 Jun.

  • Chamarthi G, Orozco T, Shell P, Fu D, Hale-Gallardo J, Jia H, Shukla AM. Electronic Phenotype for Advanced Chronic Kidney Disease in a Veteran Health Care System Clinical Database: Systems-Based Strategy for Model Development and Evaluation. Interact J Med Res. 2023 Jul 24;12:e43384. doi: 10.2196/43384.

  • Campbell-Montalvo R, Jia H, Shukla AM. Supporting Shared Decision-Making and Home Dialysis in End-Stage Kidney Disease. Int J Nephrol Renovasc Dis. 2022 Sep 8;15:229-237. doi: 10.2147/IJNRD.S375347. eCollection 2022.

  • Orozco T, Segal E, Hinkamp C, Olaoye O, Shell P, Shukla AM. Development and validation of an end stage kidney disease awareness survey: Item difficulty and discrimination indices. PLoS One. 2022 Sep 9;17(9):e0269488. doi: 10.1371/journal.pone.0269488. eCollection 2022.

  • Shukla AM, Hale-Gallardo J, Orozco T, Freytes I, Purvis Z, Romero S, Jia H. A randomized controlled trial to evaluate and assess the effect of comprehensive pre-end stage kidney disease education on home dialysis use in veterans, rationale and design. BMC Nephrol. 2022 Mar 30;23(1):121. doi: 10.1186/s12882-022-02740-8.

  • Shukla AM, Cavanaugh KL, Wadhwa A, Crowley ST, Fried L. Basic Requirements for Improving Home Dialysis Utilization: Universal Access to Specialty Nephrology Care and Comprehensive Pre-ESKD Education. J Am Soc Nephrol. 2023 Jan 1;34(1):21-25. doi: 10.1681/ASN.2022060685. Epub 2022 Oct 25. No abstract available.

  • Cheng XBJ, Chan CT. Systems Innovations to Increase Home Dialysis Utilization. Clin J Am Soc Nephrol. 2024 Jan 1;19(1):108-114. doi: 10.2215/CJN.0000000000000298. Epub 2023 Aug 31.

MeSH Terms

Conditions

Renal Insufficiency, ChronicKidney Failure, Chronic

Condition Hierarchy (Ancestors)

Renal InsufficiencyKidney DiseasesUrologic DiseasesFemale Urogenital DiseasesFemale Urogenital Diseases and Pregnancy ComplicationsUrogenital DiseasesMale Urogenital DiseasesChronic DiseaseDisease AttributesPathologic ProcessesPathological Conditions, Signs and Symptoms

Study Officials

  • Ashutosh M. Shukla, MD MBBS

    North Florida/South Georgia Veterans Health System, Gainesville, FL

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
interventional
Phase
not applicable
Allocation
RANDOMIZED
Masking
SINGLE
Who Masked
OUTCOMES ASSESSOR
Masking Details
The study compares a comprehensive education with the standard of care. Thus it is not possible to mask investigator, participant or care provider. However, our statistician will assess the outcomes aggregates in a blinded manner.
Purpose
HEALTH SERVICES RESEARCH
Intervention Model
PARALLEL
Sponsor Type
FED
Responsible Party
SPONSOR

Study Record Dates

First Submitted

August 19, 2019

First Posted

August 21, 2019

Study Start

March 25, 2020

Primary Completion

September 30, 2025

Study Completion (Estimated)

September 30, 2027

Last Updated

December 31, 2025

Record last verified: 2025-12

Data Sharing

IPD Sharing
Will not share

Locations