NCT03957616|Unknown
Incidence of Paraneoplastic Neurological Syndromes and Autoimmune Encephalitis
IPNSAE
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IPNSAE
Sponsor study identifier
observational
600
1 country
1
Study Start
May 30, 2019
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Primary Completion
May 30, 2019
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Study Completion
July 31, 2019
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
This study aims to provide an estimate of the incidence of paraneoplastic neurological syndromes and autoimmune encephalitides in France between the years 2016 and 2018. The study will describe the incidence of antibody subtypes and regional variations.
Registry-reported information. Elapsed time and enrollment totals alone do not measure study progress or recruitment pace.
July 31, 2019
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
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Dates and qualifiers reported by the registry. Estimated dates do not confirm that a milestone has occurred.
May 17, 2019
Actual (reported)May 21, 2019
Actual (reported)May 30, 2019
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
May 30, 2019
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
July 31, 2019
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Incidence and prevalence of diagnosed Paraneoplastic Neurological Syndromes (PNS) and Autoimmune Encephalitis (AE) between 2016 and 2018.
Comparison between general population of the French counties and the cohort of PNS to calculate incidence and prevalence.
3 years
Location (city) of diagnosis
1 hour
French general population of each counties
3 years
Patients tested for Paraneoplastic neurological syndromes (PNS) and Autoimmune Encephalitis (AE) with a lumbar puncture, with detection of an antibody or negative, but with PNS clinically diagnosed.
Patients diagnosed with a paraneoplastic neurological syndrome or autoimmune encephalitis in France and referred to the national center in Lyon between 2016 and 2018.
Centre de référence des syndromes neurologiques paranéoplasiques et encéphalites auto-immunes
Lyon, 69003, France
Jérôme Honnorat
center for paraneoplastic neurological syndromes and autoimmune encephalitis
First Submitted
May 17, 2019
First Posted
May 21, 2019
Study Start
May 30, 2019
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Primary Completion
May 30, 2019
Estimated (date passed)Epidemiology of Autoimmune Encephalitides and Paraneoplastic Neurological Syndromes in Sweden
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This estimate has passed. The registry has not confirmed an actual date for this milestone.
Study Completion
July 31, 2019
Estimated (date passed)This estimate has passed. The registry has not confirmed an actual date for this milestone.
Last Updated
May 21, 2019
Record last verified: 2019-05
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Source: ClinicalTrials.gov.
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