NCT03993613

Brief Summary

The aim of the trial is to study the effect of apotransferrin administration in patients suffering from β-thalassemia intermedia in order to restore the erythropoiesis as reflected by enhanced haemoglobin levels or reduced transfusion dependency.

Trial Health

57
Monitor

Trial Health Score

Automated assessment based on enrollment pace, timeline, and geographic reach

Enrollment
10

participants targeted

Target at below P25 for phase_2

Timeline
Completed

Started Mar 2019

Typical duration for phase_2

Geographic Reach
1 country

1 active site

Status
terminated

Health score is calculated from publicly available data and should be used for screening purposes only.

Trial Relationships

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Study Timeline

Key milestones and dates

Study Start

First participant enrolled

March 21, 2019

Completed
2 months until next milestone

First Submitted

Initial submission to the registry

May 29, 2019

Completed
22 days until next milestone

First Posted

Study publicly available on registry

June 20, 2019

Completed
2.8 years until next milestone

Primary Completion

Last participant's last visit for primary outcome

March 31, 2022

Completed
Same day until next milestone

Study Completion

Last participant's last visit for all outcomes

March 31, 2022

Completed
Last Updated

August 15, 2022

Status Verified

August 1, 2022

Enrollment Period

3 years

First QC Date

May 29, 2019

Last Update Submit

August 11, 2022

Conditions

Outcome Measures

Primary Outcomes (1)

  • Erythropoiesis

    Change of haemoglobin level and/or or change of number of RBC units transfused/week

    17 weeks

Secondary Outcomes (12)

  • Change from baseline in serum iron

    17 weeks

  • Change from baseline in change plasma levels of advanced glycation end products

    17 weeks

  • Change in spleen size

    at baseline and at 16 weeks

  • Change from baseline in reticulocyte count

    17 weeks

  • Change from baseline in erythropoietin levels

    17 weeks

  • +7 more secondary outcomes

Study Arms (1)

human apotransferrin

EXPERIMENTAL

Patients will receive an intravenous dose of human apotransferrin every two weeks for 14-18 weeks.

Biological: human apotransferrin

Interventions

Intravenous infusions

human apotransferrin

Eligibility Criteria

Age18 Years+
Sexall
Healthy VolunteersNo
Age GroupsAdult (18-64), Older Adult (65+)

You may qualify if:

  • Non-transfusion dependent β-thalassemia intermedia, defined as patients with microcytic anaemia in combination with an elevated HbA2 (\>2.5%) and a haemoglobin of \<6.2 mmol/L, or transfusion dependent β-thalassemia treated with a regular transfusion schedule.
  • Age above≥ 17 years.
  • Adequate renal and hepatic function tests
  • WHO performance 0, 1 or 2.
  • Signed informed consent.

You may not qualify if:

  • Known with allergic reactions against human plasma or plasma products.
  • Concurrent severe and/or uncontrolled medical condition (e.g. uncontrolled diabetes, infection, hypertension, pulmonary disease).
  • Cardiac dysfunction as defined by: myocardial infarction within the last 6 months of study entry, unstable angina, or unstable cardiac arrhythmias.
  • Pregnant or lactating females.
  • Known with IgA deficiency with anti-IgA antibodies

Contact the study team to confirm eligibility.

Sponsors & Collaborators

Study Sites (1)

Academic Medical Centre

Amsterdam-Zuidoost, North Holland, 1100 DD, Netherlands

Location

Study Officials

  • Bart Biemond, MD, PhD

    Academic Medical Centre

    PRINCIPAL INVESTIGATOR

Study Design

Study Type
interventional
Phase
phase 2
Allocation
NA
Masking
NONE
Purpose
TREATMENT
Intervention Model
SINGLE GROUP
Sponsor Type
INDUSTRY
Responsible Party
SPONSOR

Study Record Dates

First Submitted

May 29, 2019

First Posted

June 20, 2019

Study Start

March 21, 2019

Primary Completion

March 31, 2022

Study Completion

March 31, 2022

Last Updated

August 15, 2022

Record last verified: 2022-08

Locations